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View article: Bureaucratic violence: Professionals’ views of the financial experiences of terminally ill migrants
Bureaucratic violence: Professionals’ views of the financial experiences of terminally ill migrants Open
Background: Having a terminal illness is associated with an increased risk of living in poverty and destitution at end of life. This is more pronounced for migrants who may not have the same social and cultural capital, or local family sup…
View article: The representation of migrants in policy and parliament: A Bacchian analysis of the UK's immigration health surcharge
The representation of migrants in policy and parliament: A Bacchian analysis of the UK's immigration health surcharge Open
Despite the promise of the NHS being open to all, charging regulations and policy for non-UK citizens have been introduced. This article reports an analysis of policies and parliamentary debates linked to the UK's Immigration Health Surcha…
View article: First generation migrants’ experiences of terminal illness: a systematic review of diasporic dying
First generation migrants’ experiences of terminal illness: a systematic review of diasporic dying Open
Background Migration is an established global phenomenon. While many newly arrived migrants have better health than the general population of the country they have moved to, migrants also have their own healthcare needs and face particular…
View article: Using Palliative Care Needs Rounds in the UK for care home staff and residents: an implementation science study
Using Palliative Care Needs Rounds in the UK for care home staff and residents: an implementation science study Open
Background Care home residents often lack access to end-of-life care from specialist palliative care providers. Palliative Care Needs Rounds, developed and tested in Australia, is a novel approach to addressing this. Objective To co-design…
View article: Understanding how children and young people with chronic non-cancer pain and their families experience living with pain, pain management and services: a meta-ethnography
Understanding how children and young people with chronic non-cancer pain and their families experience living with pain, pain management and services: a meta-ethnography Open
Background Childhood chronic pain is a widespread public health issue. We need to understand how children with chronic pain and their families experience chronic pain and its management. Objectives To conduct a meta-ethnography on the expe…
View article: Efficacy of systemic therapy on adults with depressive disorders: A meta-analysis
Efficacy of systemic therapy on adults with depressive disorders: A meta-analysis Open
This meta-analysis indicates the potential benefits of systemic interventions for adult patients with depression. Future randomized clinical trials in this area should enhance study quality and include relational and other relevant outcome…
View article: Negotiating pace, focus and identities: Patient/public involvement/engagement in a palliative care study
Negotiating pace, focus and identities: Patient/public involvement/engagement in a palliative care study Open
Patient and public involvement and engagement (PPIE) is an increasingly important component of research conduct to enhance processes and potential for impact, yet is rarely critically interrogated. This paper draws on Foucauldian analysis …
View article: <i>“More support, less distress?</i> ”: Examining the role of social norms in alleviating practitioners’ psychological distress in the context of assisted dying services
<i>“More support, less distress?</i> ”: Examining the role of social norms in alleviating practitioners’ psychological distress in the context of assisted dying services Open
This study explores how providing assisted dying services affects the psychological distress of practitioners. It investigates the influence of professional norms that endorse such services within their field. Study 1 included veterinarian…
View article: A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments Open
We had high or moderate confidence in the evidence contributing to most review findings. Further research, especially into families' experiences of treatments and services, could strengthen the evidence for low or very low confidence findi…
View article: Features that hindered the capacity development of a national prostate cancer service
Features that hindered the capacity development of a national prostate cancer service Open
Introduction In Scotland, prostate cancer services have struggled to meet demand, and urological cancer services have missed Scottish Government waiting time targets to a greater extent than other cancer services. This study provides under…
View article: Multiple Myeloma in People of Working Age: A Systematic Review and Evidence Synthesis of Experiences of Paid and Unpaid Work
Multiple Myeloma in People of Working Age: A Systematic Review and Evidence Synthesis of Experiences of Paid and Unpaid Work Open
Introduction. This review sought to synthesise the qualitative evidence pertaining to the experiences of myeloma patients and relatives of work, given the distinct symptom burden and illness trajectory. Methods and Designs. CINAHL, Medline…
View article: Using Latent Profile Analysis to Understand Health Practitioners’ Attitudes Toward Voluntary Assisted Dying
Using Latent Profile Analysis to Understand Health Practitioners’ Attitudes Toward Voluntary Assisted Dying Open
Prior work has documented considerable diversity among health practitioners regarding their support for voluntary assisted dying (VAD). We examined whether their attitudes are characterised by different combinations of personal support, no…
View article: Supporting care home residents in the last year of life through ‘Needs Rounds’: Development of a pre-implementation programme theory through a rapid collaborative online approach
Supporting care home residents in the last year of life through ‘Needs Rounds’: Development of a pre-implementation programme theory through a rapid collaborative online approach Open
Background Realist evaluation aims to address the knowledge to practice gap by explaining how an intervention is expected to work, as well as what is likely to impact upon the success of its implementation, by developing programme theories…
View article: Attitudes Toward and Experience With Assisted-Death Services and Psychological Implications for Health Practitioners: A Narrative Systematic Review
Attitudes Toward and Experience With Assisted-Death Services and Psychological Implications for Health Practitioners: A Narrative Systematic Review Open
A narrative systematic review was conducted to review studies that examine mental health implications of involvement in assisted-death services among health practitioners. Qualitative and quantitative studies were included to understand he…
View article: 522 A meta-ethnography of how children and young people with chronic pain and their families experience and perceive pain services and treatments and living with pain
522 A meta-ethnography of how children and young people with chronic pain and their families experience and perceive pain services and treatments and living with pain Open
Aims To investigate how children and young people (CYP) with chronic pain and their families perceive and experience pain-related treatments and services and living with pain. Methods A meta-ethnography was conducted with involvement of CY…
View article: A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments Open
This is a protocol for a Cochrane Review (qualitative). The objectives are as follows: 1. To synthesise qualitative studies that examine the experiences and perceptions of children with chronic pain and their families regarding chronic pai…
View article: Transforming training into practice with the conflict management framework: a mixed methods study
Transforming training into practice with the conflict management framework: a mixed methods study Open
Objective To implement and evaluate the use of the conflict management framework (CMF) in four tertiary UK paediatric services. Design Mixed methods multisite evaluation including prospective pre and post intervention collection of conflic…
View article: Issue Information
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promoting social justice, developing and exchanging new theory, research, applied practice, and policy related to diverse families and systems.
View article: Palliative and end-of-life care in care homes: protocol for codesigning and implementing an appropriate scalable model of Needs Rounds in the UK
Palliative and end-of-life care in care homes: protocol for codesigning and implementing an appropriate scalable model of Needs Rounds in the UK Open
Introduction Palliative and end-of-life care in care homes is often inadequate, despite high morbidity and mortality. Residents can experience uncontrolled symptoms, poor quality deaths and avoidable hospitalisations. Care home staff can f…
View article: Reducing time in acute hospitals: A stepped-wedge randomised control trial of a specialist palliative care intervention in residential care homes
Reducing time in acute hospitals: A stepped-wedge randomised control trial of a specialist palliative care intervention in residential care homes Open
Background: Care home residents are frequently transferred to hospital, rather than provided with appropriate and timely specialist care in the care home. Aim: To determine whether a model of care providing specialist palliative care in ca…
View article: Palliative care Needs Rounds in rural residential aged care: A mixed-methods study exploring experiences and perceptions of staff and general practitioners
Palliative care Needs Rounds in rural residential aged care: A mixed-methods study exploring experiences and perceptions of staff and general practitioners Open
New approaches are needed to assist residential aged care (RAC) staff increase their skills and confidence in
\nidentifying when residents are nearing the dying phase and managing symptoms. One new evidence-based
\napproach to improve pall…
View article: Correction: Death of a close friend: Short and long-term impacts on physical, psychological and social well-being
Correction: Death of a close friend: Short and long-term impacts on physical, psychological and social well-being Open
[This corrects the article DOI: 10.1371/journal.pone.0214838.].
View article: When a friend dies the impact can be as traumatic as losing a family member
When a friend dies the impact can be as traumatic as losing a family member Open
First paragraph: The death of a friend is a loss that most people face at some point in their lives – often many times. But it is a grief that may not be taken seriously by employers, doctors or others. The so-called hierarchy of grief, a …
View article: Death of a close friend: Short and long-term impacts on physical, psychological and social well-being
Death of a close friend: Short and long-term impacts on physical, psychological and social well-being Open
This paper reports the impact of a major life event-death-on the physical, psychological and social well-being of the deceased's close friends. We utilised data from a large longitudinal survey covering a period of 14 years (2002-2015) con…
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The Australian and New Zealand Journal of Family Therapy publishes relevant, innovative and original articles on the theory, research, teaching and practice of family therapy
View article: Specialist palliative care in nursing homes: Integrating care to improve quality of life and reduce costs
Specialist palliative care in nursing homes: Integrating care to improve quality of life and reduce costs Open
The Australian government’s National Palliative Care Strategy sets a vision for palliative care which: • improves awareness and understanding • is appropriate and effective • has high quality leadership and governance • builds capacity and…
View article: Specialist palliative care in care homes: Integrating care could improve quality of life and reduce costs (Pilot study)
Specialist palliative care in care homes: Integrating care could improve quality of life and reduce costs (Pilot study) Open
The Scottish Government’s Strategic Framework for Action on Palliative and End of Life Care sets out a vision of universal access to palliative care by 2021. This includes individuals, families and carers having timely and focused conversa…