Explanipedia

Process evaluation of the implementation of a personalized digital care pathway tool using the RE-AIM framework Open

F.A.C.J. Heijsters, Marlies Cornelissen, Martine C. de Bruijne, Mark‐Bram Bouman, Margriet G. Mullender , et al. · 2025

The PDCP-tool was found to be of value in providing appropriate information, particularly to digital and language proficient, information-hungry patient groups. This process evaluation showed many promising elements for implementation of a…

The core outcome set for studies on feminizing genital gender-affirming surgery: findings from the GenderCOS project Open

Marleen S. Vallinga, Philippine J. Roijer, Thomas E. Pidgeon, Matteo Angelini, Aline Ceulemans , et al. · 2025

None received.

A core outcome set for research on masculinizing genital gender-affirming surgery: international consensus results from the GenderCOS project Open

Philippine J. Roijer, Marleen S. Vallinga, Thomas E. Pidgeon, Matteo Angelini, Aline Ceulemans , et al. · 2025

A CORE OUTCOME SET (COS) FOR FEMINIZING GENDER-AFFIRMING SURGERY: THE GENDERCOS PROJECT Open

Matteo Angelini, Marleen S. Vallinga, Philippine J. Roijer, Thomas E. Pidgeon, Tim C. van de Grift , et al. · 2025

Objectives Feminizing genital gender-affirming surgery (fgGAS) for transgender and gender-diverse (TGD) people includes a variety of procedures and techniques. However, the lack of consistency in reported outcomes of fgGAS across studies p…

A CORE OUTCOME SET (COS) FOR MASCULINIZING GENDER-AFFIRMING SURGERY: THE GENDERCOS PROJECT Open

Philippine J. Roijer, Marleen S. Vallinga, Matteo Angelini, Thomas E. Pidgeon, Tim C. van de Grift , et al. · 2025

Objectives Masculinizing genital gender-affirming surgery (mgGAS) refers to the array of various surgical techniques that can be offered to transgender and gender-diverse (TGD) individuals. However, due to the significant variation in outc…

Development and Assessment of a Patient-Reported Outcome Instrument for Gender-Affirming Care Open

Manraj Kaur, Charlene Rae, Shane D. Morrison, Alexis Laungani, P. Brassard , et al. · 2025

Importance There is an urgent need for a validated gender-affirming care–specific patient-reported outcome measure (PROM). Objective To field test the GENDER-Q, a new PROM for gender-affirming care, in a large, international sample of tran…

Motivations and expectations for feminizing genital gender-affirming surgery: a qualitative exploration of perspectives from trans feminine individuals and health care professionals Open

Sterre E. Mokken, Margriet G. Mullender, Irene M. C. Fritschy, Müjde Özer, Mark‐Bram Bouman , et al. · 2025

Navigating toward standardization: a systematic review mapping outcome measures in masculinizing genital gender affirming surgery Open

Philippine J. Roijer, Marleen S. Vallinga, Melle M. F. Jorna, Thomas E. Pidgeon, Johannes C. F. Ket , et al. · 2024

Gender-affirming surgeries and patient-reported outcomes in gender binary versus non-binary and genderqueer-identifying individuals Open

Matteo Angelini, Margriet G. Mullender, Mark‐Bram Bouman, Danny A. Young‐Afat, Wouter B. van der Sluis , et al. · 2024

What Parents of Children Born with a Cleft Lip and/or Palate Want to Know About the Care for their Child Open

F.A.C.J. Heijsters, Merel D. van Eick, Femke van Nassau, Mark‐Bram Bouman, Corstiaan C. Breugem , et al. · 2024

Objective: Adequate health information that matches the needs of care recipients is a prerequisite for patient-centered care. To facilitate the provision of tailored and timely information, it isimportant to understand the information need…

Trans, gender non-conforming and non-binary individuals’ perspectives on experienced sexuality during medical transition Open

Maeghan Ross, Philippine J. Roijer, Margriet G. Mullender, Tim C. van de Grift · 2024

How gender-affirming treatments (GAT) influence the experienced sexuality of transgender, gender non-conforming, and non-binary (TGNB) individuals remains understudied. The aim of this research was to discern factors contributing to a sati…

The GenderCOS project: study protocol for the development of two international Core Outcome Sets for genital gender affirming surgery Open

Philippine J. Roijer, Marleen S. Vallinga, Thomas E. Pidgeon, Aline Ceulemans, Alex Bakker , et al. · 2023

Background: Worldwide an increasing number of transgender and gender diverse individuals are requesting genital Gender Affirming Surgery (gGAS). For both masculinizing and feminizing gGAS various procedures and techniques are…

Voices from a Multidisciplinary Healthcare Center: Understanding Barriers in Gender-Affirming Care—A Qualitative Exploration Open

Maeghan Ross, Hiba Jahouh, Margriet G. Mullender, Baudewijntje P.C. Kreukels, Tim C. van de Grift · 2023

When seeking gender-affirming care, trans* and gender-diverse individuals often describe experiencing barriers. However, a deeper understanding of what constitutes such barriers is generally lacking. The present research sought to better u…

Sexual Wellbeing according to Transgender Individuals Open

Müjde Özer, Anja de Kruif, Luk Gijs, Baudewijntje P.C. Kreukels, Margriet G. Mullender · 2023

Positive experiences, feeling comfortable with body/self, intimacy, acceptation and communication with partner appeared helpful to overcome hurdles and experience sexual wellbeing.

Clinical significance of diastasis recti: Literature review and awareness amongst health care professionals Open

Louise L. Blankensteijn, Miriam Hockx, Margriet G. Mullender, Mark‐Bram Bouman, Wynand B.W.H. Melenhorst · 2023

Current literature is not unanimous on the relation between DR and physical complaints and on its most suitable treatment. This incongruity is corroborated by the variety of responses from involved health care professionals in our survey. …

A usability evaluation of the perceived user friendliness, accessibility, and inclusiveness of a personalized digital care pathway tool Open

F.A.C.J. Heijsters, G.A.P. van Loon, J.M.M. Santema, Margriet G. Mullender, Mark‐Bram Bouman , et al. · 2023

D151. The Gender-Q: A Rigorous, Modular, Patient-reported Outcome Measure For Gender-affirming Care Open

Manraj Kaur, Shane D. Morrison, Shelby Deibert, Tim van de Grift, Astrid Ditte Højgaard , et al. · 2023

PURPOSE: To develop a comprehensive, rigorous PROM to assess outcomes of gender-affirming care in clinical practice, research, and quality initiatives (the GENDER-Q) METHODS: A mixed-methods, multiphase approach was used. In phase 1, in-de…

Expectations and Experienced Outcomes Regarding Gender-Affirming Surgeries: A Pilot Study Open

Maeghan Ross, Sanne Wesseling, Margriet G. Mullender, Baudewijntje P.C. Kreukels, Tim van de Grift · 2023

Better understanding, education, and support in the decision-making process of trans individuals seeking gender-affirming surgical care is needed to manage expectations and overall outcomes of GAS procedures.

Identifying Coping Strategies Used by Transgender Individuals in Response to Stressors during and after Gender-Affirming Treatments—An Explorative Study Open

Anna Oorthuys, Maeghan Ross, Baudewijntje P.C. Kreukels, Margriet G. Mullender, Tim C. van de Grift · 2022

Background: Gender-affirming treatments are reported to improve mental health significantly. However, a substantial number of transgender individuals report a relapse in, or persistence of, mental health problems following gender-affirming…

Stakeholders barriers and facilitators for the implementation of a personalised digital care pathway: a qualitative study Open

F.A.C.J. Heijsters, J.M.M. Santema, Margriet G. Mullender, Mark‐Bram Bouman, Martine C. de Bruijne , et al. · 2022

Objective A prerequisite for patient-centredness in healthcare organisations is offering patients access to adequate health information, which fits their needs. A personalised digital care pathway (PDCP) is a tool that facilitates the prov…

Correction: Free vascularized flap reconstruction for osteoradionecrosis of the mandible: a 25-year retrospective cohort study Open

Stefanie C. M. van den Heuvel, T. R. I. van den Dungen, E.A.J.M. Schulten, Margriet G. Mullender, Henri A. H. Winters · 2022

In this article, author name “T.R.I. den Dungen” should be corrected to “T.R.I. van den Dungen”. The original article has been corrected.

Free vascularized flap reconstruction for osteoradionecrosis of the mandible: a 25-year retrospective cohort study Open

Stefanie C. M. van den Heuvel, T. R. I. van den Dungen, E.A.J.M. Schulten, Margriet G. Mullender, Henri A. H. Winters · 2022

Background Osteoradionecrosis of the jaw is a severe complication of radiotherapy in head and neck cancer patients . If conservative treatment and surgical debridement have been unsuccessful, the preferred treatment for symptomatic mandibu…

A pragmatic approach for implementation of value-based healthcare in Amsterdam UMC, the Netherlands Open

F.A.C.J. Heijsters, Fenna G. F. van Breda, Femke van Nassau, Marije K. J. van der Steen, Piet M. ter Wee , et al. · 2022

The impact of incisional negative pressure wound therapy on scar quality and patient‐reported outcomes: A <span>within‐patient</span>‐controlled, randomised trial Open

Floyd W. Timmermans, Sterre E. Mokken, Jan‐Maerten Smit, Mark‐Bram Bouman, Timotheus C. van de Grift , et al. · 2022

Literature provides a moderate level of evidence for the beneficial effects of incisional negative pressure wound therapy (iNPWT) on scar quality. The purpose of this study was to establish if iNPWT results in improved scar outcomes in com…

An external validation of a novel predictive algorithm for male nipple areolar positioning: an improvement to current practice through a multicenter endeavor Open

Floyd W. Timmermans, Laure Ruyssinck, Sterre E. Mokken, Marlon E. Buncamper, Kevin M. Veen , et al. · 2021

The correct positioning of nipple-areolar complexes (NAC) during gender-affirming mastectomies remains a particular challenge. Recently, a Dutch two-step algorithm was proposed predicting the most ideal NAC-position derived from a large ci…

How Sensitive Is the Neophallus? Postphalloplasty Experienced and Objective Sensitivity in Transmasculine Persons Open

Lian Elfering, Tim C. van de Grift, Muhammed Al‐Tamimi, Floyd W. Timmermans, Kristin B. de Haseth , et al. · 2021

Introduction Tactile and erogenous sensitivity of the neophallus after phalloplasty is assumed to affect the sexual well-being of transmasculine persons and, ultimately, their quality of life. The experienced and objective sensation of the…

An anthropometric evaluation of the augmented breast: differences between cis-and transgender women and possible clinical implications Open

Floyd W. Timmermans, Sterre E. Mokken, Brian Scheffers, Mark‐Bram Bouman, Margriet G. Mullender , et al. · 2021

Background The morphometric results after breast augmentations are generally understood to be clinically different between trans(gender) and cis(gender) women. The objective of this study was to establish these morphometric differences bet…

Within-patient randomized clinical trial comparing incisional negative-pressure wound therapy with suction drains in gender-affirming mastectomies Open

Floyd W. Timmermans, Sterre E. Mokken, Jan Maerten Smit, Pieter R. Zwanenburg, N van Hout , et al. · 2021

Background Incisional negative-pressure wound therapy (iNPWT) is widely adopted by different disciplines for multiple indications. Questions about the most appropriate uses and value of iNPWT have been raised. Methods An open-label within-…

The development of burn scar contractures and impact on joint function, disability and quality of life in low- and middle-income countries: A prospective cohort study with one-year follow-up Open

Thom C C Hendriks, Matthijs Botman, Joost J. Binnerts, G.S. Mtui, Emanuel Q Nuwass , et al. · 2021

The prevalence of burn scar contractures was high in a low-income country. The joints with burn scar contracture were frequently limited in function. Patients who developed a contracture reported significantly more disability and lower QoL…

Patient-Reported Outcomes After Genital Gender-Affirming Surgery With Versus Without Urethral Lengthening in Transgender Men Open

Freek P. W. de Rooij, Tim C. van de Grift, Hans Veerman, Muhammed Al‐Tamimi, Wouter B. van der Sluis , et al. · 2021

No significant differences in several PROs were observed between participants who chose gGAS with or without UL in this retrospective study. Additionally, according to this study, satisfaction with the appearance of the neophallus and with…

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