Kinga Pozniak
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View article: The experiences of parents of children with disabilities receiving healthcare services: Negative emotions and associated situations
The experiences of parents of children with disabilities receiving healthcare services: Negative emotions and associated situations Open
Parents expressed strong negative emotions, indicating a lack of family-centered care in their experiences with pediatric healthcare services. Service providers can reduce the likelihood of negative emotional experiences by gauging the lev…
View article: Family-centered service through the eyes of insiders: Healthcare providers who are parents speak about receiving and providing healthcare in child health
Family-centered service through the eyes of insiders: Healthcare providers who are parents speak about receiving and providing healthcare in child health Open
The lived experiences of HCP-parents can contribute important insights regarding service delivery, and in particular regarding the application of Family-Centered Service.
View article: What supports and services post COVID-19 do children with disabilities and their parents need and want, now and into the future?
What supports and services post COVID-19 do children with disabilities and their parents need and want, now and into the future? Open
Introduction Children and youth with disabilities and special healthcare needs, and their families, have been uniquely affected by the COVID-19 pandemic. However, the voices of children themselves are still not well represented in the exis…
View article: Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research
Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research Open
Background While patient and family engagement in research has become a widespread practice, meaningful and authentic engagement remains a challenge. In the READYorNot™ Brain-Based Disabilities Study, we developed the MyREADY Transition™ B…
View article: A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada
A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada Open
There is a growing number of youth with healthcare needs such as disabilities or chronic health conditions who require lifelong care. In Canada, transfer to the adult healthcare system typically occurs at age 18 and is set by policy regard…
View article: Establishing and sustaining authentic organizational partnerships in childhood disability research: lessons learned
Establishing and sustaining authentic organizational partnerships in childhood disability research: lessons learned Open
View article: Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?
Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated? Open
Patient and family engagement has become a widely accepted approach in health care research. We recognize that research conducted in partnership with people with relevant lived experience can substantially improve the quality of that resea…
View article: Factors influencing the success of telepractice during the COVID‐19 pandemic and preferences for post‐pandemic services: An interview study with clinicians and parents
Factors influencing the success of telepractice during the COVID‐19 pandemic and preferences for post‐pandemic services: An interview study with clinicians and parents Open
Background There has been a significant uptake in the use of telepractice during the coronavirus SARS‐CoV‐2 (COVID‐19) pandemic. This study explored the experiences of speech and language therapists (SLTs), assistants (SLTAs) and parents w…
View article: Impact of “early intervention” parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study
Impact of “early intervention” parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study Open
This study explored the feasibility, impact and parent experiences of ENVISAGE (ENabling VISions And Growing Expectations)-Families, a parent-researcher co-designed and co-led program for parents/caregivers raising children with early-onse…
View article: Building a culture of engagement at a research centre for childhood disability
Building a culture of engagement at a research centre for childhood disability Open
View article: Participation‐based intervention in childhood disability: a family‐centred approach
Participation‐based intervention in childhood disability: a family‐centred approach Open
This commentary is on the systematic review by Arakelyan et al. on pages 514–522 of this issue.