Marcus Redley
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View article: Supporting a Family Member with Dementia to Live at Home: The Experiences of Caregivers
Supporting a Family Member with Dementia to Live at Home: The Experiences of Caregivers Open
Background: In the United Kingdom, specialist teams managing crises in dementia make efforts to reduce inpatient admissions by supporting people to live for longer in their own homes. However, fluctuations in the health and social circumst…
View article: Development of the best practice model to improve crisis management for older people with dementia: the AQUEDUCT mixed methods research programme including RCT
Development of the best practice model to improve crisis management for older people with dementia: the AQUEDUCT mixed methods research programme including RCT Open
Background In many countries, supporting people with dementia to remain at home is a key priority. However, a crisis can lead to a breakdown of care at home. In England, various multidisciplinary teams have been set up to support people wi…
View article: Chatting: Family Carers’ Perspectives on Receiving Support from Dementia Crisis Teams
Chatting: Family Carers’ Perspectives on Receiving Support from Dementia Crisis Teams Open
Family caregivers are vital to enabling people with dementia to live longer in their own homes. For these caregivers, chatting with clinicians—being listened to empathetically and receiving reassurance—can be seen as not incidental but imp…
View article: Inclusion of adults with conditions that have the potential to affect capacity and or communication in research: triangulation from a mixed-methods study of current practice and values across multiple stakeholders
Inclusion of adults with conditions that have the potential to affect capacity and or communication in research: triangulation from a mixed-methods study of current practice and values across multiple stakeholders Open
Objectives We aimed to: (A) describe researcher decision-making when including or excluding adults with conditions that have the potential to affect capacity and/or communication in research and (B) explore the underlying values and reason…
View article: Practitioners’ Views on Enabling People With Dementia to Remain in Their Homes During and After Crisis
Practitioners’ Views on Enabling People With Dementia to Remain in Their Homes During and After Crisis Open
One way of supporting people living with dementia is assisting them to live in their homes (as opposed to being admitted to hospital or other facility) and providing them with a specialist service that responds to crises. This makes it imp…
View article: A Qualitative Study of Understanding Reasons for Self-Harm in Adolescent Girls
A Qualitative Study of Understanding Reasons for Self-Harm in Adolescent Girls Open
Objective: Self-harm is an important public health issue in the UK. Young people who self-harm frequently feel misunderstood, and unable to access help. Improving understanding is key to informing the development and delivery of effective …
View article: Mealtime support for adults with intellectual disabilities: Understanding an everyday activity
Mealtime support for adults with intellectual disabilities: Understanding an everyday activity Open
Background Mealtime support has a direct bearing on the diet‐related health of men and women with intellectual disabilities as well as opportunities for expressing dietary preferences. Method Semi‐structured interviews with a sample of dir…
View article: Conceptualizing Dementia Crisis and Preferences for Resolution: A Public Perspective
Conceptualizing Dementia Crisis and Preferences for Resolution: A Public Perspective Open
Background: Crisis intervention services for people with dementia in the United Kingdom are poorly defined with no standardized model of working. This may be due to the lack of a clear conceptualization of dementia crisis, resulting in var…
View article: Ageing and increased longevity amongst people with intellectual disabilities: an editorial
Ageing and increased longevity amongst people with intellectual disabilities: an editorial Open
Ageing and increased longevity amongst people
View article: The impact of an epilepsy nurse competency framework on the costs of supporting adults with epilepsy and intellectual disability: findings from the EpAID study
The impact of an epilepsy nurse competency framework on the costs of supporting adults with epilepsy and intellectual disability: findings from the EpAID study Open
Background The development of a nurse‐led approach to managing epilepsy in adults with an intellectual disability (ID) offers the potential of improved outcomes and lower costs of care. We undertook a cluster randomised trial to assess the…
View article: “Reasonable adjustments” under the UK's <i>Equality Act 2010</i>: An enquiry into the care and treatment to patients with intellectual disabilities in acute hospital settings
“Reasonable adjustments” under the UK's <i>Equality Act 2010</i>: An enquiry into the care and treatment to patients with intellectual disabilities in acute hospital settings Open
Objectives To understand the views of qualified medical practitioners regarding “reasonable adjustments” and the quality of the care and treatment provided to adults with intellectual disabilities when admitted to acute hospitals as inpati…
View article: Training nurses in a competency framework to support adults with epilepsy and intellectual disability: the EpAID cluster RCT
Training nurses in a competency framework to support adults with epilepsy and intellectual disability: the EpAID cluster RCT Open
Background People with an intellectual (learning) disability (ID) and epilepsy have an increased seizure frequency, higher frequencies of multiple antiepileptic drug (AED) use and side effects, higher treatment costs, higher mortality rate…
View article: Clinical services for adults with an intellectual disability and epilepsy: A comparison of management alternatives
Clinical services for adults with an intellectual disability and epilepsy: A comparison of management alternatives Open
Background Intellectual disability (ID) is relatively common in people with epilepsy, with prevalence estimated to be around 25%. Surprisingly, given this relatively high frequency, along with higher rates of refractory epilepsy than in th…
View article: Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation
Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation Open
Background Among adults with intellectual disabilities (ID), problems with eating, drinking and swallowing (EDS), and an associated need for mealtime support, are common, with an estimated 15% of adults known to specialist ID services requ…
View article: Improving the Health and Well-Being of Adults With Conditions of a Genetic Origin: Views from Professionals, Syndrome Support Groups and Parents.
Improving the Health and Well-Being of Adults With Conditions of a Genetic Origin: Views from Professionals, Syndrome Support Groups and Parents. Open
BACKGROUND: Advances in medical genetics herald the possibility that health and social care services could be more responsive to the needs arising from a person's genotype. This development may be particularly important for those men and w…
View article: Improving the Health and Well‐Being of Adults With Conditions of a Genetic Origin: <i>Views from Professionals, Syndrome Support Groups and Parents</i>
Improving the Health and Well‐Being of Adults With Conditions of a Genetic Origin: <i>Views from Professionals, Syndrome Support Groups and Parents</i> Open
Background Advances in medical genetics herald the possibility that health and social care services could be more responsive to the needs arising from a person's genotype. This development may be particularly important for those men and wo…
View article: ‘What vision?’: experiences of Team members in a community service for adults with intellectual disabilities
‘What vision?’: experiences of Team members in a community service for adults with intellectual disabilities Open
Background In the UK, the closure of ‘long‐stay’ hospitals was accompanied by the development of community teams (CTs) to support people with intellectual disabilities (IDs) to live in community settings. The self‐reported experiences of s…
View article: Tensions between policy and practice: A qualitative analysis of decisions regarding compulsory admission to psychiatric hospital
Tensions between policy and practice: A qualitative analysis of decisions regarding compulsory admission to psychiatric hospital Open
The use of detention for psychiatric treatment is widespread and sometimes necessary. International human rights law requires a legal framework to safeguard the rights to liberty and personal integrity by preventing arbitrary detention. Ho…
View article: Additional file 1: of Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse-led intervention: study protocol for a cluster randomised controlled trial
Additional file 1: of Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse-led intervention: study protocol for a cluster randomised controlled trial Open
EpAID Trial SPIRIT checklist. (XLSX 11 kb)