Leah Getchell
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View article: Connecting to Resilience, Hope, and Spirituality through a Narrative Therapy and Narrative Medicine Creative Writing Group for People Affected by Cancer
Connecting to Resilience, Hope, and Spirituality through a Narrative Therapy and Narrative Medicine Creative Writing Group for People Affected by Cancer Open
In this article, the authors will describe a creative writing therapeutic group program they developed based on narrative therapy and narrative medicine principles. This was a Social Science and Humanities Research Council—Partnership Enga…
View article: Effect of a Novel Multicomponent Intervention to Improve Patient Access to Kidney Transplant and Living Kidney Donation
Effect of a Novel Multicomponent Intervention to Improve Patient Access to Kidney Transplant and Living Kidney Donation Open
Importance Patients with advanced chronic kidney disease (CKD) have the best chance for a longer and healthier life if they receive a kidney transplant. However, many barriers prevent patients from receiving a transplant. Objectives To eva…
View article: Storytelling for impact: the creation of a storytelling program for patient partners in research
Storytelling for impact: the creation of a storytelling program for patient partners in research Open
Storytelling is a powerful means to evoke empathy and understanding among people. When patient partners, which include patients, family members, caregivers and organ donors, share their stories with health professionals, this can prompt li…
View article: The dynamic nature of patient engagement within a Canadian patient‐oriented kidney health research network: Perspectives of researchers and patient partners
The dynamic nature of patient engagement within a Canadian patient‐oriented kidney health research network: Perspectives of researchers and patient partners Open
Introduction Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can‐SOLVE CKD) is a pan‐Canadian health research network that engages patients as partners across 18 unique projects and core infrastructure. In t…
View article: Program Report: Can-SOLVE CKD Network Presents an Inclusive Method for Developing Patient-Oriented Research Tools
Program Report: Can-SOLVE CKD Network Presents an Inclusive Method for Developing Patient-Oriented Research Tools Open
Purpose of program: Given the growing interest in patient-oriented research (POR) initiatives, there is a need to provide relevant training and education on how to engage with patients as partners on research teams. Sources of information:…
View article: Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD): Statistical Analysis Plan of a Registry-Based, Cluster-Randomized Clinical Trial
Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD): Statistical Analysis Plan of a Registry-Based, Cluster-Randomized Clinical Trial Open
Background: Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD) is a quality improvement intervention designed to enhance access to kidney transplantation and living kidney donation. We conducted a cluster-rando…
View article: POS-469 ENHANCING PATIENT CARE BY PARTNERING WITH PATIENTS IN KIDNEY HEALTH RESEARCH
POS-469 ENHANCING PATIENT CARE BY PARTNERING WITH PATIENTS IN KIDNEY HEALTH RESEARCH Open
Canada's Strategy for Patient-Oriented Research (SPOR) has raised awareness of the need to generate knowledge that is more relevant to patients and to accelerate the translation of evidence into clinical care. Members of the Canadian nephr…
View article: Outcomes of an Inpatient Dialysis Start in Patients With Kidney Graft Failure: A Population-Based Multicentre Cohort Study
Outcomes of an Inpatient Dialysis Start in Patients With Kidney Graft Failure: A Population-Based Multicentre Cohort Study Open
Background: The frequency and outcomes of starting maintenance dialysis in the hospital as an inpatient in kidney transplant recipients with graft failure are poorly understood. Objective: To determine the frequency of inpatient dialysis s…
View article: A Quality Improvement Intervention to Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD) in Patients With Chronic Kidney Disease: Clinical Research Protocol of a Cluster-Randomized Clinical Trial
A Quality Improvement Intervention to Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD) in Patients With Chronic Kidney Disease: Clinical Research Protocol of a Cluster-Randomized Clinical Trial Open
Background: Many patients with kidney failure will live longer and healthier lives if they receive a kidney transplant rather than dialysis. However, multiple barriers prevent patients from accessing this treatment option. Objective: To de…
View article: A RAND-Modified Delphi on Key Indicators to Measure the Efficiency of Living Kidney Donor Candidate Evaluations
A RAND-Modified Delphi on Key Indicators to Measure the Efficiency of Living Kidney Donor Candidate Evaluations Open
Background and objectives Many patients, providers, and potential living donors perceive the living kidney donor evaluation process to be lengthy and difficult to navigate. Design, setting, participants, & measurements We sought consensus …
View article: Program Report: KidneyPRO, a Web-based Training Module for Patient Engagement in Kidney Research
Program Report: KidneyPRO, a Web-based Training Module for Patient Engagement in Kidney Research Open
Purpose of report: Over the recent years, there has been increasing support and traction for patient-oriented research (POR). Such an approach ensures that health research is focused on what matters most: improving outcomes for patients. Y…
View article: Clinical care gaps and solutions in diabetes and advanced chronic kidney disease: a patient-oriented qualitative research study
Clinical care gaps and solutions in diabetes and advanced chronic kidney disease: a patient-oriented qualitative research study Open
Patients with complex medical comorbidities face many challenges traversing a health care system organized around single diseases. Researchers and policy-makers should study and develop patient-centred diabetes care strategies to better su…
View article: Cultivating Innovative Pragmatic Cluster-Randomized Registry Trials Embedded in Hemodialysis Care: Workshop Proceedings From 2018
Cultivating Innovative Pragmatic Cluster-Randomized Registry Trials Embedded in Hemodialysis Care: Workshop Proceedings From 2018 Open
Hemodialysis is a life-sustaining treatment for persons with kidney failure. However, those on hemodialysis still face a poor quality of life and a short life expectancy. High-quality research evidence from large randomized controlled tria…
View article: Patient and caregiver involvement in a multicentre clustered hemodialysis trial
Patient and caregiver involvement in a multicentre clustered hemodialysis trial Open
KEY POINTS Nearly 23 000 Canadians (about 3 million people worldwide) are currently living with kidney failure and receive maintenance hemodialysis to sustain life.[1][1] Patients with kidney failure often require three- to four-hour hemod…
View article: Educational Support Around Dialysis Modality Decision Making in Patients With Chronic Kidney Disease: Qualitative Study
Educational Support Around Dialysis Modality Decision Making in Patients With Chronic Kidney Disease: Qualitative Study Open
Background: Patients with chronic kidney disease (CKD) are asked to choose a renal replacement therapy or conservative management. Education and knowledge transfer play key roles in this decision-making process, yet they remain a partially…
View article: Barriers to Education and Shared Decision Making in the Chronic Kidney Disease Population: A Narrative Review
Barriers to Education and Shared Decision Making in the Chronic Kidney Disease Population: A Narrative Review Open
Purpose of review: Provision of education to inform decision making for renal replacement therapy (RRT) is a key component in the management of chronic kidney disease (CKD), yet patients report suboptimal satisfaction with the process of s…
View article: Promoting deceased organ and tissue donation registration in family physician waiting rooms (RegisterNow-1 trial): study protocol for a pragmatic, stepped-wedge, cluster randomized controlled registry
Promoting deceased organ and tissue donation registration in family physician waiting rooms (RegisterNow-1 trial): study protocol for a pragmatic, stepped-wedge, cluster randomized controlled registry Open
ClinicalTrials.gov, ID: NCT03213171 . Registered on 11 July 2017.
View article: Increasing the Rate of Living Donor Kidney Transplantation in Ontario: Donor- and Recipient-Identified Barriers and Solutions
Increasing the Rate of Living Donor Kidney Transplantation in Ontario: Donor- and Recipient-Identified Barriers and Solutions Open
Purpose of Review: To hear from living kidney donors and recipients about what they perceive are the barriers to living donor kidney transplantation, and how patients can develop and lead innovative solutions to increase the rate and enhan…