Marcel Weidgans
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View article: Single German centre experience with patient journey and care-relevant needs in amyloidosis: The German AMY-NEEDS research and care program
Single German centre experience with patient journey and care-relevant needs in amyloidosis: The German AMY-NEEDS research and care program Open
Background Amyloidosis is a rare multi-system disorder associated with frequently delayed diagnosis, enormous disease burden and psychosocial distress. Methods Systematic assessment of needs was performed by a subtype-spanning questionnair…