Lucy Carolan
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View article: Unlocking insights: general practice staff perspectives on sharing general practice data for research – a scoping review
Unlocking insights: general practice staff perspectives on sharing general practice data for research – a scoping review Open
General practice staff are willing to share data for research if ethical and practical safeguards are in place. Future initiatives must prioritise transparency, trust, and inclusivity-particularly by addressing the needs of vulnerable popu…
View article: Placing conditions on sharing general practice data for research: Recommendations from two community juries
Placing conditions on sharing general practice data for research: Recommendations from two community juries Open
ObjectiveThere is increasing demand for access to general practice health records for secondary purposes, including research. However, the extent to which the public supports such use is unclear. We sought to explore informed Australians' …
View article: General practitioners’ perspectives on data linkage in Australian general practice
General practitioners’ perspectives on data linkage in Australian general practice Open
ObjectiveIn the rapidly evolving landscape of digital health, data sharing using primary health care records has gained prominence. Linking primary care data with other administrative health datasets has the potential to provide a whole-of…
View article: Women's views on using artificial intelligence in breast cancer screening: A review and qualitative study to guide breast screening services
Women's views on using artificial intelligence in breast cancer screening: A review and qualitative study to guide breast screening services Open
As breast screening services move towards use of healthcare AI (HCAI) for screen reading, research on public views of HCAI can inform more person-centered implementation. We synthesise reviews of public views of HCAI in general, and review…
View article: How should artificial intelligence be used in Australian health care? Recommendations from a citizens’ jury
How should artificial intelligence be used in Australian health care? Recommendations from a citizens’ jury Open
Objective To support a diverse sample of Australians to make recommendations about the use of artificial intelligence (AI) technology in health care. Study design Citizens’ jury, deliberating the question: “Under which circumstances, if an…
View article: Community views on the secondary use of general practice data: Findings from a mixed‐methods study
Community views on the secondary use of general practice data: Findings from a mixed‐methods study Open
Introduction General practice data, particularly when combined with hospital and other health service data through data linkage, are increasingly being used for quality assurance, evaluation, health service planning and research. In this s…
View article: Public knowledge of general practice data sharing: findings from a focus group study and cross-sectional survey
Public knowledge of general practice data sharing: findings from a focus group study and cross-sectional survey Open
Background There is an increasing demand for access to general practice health records for secondary purposes, including for quality assurance, evaluation, health service planning and research. Public support generally for the secondary us…
View article: Ethical issues in big data: A qualitative study comparing responses in the health and higher education sectors
Ethical issues in big data: A qualitative study comparing responses in the health and higher education sectors Open
Introduction The health and higher education sectors are increasingly using large administrative datasets for secondary purposes. Both sectors experience ethical challenges in the use of big data. This study identifies and explores how the…
View article: Australian women's judgements about using artificial intelligence to read mammograms in breast cancer screening
Australian women's judgements about using artificial intelligence to read mammograms in breast cancer screening Open
Objective Mammographic screening for breast cancer is an early use case for artificial intelligence (AI) in healthcare. This is an active area of research, mostly focused on the development and evaluation of individual algorithms. A growin…
View article: Older Adults’ Perspectives of Smart Technologies to Support Aging at Home: Insights from Five World Café Forums
Older Adults’ Perspectives of Smart Technologies to Support Aging at Home: Insights from Five World Café Forums Open
Globally, there is an urgent need for solutions that can support our aging populations to live well and reduce the associated economic, social and health burdens. Implementing smart technologies within homes and communities may assist peop…
View article: “Public attitudes to sharing government data with private industry: a systematic scoping review”
“Public attitudes to sharing government data with private industry: a systematic scoping review” Open
Background Linking and analysing large volumes of health data in electronic records, datasets, registries and biobanks can provide detailed insights into the health profiles of individuals, communities, regions and national populations. Go…
View article: Sharing Government Health Data With the Private Sector: Community Attitudes Survey
Sharing Government Health Data With the Private Sector: Community Attitudes Survey Open
Background The use of government health data for secondary purposes, such as monitoring the quality of hospital services, researching the health needs of populations, and testing how well new treatments work, is increasing. This increase i…
View article: Sharing administrative health data with private industry: A report on two citizens' juries
Sharing administrative health data with private industry: A report on two citizens' juries Open
Background There is good evidence of both community support for sharing public sector administrative health data in the public interest and concern about data security, misuse and loss of control over health information, particularly if pr…
View article: Developing Best Practice in Linking and Sharing Administrative Data – A Comparison of Views in Health and Higher Education
Developing Best Practice in Linking and Sharing Administrative Data – A Comparison of Views in Health and Higher Education Open
IntroductionLarge administrative datasets are now being used for secondary purposes across a wide range of public sector organisations, including in health and higher education. However, governance, regulation and policy surrounding the us…