Kendra Parris
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View article: An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting
An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting Open
Background: The Standards for the Psychosocial Care of Children with Cancer and their Families provide a framework for the delivery of psychosocial care to families experiencing pediatric cancer. Similarly, the Pediatric Psychosocial Preve…
View article: Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience
Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience Open
Given the understandable patient and caregiver distress that often fluctuates across treatment, especially at diagnosis and with major disease milestones, it is important to prioritize interventions that are known to best support families …
View article: Current training practices and training gaps in clinical child and adolescent psychology: Implications for training guidelines.
Current training practices and training gaps in clinical child and adolescent psychology: Implications for training guidelines. Open
Training guidelines for CCAP offer value for program development, promoting consistency in training across programs, assisting trainees in achieving necessary experiences, and ensuring the competency of the mental health workforce. This st…
View article: 3 Clinical Utility of Neurocognitive Monitoring During Therapy in Survivors of Childhood Acute Lymphoblastic Leukemia (ALL)
3 Clinical Utility of Neurocognitive Monitoring During Therapy in Survivors of Childhood Acute Lymphoblastic Leukemia (ALL) Open
Objective: Survivors of childhood ALL treated with CNS-directed chemotherapy are at risk for neurocognitive deficits that emerge during treatment and impact functional and quality of life outcomes throughout survivorship. Neurocognitive mo…
View article: Psychosocial outcomes and quality of life among school‐age survivors of retinoblastoma
Psychosocial outcomes and quality of life among school‐age survivors of retinoblastoma Open
Background Retinoblastoma is the most common intraocular childhood cancer and is typically diagnosed in young children. With increasing number of survivors and improved medical outcomes, long‐term psychosocial impacts need to be explored. …
View article: Case Series: Neurobehavioral Profile of Adolescents with PTEN Hamartoma Tumor Syndrome
Case Series: Neurobehavioral Profile of Adolescents with PTEN Hamartoma Tumor Syndrome Open
Individuals with PHTS may present with cognitive difficulties that impact everyday functioning, with or without a neurodevelopmental diagnosis. Routine neurocognitive assessment should be considered in management guidelines.
View article: “Giving the gift of life twice”: Understanding the lived experiences of parent donors and non-donors in pediatric haploidentical hematopoietic cell transplantation
“Giving the gift of life twice”: Understanding the lived experiences of parent donors and non-donors in pediatric haploidentical hematopoietic cell transplantation Open
Background: The use of parental donors in pediatric haploidentical hematopoietic cell transplantation is increasing, but research on the psychosocial impact of parental donation is currently limited. We conducted a retrospective, qualitati…
View article: Cognitive and Adaptive Functioning in Youth With Retinoblastoma: A Longitudinal Investigation Through 10 Years of Age
Cognitive and Adaptive Functioning in Youth With Retinoblastoma: A Longitudinal Investigation Through 10 Years of Age Open
PURPOSE To describe the trajectory of cognitive and adaptive functioning in pediatric patients with retinoblastoma from diagnosis through age 10. This is an extension of a previous report that discussed findings from diagnosis through age …
View article: Sleepiness, Fatigue, Behavioral Functioning, and Quality of Life in Survivors of Childhood Hematopoietic Stem Cell Transplant
Sleepiness, Fatigue, Behavioral Functioning, and Quality of Life in Survivors of Childhood Hematopoietic Stem Cell Transplant Open
A substantial number of pediatric HSCT survivors exhibit sleepiness and fatigue. Fatigue is associated with statistically and clinically greater functional difficulties, highlighting the importance of examining sleep and fatigue and consid…