Lis Cordingley
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View article: The interplay between pain and disease activity: personal models of pain beliefs and emotional representations in children and young people with juvenile idiopathic arthritis in a UK nationwide prospective inception cohort
The interplay between pain and disease activity: personal models of pain beliefs and emotional representations in children and young people with juvenile idiopathic arthritis in a UK nationwide prospective inception cohort Open
Objectives Juvenile idiopathic arthritis (JIA) is a group of childhood-onset inflammatory rheumatic conditions characterized by pain as one of the most common and distressing symptoms. This cross-sectional study aimed to investigate whethe…
View article: Personalized interventions for behaviour change: A scoping review of just‐in‐time adaptive interventions
Personalized interventions for behaviour change: A scoping review of just‐in‐time adaptive interventions Open
Purpose Examine the development, implementation and evaluation of just‐in‐time adaptive interventions (JITAIs) in behaviour change and evaluate the quality of intervention reporting. Methods A scoping review of JITAIs incorporating mobile …
View article: Beliefs About Pain in Pediatric Inflammatory and Noninflammatory Chronic Musculoskeletal Conditions: A Scoping Review
Beliefs About Pain in Pediatric Inflammatory and Noninflammatory Chronic Musculoskeletal Conditions: A Scoping Review Open
Objective The Common Sense Self-Regulatory Model posits that beliefs about pain influence coping behaviors and subsequent physical and mental health outcomes in children/young people with chronic musculoskeletal conditions. It was unclear …
View article: “My gut feeling is…”: An Ethnographic Study Exploring Interprofessional Communication About Children and Adolescents With Chronic Musculoskeletal Pain in Paediatric Rheumatology
“My gut feeling is…”: An Ethnographic Study Exploring Interprofessional Communication About Children and Adolescents With Chronic Musculoskeletal Pain in Paediatric Rheumatology Open
Interprofessional communication about inflammatory and non-inflammatory musculoskeletal conditions is an important component of assessment and management in paediatric rheumatology. Chronic pain is a feature of some of these conditions whi…
View article: ‘That's what makes me better’: Investigating children and adolescents' experiences of pain communication with healthcare professionals in paediatric rheumatology
‘That's what makes me better’: Investigating children and adolescents' experiences of pain communication with healthcare professionals in paediatric rheumatology Open
Background Pain communication should be an integral part of clinical consultations, particularly in paediatric rheumatology where children and adolescents frequently present with chronic musculoskeletal pain. To date, literature exploring …
View article: Is time a healer? How quality of life changes over time reported by parents of children and young people with juvenile idiopathic arthritis
Is time a healer? How quality of life changes over time reported by parents of children and young people with juvenile idiopathic arthritis Open
Objective To investigate changes in health-related quality of life (HRQoL) in children and young people with JIA (Juvenile Idiopathic Arthritis) over 3 years following diagnosis. Methods Data on children and young people recruited to the C…
View article: A rapid access clinic for psoriasis: first experiences
A rapid access clinic for psoriasis: first experiences Open
Dear Editor, Psoriasis is a complex, immune-mediated inflammatory disease associated with several important medical conditions including arthritis, cardiometabolic disease and mood disorders. The mean age of onset of psoriasis is 33 years,…
View article: Identifying and managing psoriasis-associated comorbidities: the IMPACT research programme
Identifying and managing psoriasis-associated comorbidities: the IMPACT research programme Open
Background Psoriasis is a common, lifelong inflammatory skin disease, the severity of which can range from limited disease involving a small body surface area to extensive skin involvement. It is associated with high levels of physical and…
View article: <i>“I just want to be normal”</i>: A qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent‐adolescent personal models
<i>“I just want to be normal”</i>: A qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent‐adolescent personal models Open
The aim of the current study was to examine adolescents' goals when coping with pain and map these goals to the cognitive and emotional profiles of both adolescent and their parent. 17 adolescents (11‐16 years) and their parents participat…
View article: Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study
Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study Open
Background Sleep disturbances and poor health-related quality of life (HRQoL) are common in people with rheumatoid arthritis (RA). Sleep disturbances, such as less total sleep time, more waking periods after sleep onset, and higher levels …
View article: Data protection, information governance and the potential erosion of ethnographic methods in health care?
Data protection, information governance and the potential erosion of ethnographic methods in health care? Open
With the most recent developments to the European General Data Protection Regulations (GDPR) introduced in May 2018, the resulting legislation meant a new set of considerations for study approvers and health‐care researchers. Compared with…
View article: Identifying the content and context of pain within paediatric rheumatology healthcare professional curricula in the UK: a summative content analysis
Identifying the content and context of pain within paediatric rheumatology healthcare professional curricula in the UK: a summative content analysis Open
View article: Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study (Preprint)
Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study (Preprint) Open
BACKGROUND Sleep disturbances and poor health-related quality of life (HRQoL) are common in people with rheumatoid arthritis (RA). Sleep disturbances, such as less total sleep time, more waking periods after sleep onset, and higher levels…
View article: Physical activity is important for cardiovascular health and cardiorespiratory fitness in patients with psoriasis
Physical activity is important for cardiovascular health and cardiorespiratory fitness in patients with psoriasis Open
Our study describes a significant relationship between exercise, cardiorespiratory fitness and PWV, a preclinical indicator of future CVD risk, in patients with psoriasis. The DRA offers a noninvasive, objective measurement of exercise adh…
View article: Alcohol misuse is associated with poor response to systemic therapies for psoriasis: findings from a prospective multicentre cohort study*
Alcohol misuse is associated with poor response to systemic therapies for psoriasis: findings from a prospective multicentre cohort study* Open
The poor response to therapy associated with alcohol misuse and obesity found in people with psoriasis calls for lifestyle behaviour change interventions and support as part of routine clinical care. Targeting interventions to prevent, det…
View article: POS1490-HPR “WHERE DOES IT HURT?”: IDENTIFYING PAIN CONTENT AND ITS CONTEXT WITHIN PAEDIATRIC AND ADOLESCENT RHEUMATOLOGY TRAINING
POS1490-HPR “WHERE DOES IT HURT?”: IDENTIFYING PAIN CONTENT AND ITS CONTEXT WITHIN PAEDIATRIC AND ADOLESCENT RHEUMATOLOGY TRAINING Open
View article: Implementation of the PsoWell™ Model for the Management of People with Complex Psoriasis
Implementation of the PsoWell™ Model for the Management of People with Complex Psoriasis Open
The Psoriasis and Well-being (PsoWell)™ training programme, incorporating motivational interviewing, improves clinicians' knowledge and skills to manage complex psoriasis, including behaviour change. The aims of this study were to deliver …
View article: Changes in the illness perceptions of patients with rheumatoid arthritis over the first year of methotrexate therapy
Changes in the illness perceptions of patients with rheumatoid arthritis over the first year of methotrexate therapy Open
Objectives To describe the illness perceptions of patients with RA over the first year of MTX treatment, and the association between illness perceptions and outcomes. Methods Data came from the Rheumatoid Arthritis Medication Study (RAMS),…
View article: SAT0038 CHANGES IN ILLNESS PERCEPTIONS IN PEOPLE WITH RHEUMATOID ARTHRITIS OVER THE FIRST YEAR OF TREATMENT WITH METHOTREXATE
SAT0038 CHANGES IN ILLNESS PERCEPTIONS IN PEOPLE WITH RHEUMATOID ARTHRITIS OVER THE FIRST YEAR OF TREATMENT WITH METHOTREXATE Open
View article: A review of studies looking at quality of life and psychological impact in people with photodermatoses – skin diseases triggered by sunlight
A review of studies looking at quality of life and psychological impact in people with photodermatoses – skin diseases triggered by sunlight Open
Photodermatoses, or photosensitivity conditions, are a group of skin disorders caused by exposure to sunlight, overall affecting a large number of people. They cause a range of distressing symptoms including pain and burn, and can make the…
View article: 分析光照性皮肤病(阳光诱发的皮肤病)患者生活质量和心理影响的研究的回顾
分析光照性皮肤病(阳光诱发的皮肤病)患者生活质量和心理影响的研究的回顾 Open
光照性皮肤病或光敏感性疾病是一组由日晒引起的皮肤疾病,总体影响大量人群。它们会引起一系列令人痛苦的症状(包括疼痛和烧灼),并可使皮肤出现水疱、鳞片和瘢痕。病情本身以及患者逃避阳光和保护自己避免日晒的需求可能会影响生活质量和心理健康。 这项来自英国的研究旨在了解使用哪种评估方法(工具)来评估光照性皮肤病患者的生活质量和心理健康,并报告对患者的影响。 作者回顾了相关的已发表英语类研究并总结了他们的发现。包括 20 项研究:19 项评估生活质量,3 项评估心理功能。使用 6 种不…
View article: ‘We’re the First Port of Call’ – Perspectives of Ambulance Staff on Responding to Deaths by Suicide: A Qualitative Study
‘We’re the First Port of Call’ – Perspectives of Ambulance Staff on Responding to Deaths by Suicide: A Qualitative Study Open
The study is the first to reveal the complex challenges faced by ambulance staff in responding to suicide without adequate training and support. It demonstrates the potential impact that responding to suicide can have personally and profes…
View article: Exploring what constitutes effective continued healthcare professional training: A qualitative study and the development of a training intervention component taxonomy.
Exploring what constitutes effective continued healthcare professional training: A qualitative study and the development of a training intervention component taxonomy. Open
Background Continued healthcare professional training can lead to improvements in patient care if delivered effectively but there is a lack of research exploring the key factors that underpin successful training. The aims of this research …
View article: P139 What impact does JIA have on health-related quality of life over time and by gender?
P139 What impact does JIA have on health-related quality of life over time and by gender? Open
Background Juvenile idiopathic arthritis (JIA) is a heterogeneous group of arthritic conditions presenting in children and young people, in which physical limitations and associated complications can have detrimental effects on physical an…
View article: What are the barriers to physical activity in patients with chronic plaque psoriasis?*
What are the barriers to physical activity in patients with chronic plaque psoriasis?* Open
Psoriasis-specific factors - severity, skin sensitivity, clothing choice, participation in social/leisure activities, and treatments - contribute to exercise avoidance and may augment the increased risk of cardiovascular disease in patient…
View article: Experiences of support from primary care and perceived needs of parents bereaved by suicide: a qualitative study
Experiences of support from primary care and perceived needs of parents bereaved by suicide: a qualitative study Open
Background People bereaved by suicide are a vulnerable group, also at risk of dying by suicide. The importance of postvention support (intervention after suicide) has recently been highlighted; however, little is known about the support ne…
View article: Evaluation of the Impact of the PABBS Suicide Bereavement Training on Clinicians' Knowledge and Skills
Evaluation of the Impact of the PABBS Suicide Bereavement Training on Clinicians' Knowledge and Skills Open
Background: Health-care professionals do not routinely receive training on how best to support parents bereaved by suicide. Evidence-based training – Postvention Assisting Those Bereaved by Suicide (PABBS) – was designed to address this ga…
View article: “Asking Too Much?”: Randomized N-of-1 Trial Exploring Patient Preferences and Measurement Reactivity to Frequent Use of Remote Multidimensional Pain Assessments in Children and Young People With Juvenile Idiopathic Arthritis
“Asking Too Much?”: Randomized N-of-1 Trial Exploring Patient Preferences and Measurement Reactivity to Frequent Use of Remote Multidimensional Pain Assessments in Children and Young People With Juvenile Idiopathic Arthritis Open
Background Remote monitoring of pain using multidimensional mobile health (mHealth) assessment tools is increasingly being adopted in research and care. This assessment method is valuable because it is challenging to capture pain histories…
View article: P08 Beliefs about pain in juvenile idiopathic arthritis are significantly associated with higher reported pain and more negative affect in children and young people
P08 Beliefs about pain in juvenile idiopathic arthritis are significantly associated with higher reported pain and more negative affect in children and young people Open
Background Persistent, unpredictable pain is one of the most burdensome features of juvenile idiopathic arthritis (JIA) which is a relapsing-remitting inflammatory musculoskeletal condition presenting in children and young people under 16 …
View article: “Seeing Pain Differently”: A Qualitative Investigation Into the Differences and Similarities of Pain and Rheumatology Specialists’ Interpretation of Multidimensional Mobile Health Pain Data From Children and Young People With Juvenile Idiopathic Arthritis
“Seeing Pain Differently”: A Qualitative Investigation Into the Differences and Similarities of Pain and Rheumatology Specialists’ Interpretation of Multidimensional Mobile Health Pain Data From Children and Young People With Juvenile Idiopathic Arthritis Open
Pain interpretation is complex. Findings from this study of specialists' decision-making processes indicate which aspects of pain are prioritized and weighted more heavily than others by those interpreting mHealth data. Findings are useful…