Leslie E. Wolf
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View article: 295 Quantifying the impact of community engagement on enrollment and retention
295 Quantifying the impact of community engagement on enrollment and retention Open
Objectives/Goals: Substantial evidence supports the use of community engagement in CTS. Yet, there is a lack of empirical basis for recommending a particular level of community engagement over others. We aimed to identify associations betw…
View article: A taxing problem: The impacts of research payment practices on participants and inclusive research
A taxing problem: The impacts of research payment practices on participants and inclusive research Open
Empirical data regarding payments to participants in research is limited. This lack of information constrains our understanding of the effectiveness of payments to achieve scientific goals with respect to recruitment, retention, and inclus…
View article: Certificates of confidentiality: privileging research data
Certificates of confidentiality: privileging research data Open
With the Supreme Court’s decision in Dobbs, reproductive research now joins other sensitive research topics that present legal risks to research participants, underscoring the role of Certificates in protecting them. Yet, stakeholders ques…
View article: Imbalanced Incentives: A Content Analysis of research Participant Incentive Structures in Clinical and Translational Science
Imbalanced Incentives: A Content Analysis of research Participant Incentive Structures in Clinical and Translational Science Open
In conducting research with underserved and vulnerable populations, incentives for research participants can improve recruitment efforts. However, incentives lose influence if researchers treat them as merely transactional. This study seek…
View article: Toward equitable payment for inclusive participation
Toward equitable payment for inclusive participation Open
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View article: Engaging Diversity
Engaging Diversity Open
Photo by Kimberly Farmer on Unsplash ABSTRACT Recent events have caused the field of bioethics to reflect on its failure to tackle topics tied to structural racism and lack of diversity. We developed a model undergraduate bioethics course …
View article: Perspectives on choice of law challenges in multistate precision medicine research
Perspectives on choice of law challenges in multistate precision medicine research Open
Federal law establishes minimum standards for protecting human research participants, but many states have enacted laws that may apply to research. Precision medicine research in particular implicates state laws that govern an array of top…
View article: Addressing choice of law challenges in multi-state precision medicine research: experts’ assessment of key factors
Addressing choice of law challenges in multi-state precision medicine research: experts’ assessment of key factors Open
Precision medicine research implicates numerous state laws that may affect participants’ rights and protections and are not preempted by federal law. The choice of which state’s laws apply, and under what circumstances, can have significan…
View article: Ending the evidence gap for pregnancy, HIV and co‐infections: ethics guidance from the PHASES project
Ending the evidence gap for pregnancy, HIV and co‐infections: ethics guidance from the PHASES project Open
Introduction While pregnant people have been an important focus for HIV research, critical evidence gaps remain regarding prevention, co‐infection, and safety and efficacy of new antiretroviral therapies in pregnancy. Such gaps can result …
View article: On “Reflections on the Wisdom of Profession-Specific Diagnostic Labels.” Jette AM. <i>Phys Ther</i>. 2021; 101:pzab139. https://doi.org/10.1093/ptj/pzab139
On “Reflections on the Wisdom of Profession-Specific Diagnostic Labels.” Jette AM. <i>Phys Ther</i>. 2021; 101:pzab139. https://doi.org/10.1093/ptj/pzab139 Open
As members of the Academy of Neurologic Physical Therapy (ANPT) Movement System Task Force, we are writing to add our perspective to Sahrmann’s recent publication1 and Jette’s response2 regarding the need for physical therapists to develop…
View article: Movement System Diagnoses for Balance Dysfunction: Recommendations From the Academy of Neurologic Physical Therapy’s Movement System Task Force
Movement System Diagnoses for Balance Dysfunction: Recommendations From the Academy of Neurologic Physical Therapy’s Movement System Task Force Open
The movement system was identified as the focus of our expertise as physical therapists in the revised vision statement for the profession adopted by the American Physical Therapy Association in 2013. Attaining success with the profession’…
View article: Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice
Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice Open
The federal Certificate of Confidentiality plays an important role in research on sensitive topics by authorizing researchers to refuse to disclose identifiable research data in response to subpoenas in any legal setting. However, there is…
View article: Towards Prenatal Biomonitoring in North Carolina: Assessing Arsenic, Cadmium, Mercury, and Lead Levels in Pregnant Women
Towards Prenatal Biomonitoring in North Carolina: Assessing Arsenic, Cadmium, Mercury, and Lead Levels in Pregnant Women Open
Exposure to toxic metals during the prenatal period carries the potential for adverse developmental effects to the fetus, yet such exposure remains largely unmonitored in the United States. The aim of this study was to assess maternal expo…
View article: Protecting Participants in Genomic Research: Understanding the “Web of Protections” Afforded by Federal and State Law
Protecting Participants in Genomic Research: Understanding the “Web of Protections” Afforded by Federal and State Law Open
Researchers now commonly collect biospecimens for genomic analysis together with information from mobile devices and electronic health records. This rich combination of data creates new opportunities for understanding and addressing import…
View article: The Web of Legal Protections for Participants in Genomic Research
The Web of Legal Protections for Participants in Genomic Research Open
The identification and arrest of the Golden State Killer using DNA uploaded to an ancestry database occurred shortly before recruitment for the National Institutes of Health's (NIH) All of Us Study commenced, with its goal of enrolling and…
View article: The Web of Legal Protections for Participants in Genomic Research.
The Web of Legal Protections for Participants in Genomic Research. Open
The identification and arrest of the Golden State Killer using DNA uploaded to an ancestry database occurred shortly before recruitment for the National Institutes of Health's (NIH) All of Us Study commenced, with a goal of enrolling and c…
View article: New and Improved? 21<sup>st</sup> Century Cures Act Revisions to Certificates of Confidentiality
New and Improved? 21<sup>st</sup> Century Cures Act Revisions to Certificates of Confidentiality Open
Certificates of Confidentiality (“Certificates”) are a federal legal tool designed to protect sensitive, identifiable research data from compelled disclosure. Congress first authorized their use in 1970 to facilitate research on illegal dr…
View article: Risks and Legal Protections in the World of Big-Data.
Risks and Legal Protections in the World of Big-Data. Open
The development of large electronic data sets, whether from electronic health records, health registries, or large-scale gene-environment interaction studies, offer unparalleled, innovated opportunities to learn more about human health and…
View article: A concentrated certificate program incorporating Experiential Education: helping students prepare for a career in the dynamic area of Health Law
A concentrated certificate program incorporating Experiential Education: helping students prepare for a career in the dynamic area of Health Law Open
Law students who wish to practice in the area of health law must acquire knowledge, skills, and values that are necessary for them to have an understanding of the legal issues that challenge lawyers and that prepare them for life-long lear…
View article: Measuring the Impact of Social Justice Teaching: Research Design and Oversight
Measuring the Impact of Social Justice Teaching: Research Design and Oversight Open
Research and the production of scholarship is a fundamental part of being a legal academic. Such endeavors identify issues and answer questions that further understanding of the law, the profession, and the justice system itself. Research …
View article: Measuring the Impact of Social Justice Teaching: Research Design and Oversight
Measuring the Impact of Social Justice Teaching: Research Design and Oversight Open
Research and the production of scholarship is a fundamental part of being a legal academic. Such endeavors identify issues and answer questions that further understanding of the law, the profession, and the justice system itself. Research …