Mandy Bryon
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View article: Co-designed strategies for delivery of positive newborn bloodspot screening results to parents: the ReSPoND mixed-methods study
Co-designed strategies for delivery of positive newborn bloodspot screening results to parents: the ReSPoND mixed-methods study Open
Background Newborn bloodspot screening identifies presymptomatic babies who are affected by genetic or congenital conditions. Each year, around 10,000 parents of babies born in England are given a positive newborn bloodspot screening resul…
View article: Process evaluation of co-designed interventions to improve communication of positive newborn bloodspot screening results.
Process evaluation of co-designed interventions to improve communication of positive newborn bloodspot screening results. Open
ObjectiveTo implement and evaluate co-designed interventions to improve communication of positive newborn bloodspot screening results and make recommendations for future research and practice.DesignA process evaluation underpinned by Norma…
View article: Process evaluation of co-designed interventions to improve communication of positive newborn bloodspot screening results
Process evaluation of co-designed interventions to improve communication of positive newborn bloodspot screening results Open
Objective To implement and evaluate co-designed interventions to improve communication of positive newborn bloodspot screening results and make recommendations for future research and practice. Design A process evaluation underpinned by No…
View article: A survey of mental health professionals in a paediatric hospital during COVID-19
A survey of mental health professionals in a paediatric hospital during COVID-19 Open
Background There is little understanding of the mental health impact for young people with long-term physical health conditions and mental health professionals’ experiences of supporting them during COVID-19. This service evaluation aimed …
View article: Processing of positive newborn screening results: a qualitative exploration of current practice in England
Processing of positive newborn screening results: a qualitative exploration of current practice in England Open
Objective To explore current communication practices for positive newborn screening results from the newborn bloodspot screening (NBS) laboratory to clinicians to highlight differences, understand how the pathways are implemented in practi…
View article: 29 Inverting the wellbeing pyramid: the GOSH approach to looking after staff wellbeing
29 Inverting the wellbeing pyramid: the GOSH approach to looking after staff wellbeing Open
At the start of the COVID-19 pandemic experts in trauma and psychology advised about the importance of ensuring the mental and emotional well-being of staff was being considered and supported. Most of the literature and experts advocated …
View article: Qualitative exploration of health professionals’ experiences of communicating positive newborn bloodspot screening results for nine conditions in England
Qualitative exploration of health professionals’ experiences of communicating positive newborn bloodspot screening results for nine conditions in England Open
Objective To explore health professionals’ experiences of communicating positive newborn bloodspot screening (NBS) results, highlight differences, share good practice and make recommendations for future research. Design Qualitative explora…
View article: Protocol for Project Fizzyo, an analytic longitudinal observational cohort study of physiotherapy for children and young people with cystic fibrosis, with interrupted time-series design
Protocol for Project Fizzyo, an analytic longitudinal observational cohort study of physiotherapy for children and young people with cystic fibrosis, with interrupted time-series design Open
Introduction Daily physiotherapy is believed to mitigate the progression of cystic fibrosis (CF) lung disease. However, physiotherapy airway clearance techniques (ACTs) are burdensome and the evidence guiding practice remains weak. This pa…
View article: What factors influence healthcare professionals to refer children and families to paediatric psychology?
What factors influence healthcare professionals to refer children and families to paediatric psychology? Open
Objectives: This study aimed to investigate factors influencing referral of children with physical illness to paediatric psychology. Due to high rates of mental health problems within this population, studies have shown that referral to pa…
View article: The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies
The impact on quality of life on families of children on an elimination diet for Non-immunoglobulin E mediated gastrointestinal food allergies Open
This study found that parent QOL and family functioning was worse in those families who had a child on an elimination diet for non-IgE mediated allergies compared to those with sickle cell disease and intestinal failure, highlighting the i…