Liesbet Van Bulck
YOU?
Author Swipe
View article: Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries
Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries Open
This study highlights significant global differences in perceived autonomy support from healthcare providers among adults with CHD. Education and age were associated with higher levels of perceived autonomy support. The experience of PCC i…
View article: The COCOS-IPF Core Outcome Set for IPF/PPF Care: A Mixed-Method Multi-Perspective Approach
The COCOS-IPF Core Outcome Set for IPF/PPF Care: A Mixed-Method Multi-Perspective Approach Open
Background It is unclear which outcomes are essential for the care of individuals with idiopathic pulmonary fibrosis or progressive pulmonary fibrosis (IPF/PPF). We aimed to develop a core outcome set (COS) together with patients with IPF/…
View article: Quality of Life in Adults With Transposition of the Great Arteries With a Systemic Right or Left Ventricle
Quality of Life in Adults With Transposition of the Great Arteries With a Systemic Right or Left Ventricle Open
NCT04902768.
View article: Frailty and Cognitive Function After the Age of 40 in Adults With Moderate or Severe Congenital Heart Disease
Frailty and Cognitive Function After the Age of 40 in Adults With Moderate or Severe Congenital Heart Disease Open
View article: Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries
Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries Open
Background The global prevalence of congenital heart disease (CHD) is increasing. Research on patient-reported outcomes (PROs) predominantly originates from high-income countries, resulting in an incomplete understanding of the true global…
View article: Fatigue in adults with congenital heart disease aged over 40 years
Fatigue in adults with congenital heart disease aged over 40 years Open
View article: Person-centred health outcomes in the routine care for people with progressive pulmonary fibrosis: the COCOS-IPF project’s European survey on healthcare professionals’ views and practices
Person-centred health outcomes in the routine care for people with progressive pulmonary fibrosis: the COCOS-IPF project’s European survey on healthcare professionals’ views and practices Open
HCPs have identified 40 different outcomes domains in a European multidisciplinary survey on person-centred health outcomes in IPF/PPF. Lung function, exercise capacity, quality of life and chest symptoms were rated as the most relevant he…
View article: Identifying outcome domains to establish a core outcome set for progressive pulmonary fibrosis: a scoping review
Identifying outcome domains to establish a core outcome set for progressive pulmonary fibrosis: a scoping review Open
Introduction People with idiopathic pulmonary fibrosis (IPF) and other forms of progressive pulmonary fibrosis (PPF) have a high symptom burden and a poor health-related quality of life (HRQoL). Despite efforts to offer specialised treatme…
View article: Associations between atrial fibrillation symptom clusters and major adverse cardiovascular events following catheter ablation
Associations between atrial fibrillation symptom clusters and major adverse cardiovascular events following catheter ablation Open
View article: Exploring the full potential of the electronic health record: the application of natural language processing for clinical practice
Exploring the full potential of the electronic health record: the application of natural language processing for clinical practice Open
The electronic health record (EHR) contains valuable patient data and offers opportunities to administer and analyse patients’ individual needs longitudinally. However, most information in the EHR is currently stored in unstructured text n…
View article: Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease
Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease Open
View article: How to get the most out of ChatGPT? Tips and tricks on prompting
How to get the most out of ChatGPT? Tips and tricks on prompting Open
View article: The Temperature Feature of ChatGPT: Modifying Creativity for Clinical Research
The Temperature Feature of ChatGPT: Modifying Creativity for Clinical Research Open
More clinicians and researchers are exploring uses for large language model chatbots, such as ChatGPT, for research, dissemination, and educational purposes. Therefore, it becomes increasingly relevant to consider the full potential of thi…
View article: Frailty phenotype and cognitive functioning in middle-aged and older adults with congenital heart disease: results of an international multicentric study
Frailty phenotype and cognitive functioning in middle-aged and older adults with congenital heart disease: results of an international multicentric study Open
Background The life expectancy of patients with congenital heart disease (CHD) has increased rapidly, resulting in a growing and aging population. Recent studies showed that older CHD patients have a higher morbidity, healthcare utilizatio…
View article: Palliative care for cardiovascular patients: description of motives for referral and actual care provided
Palliative care for cardiovascular patients: description of motives for referral and actual care provided Open
Background Palliative care (PC) for cardiovascular patients remains suboptimal, whereby only a small proportion of patients are referred to specialist palliative care, and often too late in the disease course. We investigated the reasons t…
View article: The Temperature Feature of ChatGPT: Modifying Creativity for Clinical Research (Preprint)
The Temperature Feature of ChatGPT: Modifying Creativity for Clinical Research (Preprint) Open
UNSTRUCTURED More clinicians and researchers are exploring uses for large language model chatbots, such as ChatGPT, for research, dissemination, and educational purposes. Therefore, it becomes increasingly relevant to consider the full po…
View article: Using ChatGPT and Google Bard to improve the readability of written patient information: a proof of concept
Using ChatGPT and Google Bard to improve the readability of written patient information: a proof of concept Open
Patient information materials often tend to be written at a reading level that is too advanced for patients. In this proof-of-concept study, we used ChatGPT and Google Bard to reduce the reading level of three selected patient information …
View article: Letters to the editor: questionable publishing practices in the ChatGPT era
Letters to the editor: questionable publishing practices in the ChatGPT era Open
View article: Unraveling Anxiety in Adults With Congenital Heart Disease
Unraveling Anxiety in Adults With Congenital Heart Disease Open
View article: What if your patient switches from Dr. Google to Dr. ChatGPT? A vignette-based survey of the trustworthiness, value, and danger of ChatGPT-generated responses to health questions
What if your patient switches from Dr. Google to Dr. ChatGPT? A vignette-based survey of the trustworthiness, value, and danger of ChatGPT-generated responses to health questions Open
ChatGPT is a new artificial intelligence system that revolutionizes the way how information can be sought and obtained. In this study, the trustworthiness, value, and danger of ChatGPT-generated responses on four vignettes that represented…
View article: Mental health in adult congenital heart disease
Mental health in adult congenital heart disease Open
Mental health issues are common in individuals with congenital heart disease (CHD), stemming from various factors such as traumatic experiences, existential questions, and genetic predisposition. This article provides an overview of the li…
View article: ChatGPT: can artificial intelligence language models be of value for cardiovascular nurses and allied health professionals
ChatGPT: can artificial intelligence language models be of value for cardiovascular nurses and allied health professionals Open
View article: Applications of artificial intelligence for nursing: has a new era arrived?
Applications of artificial intelligence for nursing: has a new era arrived? Open
View article: Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South Korea
Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South Korea Open
View article: Referrals to Palliative Care for Cardiovascular Patients: A 10-Year Longitudinal Retrospective Study
Referrals to Palliative Care for Cardiovascular Patients: A 10-Year Longitudinal Retrospective Study Open
BackgroundAlthough the majority of patients with cardiovascular diseases (CVD) have a significant symptom burden and progressive course towards the end of life, only a small proportion of patients currently receive palliative care.The curr…
View article: Referrals to palliative care for cardiovascular patients: a 10-year longitudinal retrospective study
Referrals to palliative care for cardiovascular patients: a 10-year longitudinal retrospective study Open
Background Patients with cardiovascular diseases have a significant symptom burden and often have a progressive course towards end-stage disease and ultimately, death. For this reason, consensus guidelines advocate early integration of pal…
View article: End-of-life and palliative care provision to adults with congenital heart disease: mortality follow-back study using administrative data
End-of-life and palliative care provision to adults with congenital heart disease: mortality follow-back study using administrative data Open
Background Although many adults with congenital heart disease (CHD) still die prematurely, end-of-life care for these patients receives limited attention. There are indications that current care provision at the end of life is burdensome, …
View article: Last year of life of adults with congenital heart diseases: causes of death and patterns of care
Last year of life of adults with congenital heart diseases: causes of death and patterns of care Open
Aims Although life expectancy in adults with congenital heart diseases (CHD) has increased dramatically over the past five decades, still a substantial number of patients dies prematurely. To gain understanding in the trajectories of dying…
View article: Healthcare use at the end of life of patients with congenital heart disease: does heart failure matter?
Healthcare use at the end of life of patients with congenital heart disease: does heart failure matter? Open
Funding Acknowledgements Type of funding sources: Foundation. Main funding source(s): Research Foundation Flanders (to PM, EG, and LVB) European Society of Cardiology (Nursing Training Grant to LVB) Background Heart failure (HF) is a commo…
View article: Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease
Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease Open