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The Hidradenitis Suppurativa Symptom and Impact Diary: Development and psychometric evaluation of a novel set of patient-reported outcomes for hidradenitis suppurativa Open

John R Ingram, Magdalena B. Wozniak, Anna Passera, Lorenz Uhlmann, Angela Llobet Martinez , et al. · 2025

Background Hidradenitis suppurativa (HS) is associated with a substantial disease burden. Given the complex nature of HS-related symptoms, patient-reported outcome (PRO) measures are important to ensure that the patient experience is captu…

Measuring What Matters Most to People Living with Alzheimer’s Disease and Care Partners: What Matters Most Quantitative Research Development Open

Carla DeMuro, Emily Bratlee‐Whitaker, Ann Hartry, Elizabeth S. Mearns, Jim Taylor , et al. · 2024

Background Previous What Matters Most (WMM) research identified and verified patient‐important concepts among a diverse population of people living with Alzheimer’s disease (PLWAD) and their care partners across all stages of Alzheimer’s d…

Validation and Application of Thresholds to Define Meaningful Change in Vasomotor Symptoms Frequency: Analysis of Pooled SKYLIGHT 1 and 2 Data Open

Antonia Morga, Lisa Zimmermann, Udaya Valluri, Emad Siddiqui, Lori McLeod , et al. · 2024

Measuring “What Matters Most™” to individuals living with Alzheimer’s disease and care partners: A conceptual model of Alzheimer’s Disease Open

Carla DeMuro, Christina Slota, Emily Bratlee‐Whitaker, Teresa Edwards, William L. Herring , et al. · 2023

Background The Alzheimer’s Disease Patient and Caregiver Engagement™ Initiative‘s What Matters Most™ (WMM) Research Program includes seminal studies to identify and measure treatment‐related needs, preferences, and priorities of people liv…

Defining clinically meaningful improvement in molluscum contagiosum Open

Tomoko Maeda‐Chubachi, Lori McLeod, Carolyn Enloe, Martina Cartwright, Elaine C. Siegfried , et al. · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

Comparability Among Modes of Data Collection for Patient-Reported Outcome Measures: Opening the Gates for Faithful Migration Open

Lori McLeod, Nicholas Rockwood · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

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Michael Drummond, Daniel Mullins, Jagpreet Chhatwal, Oriana Ciani, Dalia Dawoud , et al. · 2023

Establishing Clinically Meaningful Change on Outcome Assessments Frequently Used in Trials of Mild Cognitive Impairment Due to Alzheimer's Disease Open

C.J. Lansdall, Fiona McDougall, Lesley M. Butler, Paul Delmar, Nathalie Pross , et al. · 2022

These thresholds may be useful to aid the interpretation of Alzheimer's disease clinical trial data by illustrating meaningful within-patient progression over the course of a clinical trial via supplementary progressor analyses, which may …

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Michael Drummond, Daniel Mullins, Sarah Acaster, Msc Acaster, Jagpreet Chhatwal , et al. · 2022

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Michael Drummond, Daniel Mullins, Sarah Acaster, Msc Acaster, Jagpreet Chhatwal , et al. · 2022

Editorial Board Open

Michael Drummond, Daniel Mullins, Sarah Acaster, Msc Acaster, Jagpreet Chhatwal , et al. · 2022

Assessment of craving in opioid use disorder: Psychometric evaluation and predictive validity of the opioid craving VAS Open

Brent Boyett, Katharina Wiest, Lori McLeod, Lauren Nelson, Warren K. Bickel , et al. · 2021

This psychometric evaluation of the OC-VAS performed on a large OUD patient population provides evidence to support its use to measure the severity of opioid craving and its ability to predict opioid use.

Psychometric validation of the Hypoparathyroidism Patient Experience Scales (HPES) Open

Meryl Brod, Lori McLeod, Denka Markova, Jill Gianettoni, Sanchita Mourya , et al. · 2021

Comparison of Anchor- and Distribution-Based Methods for Estimating Thresholds of Meaningful Within-Patient Change Using Simulated PROMIS PF 20a Data Under Various Joint Distribution Characteristic Conditions Open

Shanshan Qin, Lauren Nelson, Nicole Williams, Valerie Williams, Randall H. Bender , et al. · 2021

PurposeTo compare the performance of anchor-based and distribution-based methods for estimating thresholds of meaningful within-patient change of clinical outcome assessments in conditions reflecting data characteristics of small- to mediu…

Psychometric evaluation of the DAILY EATS questionnaire in individuals living with obesity Open

John Fastenau, Heather Rozjabek, Shanshan Qin, Lori McLeod, Lauren Nelson , et al. · 2020

Background Physiological and behavioral factors including hunger, satiety, food intake, and cravings are health determinants contributing to obesity. Patient-reported outcome (PRO) measures focused on eating-related factors provide insight…

Prevalence of Airway Obstruction Assessed by Lung Function Questionnaire Open

Matthew L. Mintz, Barbara P. Yawn, David M. Mannino, James F. Donohue, Nicola A. Hanania , et al. · 2020

OBJECTIVE: To estimate the prevalence of unidentified chronic obstructive pulmonary disease (COPD) and determine the screening accuracy of the Lung Function Questionnaire (LFQ).

Evaluation of the Feasibility of a Web-Based Survey to Assess Patient-Reported Symptom Improvement and Treatment Satisfaction Among Patients with Psoriatic Arthritis Receiving Secukinumab Open

Marina Magrey, Michael Bozyczko, Daniel Wolin, Margaret Mordin, Lori McLeod , et al. · 2019

State of the psychometric methods: patient-reported outcome measure development and refinement using item response theory Open

Angela M. Stover, Lori McLeod, Michelle M. Langer, Wen-Hung Chen, Bryce B. Reeve · 2019

Pilot Evaluation of Aggregate Plate Waste as a Measure of Students’ School Lunch Consumption (OR13-08-19) Open

Leah Elizabeth Chapman, Scott Richardson, Lori McLeod, Eric B. Rimm, Juliana F.W. Cohen · 2019

A Pilot Study to Assess the Feasibility of a Web-Based Survey to Examine Patient-Reported Symptoms and Satisfaction in Patients with Ankylosing Spondylitis Receiving Secukinumab Open

Marina Magrey, Michael Bozyczko, Daniel Wolin, Margaret Mordin, Lori McLeod , et al. · 2019

PRO52 DEVELOPMENT AND VALIDATION OF THE IG PATIENT EXPERIENCE WITH TREATMENT (IGPET), A NOVEL PATIENT-REPORTED MEASURE FOR INDIVIDUALS WITH PRIMARY IMMUNODEFICIENCY Open

Dana DiBenedetti, Lori McLeod, Nicole Williams, Theresa Coles, S. Tzivelekis , et al. · 2019

Experience With Immunoglobulin Treatment Among Patients With PIDD in the US Open

Lori McLeod · 2019

Assessing test–retest reliability of patient-reported outcome measures using intraclass correlation coefficients: recommendations for selecting and documenting the analytical formula Open

Shanshan Qin, Lauren Nelson, Lori McLeod, Sonya Eremenco, Stephen Joel Coons · 2018

Feedback was carefully considered and, after further deliberation, the proposed ICC formula was confirmed. In conclusion, to assess test-retest reliability for PRO measures, the two-way mixed-effect analysis of variance model with interact…

SAT0300 Treatment experience and satisfaction in ankylosing spondylitis patients treated with secukinumab: results from a us web-based survey Open

Marina Magrey, Michael Bozyczko, Daniel Wolin, Margaret Mordin, Lori McLeod , et al. · 2018

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