Lelia Valdré
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View article: Improving functional capacity in haemophilia through adapted physical activity: a pilot study protocol
Improving functional capacity in haemophilia through adapted physical activity: a pilot study protocol Open
Haemophilia, a genetic disorder characterised by deficient clotting factors, often leads to musculoskeletal complications such as haemophilic arthropathy. These complications result in reduced functional capacity, muscle weakness and kines…
View article: Ultrasound assessment and scoring of tendinopathy in hemophilia: Development of the <scp>Tendon Haemophilic Damage ‐ Ultrasound (THD</scp>‐<scp>US)</scp> method
Ultrasound assessment and scoring of tendinopathy in hemophilia: Development of the <span>Tendon Haemophilic Damage ‐ Ultrasound (THD</span>‐<span>US)</span> method Open
This study aimed to develop and validate the tendinopathy hemophilia detection with ultrasonography (THD‐US) protocol for assessing hemophilia‐related tendinopathy. Twenty male patients with hemophilic arthropathy underwent ultrasound eval…
View article: Real‐world experience of rIX‐FP prophylaxis at dosing intervals of 14 days or more in adult patients with haemophilia B in Italy – Results from IDEAL Part B
Real‐world experience of rIX‐FP prophylaxis at dosing intervals of 14 days or more in adult patients with haemophilia B in Italy – Results from IDEAL Part B Open
Recombinant factor IX-albumin fusion protein (rIX-FP, Albutrepenonacog alfa) is an extended half-life factor IX (FIX) with approximately 5-fold longer half-life compared to standard half-life (SHL) FIX and provides excellent bleeding preve…
View article: Ultrasound Evaluation of Tendinopathy in Hemophiliac Patients for the Purpose of Rehabilitation Indications
Ultrasound Evaluation of Tendinopathy in Hemophiliac Patients for the Purpose of Rehabilitation Indications Open
Background: Hemophilia is a inherited bleeding disorder that is characterized by intra-articular bleeding (hemarthrosis). The aim of the study was to evaluate the state of the satellite tendons of the target joints in the patient with hemo…
View article: Promoting physical activity in people with haemophilia: the MEMO (Movement for persons with haEMOphilia) expert consensus project.
Promoting physical activity in people with haemophilia: the MEMO (Movement for persons with haEMOphilia) expert consensus project. Open
Regular physical activity can increase joint stability and function, reduce the risk of injury, and improve quality of life of people with haemophilia (PwH). However, a recent review of the literature shows that appropriate physical activi…
View article: The subjective experience of living with haemophilia in the transition from early adolescence to young adulthood: the effect of age and the therapeutic regimen
The subjective experience of living with haemophilia in the transition from early adolescence to young adulthood: the effect of age and the therapeutic regimen Open
The main aim of the research is to study how youths affected by haemophilia, a congenital hemorrhagic chronic disease, make sense of their condition, with particular reference to the transition from early adolescence to early adulthood. We…
View article: A Preliminary Qualitative Study on Women's Experiences of Bleeding Disorders in Italy
A Preliminary Qualitative Study on Women's Experiences of Bleeding Disorders in Italy Open
Introduction: Haemophilia continues to hold the image of a male disease, yet Bleeding Disorders affect women on multiple levels, as carers, genetic-carriers, and patients. In Italy there are no specific patient groups to address women’s is…
View article: Risk of inhibitors in previously untreated patients with hemophilia: a meta-analysis of literature studies
Risk of inhibitors in previously untreated patients with hemophilia: a meta-analysis of literature studies Open
To the editor:
We read with interest the articles published by Calvez et al and Collins et al[1][1],[2][2] reporting an increased inhibitor rate in previously untreated patients (PUPs) with severe hemophilia A receiving Kogenate FS compar…