Krystal S. Tsosie
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View article: Advancing the science of genomic learning healthcare systems
Advancing the science of genomic learning healthcare systems Open
Introduction Identifying key characteristics of exemplar genomic learning healthcare systems (gLHS) and knowledge gaps that can be explored by collaboration among them is likely to accelerate the sharing of best practices and generation of…
View article: Inherited retinal disease in global Indigenous populations: A scoping review
Inherited retinal disease in global Indigenous populations: A scoping review Open
Accurate diagnosis is essential for accessing emerging gene-targeted treatments for inherited retinal diseases (IRDs), but many minoritised communities face additional barriers to diagnosis. This scoping review synthesised clinical studies…
View article: “Rigorous and Systematic Qualitative Data Analysis in Biological Anthropology”
“Rigorous and Systematic Qualitative Data Analysis in Biological Anthropology” Open
Biological anthropologists have long engaged in qualitative data analysis (QDA), though such work is not always foregrounded. In this article, we discuss the role of rigorous and systematic QDA in biological anthropology and consider how i…
View article: Earth Friendly Computation: Applying Indigenous Data Lifecycles in Medical and Sovereign AI
Earth Friendly Computation: Applying Indigenous Data Lifecycles in Medical and Sovereign AI Open
The following sections are included: Overview, Background & key terms, Earth Friendly Computation 574: Indigenous Data Sovereignty, Circular Systems, and Solarpunk Solutions for a Sustainable Future, AI in Point-of-Care: A Sustainable Heal…
View article: The ethical challenges of diversifying genomic data: A qualitative evidence synthesis
The ethical challenges of diversifying genomic data: A qualitative evidence synthesis Open
This article aims to explore the ethical issues arising from attempts to diversify genomic data and include individuals from underserved groups in studies exploring the relationship between genomics and health. We employed a qualitative sy…
View article: Identifying Assets and Collaborative Activities to Support Student Success in Environmental Data Science at Minority Serving Institutions
Identifying Assets and Collaborative Activities to Support Student Success in Environmental Data Science at Minority Serving Institutions Open
This report synthesizes the findings and recommendations from a project funded by the National Science Foundation (Award #2135830): Identifying Assets and Collaborative Activities to Support Student Success in Environmental Data Science at…
View article: Indigenous peoples and local communities as partners in the sequencing of global eukaryotic biodiversity
Indigenous peoples and local communities as partners in the sequencing of global eukaryotic biodiversity Open
The aim to sequence, catalog, and characterize the genomes of all of Earth’s eukaryotic biodiversity is the shared mission of many ongoing large-scale biodiversity genomics initiatives. Reference genomes of global flora and fauna have the …
View article: Community partnerships are fundamental to ethical ancient DNA research
Community partnerships are fundamental to ethical ancient DNA research Open
The ethics of the scientific study of Ancestors has long been debated by archaeologists, bioanthropologists, and, more recently, ancient DNA (aDNA) researchers. This article responds to the article "Ethics of DNA research on human remains:…
View article: Ethical, Legal and Social Issues in Diversifying Genomic Data: Literature Review and Synthesis
Ethical, Legal and Social Issues in Diversifying Genomic Data: Literature Review and Synthesis Open
Advances in technology have resulted in the ability to sequence entire human genomes as a routine, relatively inexpensive, investigation in healthcare. This offers many promises of personalising, stratifying, and targeting healthcare with …
View article: Indigenous Peoples and Local Communities as partners in the sequencing of all eukaryotic life for the future of life
Indigenous Peoples and Local Communities as partners in the sequencing of all eukaryotic life for the future of life Open
The aim to sequence, catalog, and characterize the genomes of all of Earth’s eukaryotic biodiversity is the shared mission of many ongoing large scale biodiversity genomics initiatives. Reference genomes of our global flora and fauna have …
View article: Beyond Ethics: Considerations for Centering Equity-Minded Data Science
Beyond Ethics: Considerations for Centering Equity-Minded Data Science Open
In this paper, we utilize duoethnography - a research method in which practitioners discursively interrogate the relationships between culture, context, and the mechanisms which shape individual autobiographical experiences - to explore wh…
View article: Ethical Guidance in Human Paleogenomics: New and Ongoing Perspectives
Ethical Guidance in Human Paleogenomics: New and Ongoing Perspectives Open
Over the past two decades, the study of ancient genomes from Ancestral humans, or human paleogenomic research, has expanded rapidly in both scale and scope. Ethical discourse has subsequently emerged to address issues of social responsibil…
View article: Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics
Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics Open
The COVID-19 pandemic has inequitably impacted Indigenous communities in the United States. In this emergency state that highlighted existing inadequacies in US government and tribal public health infrastructures, many tribal nations contr…
View article: Considering “Respect for Sovereignty” Beyond the Belmont Report and the Common Rule: Ethical and Legal Implications for American Indian and Alaska Native Peoples
Considering “Respect for Sovereignty” Beyond the Belmont Report and the Common Rule: Ethical and Legal Implications for American Indian and Alaska Native Peoples Open
We agree with Saunkeah and colleagues (2021) that research ethics principles outlined by the Belmont Report—which guide the procedural basis for “human subjects” research in the United States throu...
View article: Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States
Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States Open
The adapted deliberations achieved key deliberative goals and were generally well received. Limitations of the study are described.
View article: We Have “Gifted” Enough: Indigenous Genomic Data Sovereignty in Precision Medicine
We Have “Gifted” Enough: Indigenous Genomic Data Sovereignty in Precision Medicine Open
This article is referred to by:Response to Open Peer Commentaries: Distinguishing the "Gift" from "Donation" as a Path toward Reciprocity and Relational Ethics
View article: Public Comment on Draft NOAA Citizen Science Strategy
Public Comment on Draft NOAA Citizen Science Strategy Open
This guest editorial briefly describes a history of activities related to encouraging the U.S. federal government to use and support citizen science, and presents the recent public comments that we submitted to the U.S. National Oceanic an…
View article: Meta-analysis identifies common and rare variants influencing blood pressure and overlapping with metabolic trait loci
Meta-analysis identifies common and rare variants influencing blood pressure and overlapping with metabolic trait loci Open
Meta-analyses of association results for blood pressure using exome-centric single-variants and gene-based tests identified 31 novel loci in discovery among 146,562 individuals with follow-up and meta-analysis in 180,726 additional individ…
View article: Indigenizing Science and Reasserting Indigeneity in Research
Indigenizing Science and Reasserting Indigeneity in Research Open
1 Vanderbilt University, Nashville, Tennessee, USA. 2 Department of Science, Technology, Engineering, and Math, Turtle Mountain Community College, Belcourt, North Dakota, USA. 3 Division of Biomedical Informatics and Personalized Medicine,…
View article: Family History and the Global Politics of DNA
Family History and the Global Politics of DNA Open
The global DNA ancestry industry appeals to various “markets”: diasporic groups seeking to reconstruct lost kinship links; adoptees looking for biological relatives; genealogists tracing their family trees; and those who are merely curious…