Margot Walter
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View article: Patient perceived needs and experiences of person-centered care in patients with inflammatory arthritis
Patient perceived needs and experiences of person-centered care in patients with inflammatory arthritis Open
Background: Health care is shifting toward a person-centered care (PCC) approach. For implementation of PCC, there may be a special role for nurse practitioners (NPs). Purpose: The aim of this study was to explore the patient-perceived lev…
View article: Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis
Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis Open
View article: Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis
Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis Open
Background Involving the end-users of scientific research (patients, carers and clinicians) in setting research priorities is important to formulate research questions that truly make a difference and are in tune with the needs of patients…
View article: Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis
Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis Open
Background: Involving the end-users of scientific research (patients, carers and clinicians) in setting research priorities is important to formulate research questions that truly make a difference and are in tune with the needs of patient…
View article: THU0699-HPR IS A SMARTPHONE APPLICATION USEFUL FOR SELF-MANAGEMENT SUPPORT IN PATIENTS WITH A RHEUMATIC DISEASE?
THU0699-HPR IS A SMARTPHONE APPLICATION USEFUL FOR SELF-MANAGEMENT SUPPORT IN PATIENTS WITH A RHEUMATIC DISEASE? Open
View article: Self-management in Transition for Patients with a Rheumatic Disease
Self-management in Transition for Patients with a Rheumatic Disease Open
People with a rheumatic disease (RD) can still experience many problems in both physical and psychosocial areas despite the good treatments. These problems can change over time. The people must be able to deal with the disease and the cons…
View article: Successful implementation of a clinical transition pathway for adolescents with juvenile-onset rheumatic and musculoskeletal diseases
Successful implementation of a clinical transition pathway for adolescents with juvenile-onset rheumatic and musculoskeletal diseases Open
The implementation of the clinical transition pathway has led to a substantial improvement of patient care during the transitional process leading to low drop-out of care rate and high scores on satisfaction with transition. High scores on…
View article: Fatigue in early, intensively treated and tight-controlled rheumatoid arthritis patients is frequent and persistent: a prospective study
Fatigue in early, intensively treated and tight-controlled rheumatoid arthritis patients is frequent and persistent: a prospective study Open
Fatigue has a large impact on quality of life and is still unmanageable for many patients. Study aims were describe (1) the prevalence and pattern of fatigue over time in patients with early rheumatoid arthritis under a treat-to-target str…
View article: Development of a clinical transition pathway for adolescents in the Netherlands
Development of a clinical transition pathway for adolescents in the Netherlands Open
Care does not currently meet the needs of young people in the process of transition to adult rheumatology services. The clinical transition pathway developed as a result of the study is a tool that may improve this process.
View article: What support is needed to self-manage a rheumatic disorder: a qualitative study
What support is needed to self-manage a rheumatic disorder: a qualitative study Open
Self-management was primarily seen as patient's own task. Above all, patients wanted to be seen as the experienced experts. Professionals' self-management support should be focused on coaching patients in developing problem-solving skills,…
View article: Focus group interviews reveal reasons for differences in the perception of disease activity in rheumatoid arthritis
Focus group interviews reveal reasons for differences in the perception of disease activity in rheumatoid arthritis Open