Kerri I. Aronson
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View article: Minimal Clinically Important Difference for Worsening of the University of California San Diego Shortness of Breath Questionnaire in Patients With Idiopathic Pulmonary Fibrosis With Mild or Moderate Impairment in Lung Function
Minimal Clinically Important Difference for Worsening of the University of California San Diego Shortness of Breath Questionnaire in Patients With Idiopathic Pulmonary Fibrosis With Mild or Moderate Impairment in Lung Function Open
View article: Patient perspectives on educational needs in scleroderma-interstitial lung disease
Patient perspectives on educational needs in scleroderma-interstitial lung disease Open
Background: Systemic sclerosis is a chronic and rare connective tissue disease with multiorgan effects, including interstitial lung disease (ILD). Navigating systemic sclerosis-interstitial lung disease presents a challenge for patients du…
View article: Assessment of Home-based Monitoring in Adults with Chronic Lung Disease: An Official American Thoracic Society Research Statement
Assessment of Home-based Monitoring in Adults with Chronic Lung Disease: An Official American Thoracic Society Research Statement Open
Background: There is increasing interest in the use of home-based monitoring in people with chronic lung diseases to improve access to care, support patient self-management, and facilitate the collection of information for clinical …
View article: Patient perspectives on knowledge gaps in hypersensitivity pneumonitis
Patient perspectives on knowledge gaps in hypersensitivity pneumonitis Open
Objectives Responding to prior research findings that lack of knowledge about their disease impacted patients’ quality of life, the objective of this study was to identify and prioritise information gaps about hypersensitivity pneumonitis …
View article: Interstitial Lung Disease Patients’ Global Impressions of Symptoms, Severity Ratings, and Meaningfulness of Changes Over Time
Interstitial Lung Disease Patients’ Global Impressions of Symptoms, Severity Ratings, and Meaningfulness of Changes Over Time Open
Rationale: In interstitial lung disease (ILD), symptoms drive impairments in health-related quality of life. Patient-reported outcome measures (PROMs) can assess whether interventions change symptom severity. The meaningfulness of c…
View article: Interventions to Improve Quality of Life and Knowledge in Hypersensitivity Pneumonitis
Interventions to Improve Quality of Life and Knowledge in Hypersensitivity Pneumonitis Open
Clinicians in this survey unanimously agree that interventions to improve HRQOL and knowledge are needed for people living with HP. Clinicians' desire for involvement in education, referral and reinforcement of these interventions will req…
View article: Development and initial validation of a disease-specific instrument to measure health-related quality of life in hypersensitivity pneumonitis
Development and initial validation of a disease-specific instrument to measure health-related quality of life in hypersensitivity pneumonitis Open
Rationale and objective Disease-specific health-related quality of life (HRQOL) instruments enable us to capture domains that are most relevant to specific patient populations and are useful when a more individualised approach to patient a…
View article: A first look at the reliability, validity and responsiveness of L-PF-35 dyspnea domain scores in fibrotic hypersensitivity pneumonitis
A first look at the reliability, validity and responsiveness of L-PF-35 dyspnea domain scores in fibrotic hypersensitivity pneumonitis Open
Background Dyspnea impairs quality of life (QOL) in patients with fibrotic hypersensitivity pneumonitis (FHP). The Living with Pulmonary Fibrosis questionnaire (L-PF) assesses symptoms, their impacts and PF-related QOL in patients with any…
View article: Nintedanib and symptoms of fibrotic lung disease: a glimmer of hope for patients living with pulmonary fibrosis
Nintedanib and symptoms of fibrotic lung disease: a glimmer of hope for patients living with pulmonary fibrosis Open
Treatment with nintedanib slows the worsening of dyspnoea and fatigue, stabilises the degree of impact of pulmonary fibrosis, and may actually improve cough https://bit.ly/3S01WbX
View article: Meaningful Endpoints for Idiopathic Pulmonary Fibrosis (IPF) Clinical Trials: Emphasis on ‘Feels, Functions, Survives’. Report of a Collaborative Discussion in a Symposium with Direct Engagement from Representatives of Patients, Investigators, the National Institutes of Health, a Patient Advocacy Organization, and a Regulatory Agency
Meaningful Endpoints for Idiopathic Pulmonary Fibrosis (IPF) Clinical Trials: Emphasis on ‘Feels, Functions, Survives’. Report of a Collaborative Discussion in a Symposium with Direct Engagement from Representatives of Patients, Investigators, the National Institutes of Health, a Patient Advocacy Organization, and a Regulatory Agency Open
Background: Idiopathic pulmonary fibrosis (IPF) carries significant mortality and unpredictable progression, with limited therapeutic options. Designing trials with patient-meaningful endpoints, enhancing the reliability and interpr…
View article: Perspectives of Black Adults Living with Chronic Obstructive Pulmonary Disease on Barriers to Cardiovascular Disease Prevention
Perspectives of Black Adults Living with Chronic Obstructive Pulmonary Disease on Barriers to Cardiovascular Disease Prevention Open
Rationale: Cardiovascular disease (CVD) is a leading cause of morbidity and mortality among individuals with chronic obstructive pulmonary disease (COPD). Black women with COPD are at elevated risk of CVD-related mortality compared …
View article: Current Landscape and Future Directions of Patient Education in Adults with Interstitial Lung Disease
Current Landscape and Future Directions of Patient Education in Adults with Interstitial Lung Disease Open
By expanding access to novel ILD-specific education programs and accounting for social determinants of health that impact healthcare access, patient education has the potential to become more attainable, improving patient-centered outcomes…
View article: Is it time to include oxygen needs as an endpoint in clinical trials in patients with fibrosing interstitial lung disease? If so, how?
Is it time to include oxygen needs as an endpoint in clinical trials in patients with fibrosing interstitial lung disease? If so, how? Open
Many patients with fibrosing interstitial lung disease (fILD) will need to use supplemental oxygen (O 2 ) to maintain normoxia at some point in their illness. If it is not needed at the time of diagnosis, then if fILD progresses—or if a co…
View article: Validity and Reliability of the Fatigue Severity Scale in a Real-World Interstitial Lung Disease Cohort
Validity and Reliability of the Fatigue Severity Scale in a Real-World Interstitial Lung Disease Cohort Open
Rationale: Fatigue is a common and debilitating symptom for people living with interstitial lung disease (ILD). Studies on fatigue in ILD are limited, and little headway has been made toward developing interventions targeting the al…
View article: Disparities in Guideline-Concordant Statin Treatment in Individuals With Chronic Obstructive Pulmonary Disease
Disparities in Guideline-Concordant Statin Treatment in Individuals With Chronic Obstructive Pulmonary Disease Open
All race-sex groups were less likely to receive statin treatment in the REGARDS COPD sub-cohort compared to White men. This difference persisted in women after controlling for individual health care utilization factors, suggesting structur…
View article: Evolving Needs of Critical Care Trainees during the COVID-19 Pandemic: A Qualitative Study
Evolving Needs of Critical Care Trainees during the COVID-19 Pandemic: A Qualitative Study Open
The needs expressed by critical care trainees are only partially captured in conceptual models of physician well-being. The need for multilevel workplace social networks and identifying meaning in one's work have been magnified in this pan…
View article: Assessing mortality differences across acute respiratory failure management strategies in Covid-19
Assessing mortality differences across acute respiratory failure management strategies in Covid-19 Open
View article: Current Beliefs and Practices Regarding the Management of Obesity in Patients with Progressive Interstitial Lung Disease
Current Beliefs and Practices Regarding the Management of Obesity in Patients with Progressive Interstitial Lung Disease Open
"Current Beliefs and Practices Regarding the Management of Obesity in Patients with Progressive Interstitial Lung Disease." Annals of the American Thoracic Society, 19(9), pp. 1602–1605
View article: Health Related Quality of Life in Interstitial Lung Disease: Can We Use the Same Concepts Around the World?
Health Related Quality of Life in Interstitial Lung Disease: Can We Use the Same Concepts Around the World? Open
Health-Related Quality of Life (HRQOL) is increasingly viewed as an important patient-centered outcome by leading health organizations, clinicians, and patients alike. This is especially true in the interstitial lung disease community wher…
View article: Barriers to antigen detection and avoidance in chronic hypersensitivity pneumonitis in the United States
Barriers to antigen detection and avoidance in chronic hypersensitivity pneumonitis in the United States Open
View article: Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement
Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement Open
Background: In the past two decades, many advances have been made to our understanding of interstitial lung disease (ILD) and the way we approach its treatment. Despite this, many questions remain unanswered, particularly those rela…
View article: Lungs after COVID-19: Evolving Knowledge of Post–COVID-19 Interstitial Lung Disease
Lungs after COVID-19: Evolving Knowledge of Post–COVID-19 Interstitial Lung Disease Open
View article: How Do We Define a Meaningful Change in Quality of Life for Patients with Sarcoidosis?
How Do We Define a Meaningful Change in Quality of Life for Patients with Sarcoidosis? Open
View article: Establishing content-validity of a disease-specific health-related quality of life instrument for patients with chronic hypersensitivity pneumonitis
Establishing content-validity of a disease-specific health-related quality of life instrument for patients with chronic hypersensitivity pneumonitis Open
View article: ‘It’s difficult, it’s life changing what happens to you’ patient perspective on life with chronic hypersensitivity pneumonitis: a qualitative study
‘It’s difficult, it’s life changing what happens to you’ patient perspective on life with chronic hypersensitivity pneumonitis: a qualitative study Open
Rationale Chronic hypersensitivity pneumonitis (CHP) is a distinct form of interstitial lung disease caused by an inhaled environmental antigen. Some patients with CHP develop progressive pulmonary fibrosis and varying degrees of symptom s…
View article: The acute respiratory distress syndrome: a clinical review
The acute respiratory distress syndrome: a clinical review Open
The acute respiratory distress syndrome (ARDS), is characterized by bilateral pulmonary infiltrates with refractory hypoxemia that is non-cardiogenic in origin, and has a high incidence in hospitalized patients with a significant mortality…