Maria Kokocinska
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View article: Preferences for coordinated care for rare diseases: discrete choice experiment
Preferences for coordinated care for rare diseases: discrete choice experiment Open
Background Evidence suggests that coordination of care for people affected by rare diseases is poor. In order to improve the way that care is coordinated it is necessary to understand the preferences of people affected by these conditions,…
View article: Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study
Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study Open
Background A condition is defined as rare if it affects fewer than 1 in 2000 people in the general population. Limited evidence suggests that care is poorly co-ordinated for people affected by rare conditions. Objectives To investigate if …
View article: Development of models of care coordination for rare conditions: A qualitative study
Development of models of care coordination for rare conditions: A qualitative study Open
Introduction Improving care coordination for people with rare conditions may help to reduce burden on patients and carers and improve the care that patients receive. We recently developed a taxonomy of different ways of coordinating care f…
View article: Developing a taxonomy of care coordination for people living with rare conditions: A qualitative study
Developing a taxonomy of care coordination for people living with rare conditions: A qualitative study Open
Background Improving care coordination is particularly important for individuals with rare conditions (who may experience multiple inputs into their care, across different providers and settings). To develop and evaluate strategies to pote…