Katie A. Greenzang
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View article: Defining and measuring tolerability in pediatric, adolescent, and young adult oncology: The essential voices
Defining and measuring tolerability in pediatric, adolescent, and young adult oncology: The essential voices Open
In this review on the status of tolerability in pediatric oncology, the authors address the relevance and meaning of this important concept and offer a definition to represent treatment tolerability experiences of pediatric, adolescent, an…
View article: Incorporation of patient-reported outcomes in pediatric cancer clinical trials: design, implementation, and dissemination
Incorporation of patient-reported outcomes in pediatric cancer clinical trials: design, implementation, and dissemination Open
Understanding the patient experience of treatment toxicities and their impact on health-related quality of life from cancer treatments requires asking patients using patient-reported outcomes. Over the past 20 years, the National Institute…
View article: Effective and Engaging Active Learning in the Medical School Classroom: Lessons from Case-Based Collaborative Learning
Effective and Engaging Active Learning in the Medical School Classroom: Lessons from Case-Based Collaborative Learning Open
Large group collaborative teaching approaches are rapidly gaining popularity in undergraduate medical education. The case-based collaborative Learning (CBCL) pedagogy was instituted for pre-clerkship teaching at Harvard Medical School in 2…
View article: Poverty, race, ethnicity, and survival in pediatric nonmetastatic osteosarcoma: a Children’s Oncology Group report
Poverty, race, ethnicity, and survival in pediatric nonmetastatic osteosarcoma: a Children’s Oncology Group report Open
Background Children living in poverty and those of marginalized race or ethnicity experience inferior disease outcomes across many cancers. Whether survival disparities exist in osteosarcoma is poorly defined. We investigated the associati…
View article: “<i>A very difficult conversation</i>”: Challenges and opportunities for improvement in pediatric oncology clinician communication about late effects
“<i>A very difficult conversation</i>”: Challenges and opportunities for improvement in pediatric oncology clinician communication about late effects Open
Objectives Current approaches to communicating the potential late effects of pediatric oncology treatments leave many patients and families feeling unaware of risks and unprepared for the future. We aimed to identify provider perspectives …
View article: Patient, Caregiver, and Clinician Perspectives on Core Components of Therapeutic Alliance for Adolescents and Young Adults With Advanced Cancer
Patient, Caregiver, and Clinician Perspectives on Core Components of Therapeutic Alliance for Adolescents and Young Adults With Advanced Cancer Open
Importance The patient-clinician therapeutic alliance is an important aspect of high-quality cancer care. However, components of the therapeutic alliance in adolescents and young adults (AYAs, aged 12-39 years) with cancer have not been de…
View article: Patient-Reported Outcomes in Pediatric Patients With Cancer
Patient-Reported Outcomes in Pediatric Patients With Cancer Open
Patient-reported outcomes (PROs) are reported directly by the patients about their own health. The objective of this article was to provide an overview of PROs in pediatric cancer, to describe how PROs can be incorporated into pediatric ca…
View article: “There's no playbook for when your kid has cancer”: Desired elements of an electronic resource to support pediatric cancer communication
“There's no playbook for when your kid has cancer”: Desired elements of an electronic resource to support pediatric cancer communication Open
Introduction Acute lymphoblastic leukemia (ALL), the most common childhood malignancy, has a relatively favorable long‐term prognosis. Yet the complexity of treatment and the emotionality of the diagnosis leave families feeling unprepared …
View article: Profile Comparison of Patient-Reported and Proxy-Reported Symptoms in Pediatric Patients With Cancer Receiving Chemotherapy
Profile Comparison of Patient-Reported and Proxy-Reported Symptoms in Pediatric Patients With Cancer Receiving Chemotherapy Open
IMPORTANCE: The variability in individual symptom and adverse event reporting between pediatric patient-reports and proxy-reports is widely reported. However, the question of whether symptom profiles based on reports from children with can…
View article: Early parental knowledge of late effect risks in children with cancer
Early parental knowledge of late effect risks in children with cancer Open
Background/objectives Despite the pervasiveness of late effects in childhood cancer survivors, many parents feel inadequately informed about their child's risks. We assessed early parental knowledge of risks of late effects and predictors …
View article: The predictive trifecta? Fatigue, pain, and anxiety severity forecast the suffering profile of children with cancer
The predictive trifecta? Fatigue, pain, and anxiety severity forecast the suffering profile of children with cancer Open
View article: Thinking ahead: Parents’ worries about late effects of childhood cancer treatment
Thinking ahead: Parents’ worries about late effects of childhood cancer treatment Open
Background Many childhood cancersurvivors experience at least one late effect of treatment, and both late effects and persistent cancer‐related worry can negatively impact quality of life in survivorship. Little is known about the prevalen…
View article: What, When, and Who: Optimizing Recruitment to Pediatric Pulmonology
What, When, and Who: Optimizing Recruitment to Pediatric Pulmonology Open
View article: The use of interval‐compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor
The use of interval‐compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor Open
Background Desmoplastic small round cell tumor (DSRCT) is a rare aggressive sarcoma that affects children and young adults, and portends poor outcomes despite intensive multimodal treatment approaches. We report toxicity, response, and out…
View article: Early information needs of adolescents and young adults about late effects of cancer treatment
Early information needs of adolescents and young adults about late effects of cancer treatment Open
Background Adolescent and young adult (AYA) cancer survivors have high risks of late effects. Little is known about the late‐effect information needs of AYAs early in treatment or their role in treatment decision making. This study evaluat…
View article: Parental Considerations Regarding Cure and Late Effects for Children With Cancer
Parental Considerations Regarding Cure and Late Effects for Children With Cancer Open
Avoidance of severe neurocognitive impairment was the predominant driver of parent and physician treatment preferences, even over an increased chance of cure. This highlights the importance of exploring parental late-effects priorities whe…
View article: Communication during childhood cancer: Systematic review of patient perspectives
Communication during childhood cancer: Systematic review of patient perspectives Open
Effective communication is challenging in childhood cancer, where decisions carry unpredictable and life‐threatening implications. We aimed to describe patients' experiences of communicating with clinicians during treatment of childhood ca…
View article: Completion of Adolescent Cancer Treatment: Excitement, Guilt, and Anxiety
Completion of Adolescent Cancer Treatment: Excitement, Guilt, and Anxiety Open
* Abbreviation:
AYA — : adolescent and young adult
The completion of cancer treatment in adolescents and young adults (AYAs) is a time that many patients and families approach with hope and excitement but is often tinged with …
View article: Parental distress and desire for information regarding long‐term implications of pediatric cancer treatment
Parental distress and desire for information regarding long‐term implications of pediatric cancer treatment Open
Background Parents of children with cancer have unmet information needs regarding future limitations resulting from cancer or its treatment. Prior research has demonstrated that, in early care discussions, clinicians focus on the acute eff…
View article: Longitudinal parental preferences for late effects communication during cancer treatment
Longitudinal parental preferences for late effects communication during cancer treatment Open
Few studies have investigated parent preferences for late effects communication during pediatric cancer treatment. We used questionnaire data to assess whether parental preferences for late effects information change over the year after di…
View article: Parental preparedness for late effects and long‐term quality of life in survivors of childhood cancer
Parental preparedness for late effects and long‐term quality of life in survivors of childhood cancer Open
BACKGROUND Parents of children with cancer desire information regarding the late effects of treatment. In the current study, the authors assessed parents' preparedness for late effects at least 5 years after their child's diagnosis. METHOD…
View article: Responsibility for Patient Care in Graduate Medical Education
Responsibility for Patient Care in Graduate Medical Education Open
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