Marlene Sinclair
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Quality of Life and Fear of Recurrence or Progression in Women With DCIS Who Did and Did Not Receive Radiotherapy Open
DCIS treatment was associated with minimal long-term HRQoL impact and low FRP, irrespective of RT. Improving understanding of recurrence/progression risk may protect against persistent FRP in these women.
Experience of home monitoring of children with complex CHD during the COVID-19 pandemic: lessons learnt Open
Objective: The COVID-19 pandemic presented unique challenges to global healthcare. Face-to-face outpatient care was dramatically reduced. This study implemented a remote consultation service via a mobile app (Pexip) to monitor patients wit…
Cognitive, Behavioral and Educational Outcomes in Children Aged 5–11 Years With Spina Bifida in Northern Ireland Open
Introduction While improved medical and surgical care for children with spina bifida has improved their survival, some may have lower cognitive, behavioral and educational performance. The paper assesses the effect of spina bifida on cogni…
Touching Technology—Parents’ Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study Open
Background Remote consultations (RCs) using videoconferencing was recommended by the General Medical Council as the method for clinicians to provide patient consultations during the COVID-19 pandemic. Facilitating this while providing high…
Exploratory pedagogical research of a bespoke eye movement desensitisation and reprocessing therapy training for midwives Open
Eye movement desensitisation and reprocessing (EMDR) therapy is a transdiagnostic, comprehensive, integrative, evidence‐based treatment intervention for post‐traumatic stress disorder (PTSD), complex PTSD, and perinatal PTSD. PTSD can aris…
5 Seeking pregnancy experiences of women living as internally displaced persons in northern myanmar: a qualitative study protocol Open
Background Myanmar has a high maternal mortality rate. Evidence about pregnancy and antenatal care experiences of women in more remote areas, where Covid and conflict have increased poverty and restricted travel, is limited. Understanding …
Cognitive, behavioural and educational outcomes in children aged 5-11 years with Spina Bifida in Northern Ireland Open
Objective: While the survival of children born with Spina Bifida has improved, some may have lower cognitive, behavioural and educational performance. Therefore, this study set out to assess the effect of Spina Bifida on cognitive, behavio…
An ethnographic study evaluating emergency obstetric care education and training in a remote, fragile region of Southeast Asia: Study protocol Open
Aim To evaluate emergency obstetric care education and training within a medical assistant training program, being delivered in a remote, fragile region of Southeast Asia. This will aid in the identification of potential areas of enhanceme…
How are meat and dairy represented in a sustainability context in food-based dietary guidelines? Open
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View article: Responding to the Ockenden Review: Safe care for all needs evidence-based system change - and strengthened midwifery
Responding to the Ockenden Review: Safe care for all needs evidence-based system change - and strengthened midwifery Open
In this article, the authors discuss a woman-centred approach to labour progress using an awareness of the physiological variations which exist in labour and they highlight the current WHO recommendations for labour progress. There is a ca…
Factors associated with antenatal depression in the Kingdom of Jordan during the COVID-19 pandemic Open
Fear of infection and measures taken to mitigate infection, such as social distancing, lockdown and isolation can lead to anxiety and depression across the life course, but especially in pregnancy. We set out to identify the prevalence of …
Early psychological interventions for prevention and treatment of post-traumatic stress disorder (PTSD) and post-traumatic stress symptoms in post-partum women: A systematic review and meta-analysis Open
Background Pre-term or full-term childbirth can be experienced as physically or psychologically traumatic. Cumulative and trans-generational effects of traumatic stress on both psychological and physical health indicate the ethical require…
The impact of COVID-19 on the physical activity and sedentary behaviour levels of pregnant women with gestational diabetes Open
Background The aim of this study was to understand how physical activity and sedentary behaviour levels of pregnant women with gestational diabetes in the UK have been affected by COVID-19. Methods An online survey exploring physical activ…
View article: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study
Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study Open
Background Limited research evidence exists on the development of web-based platforms for reciprocal communication, coproduction research, and dissemination of information among parents, professionals, and researchers. This paper provides …
A scoping review protocol: Mapping the range of policy‐related evidence influencing maternal health outcomes in a fragile, low‐income country Open
Aim The aim of this scoping review is to map the range of policy‐related evidence influencing maternal health outcomes and determine the cultural and contextual factors influencing maternal health in Myanmar, a low‐income, fragile setting.…
Tapping into online breastfeeding support: what can we learn from this phenomenon? Open
Background: Due in part to increased use of formula to feed babies, breastfeeding skills have been lost in many communities across the world. Health providers and researchers strive to identify innovative solutions to encourage more women …
The effectiveness of online psychotherapy interventions for the treatment of perinatal mental health disorders: A systematic review Open
Background: There is a wide spectrum of perinatal mental health (PMH) disorders including anxiety, depression, stress, compulsive disorders, post-traumatic stress disorder (PTSD), mania and postpartum psychosis. Up to 20 per cent of women …
Social Worker and Midwife Decision Making Regarding Child Protection Risk and the Unborn Baby: A Qualitative Study Open
A newborn baby is vulnerable to abuse and neglect, and the professional role may involve assessment before the baby is born. The aim of this paper is to explore the perspectives and experiences of midwives and child protection social worke…
View article: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study (Preprint)
Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study (Preprint) Open
BACKGROUND Limited research evidence exists on the development of web-based platforms for reciprocal communication, coproduction research, and dissemination of information among parents, professionals, and researchers. This paper provides …
View article: Positioning and attachment interventions for nipple pain: a systematic review
Positioning and attachment interventions for nipple pain: a systematic review Open
Background: Nipple pain is a common difficulty experienced by breastfeeding mothers, with negative impacts on breastfeeding duration and experience. Previous systematic reviews, focusing mainly on various topical treatments, dressings and …
Breastfeeding, Motivation and Culture: an exploration of maternal influences within midwife-led instruction in an Asian setting Open
Background: Breastfeeding is a normal physiological behaviour influenced by layers of internal and external factors. Motivational and cultural influences play an important role in maternal decision making and behaviour, impacting both the …
Integrated Care for Pregnant Women with Type One Diabetes using Wearable Technology Open
This paper presents a study into the use of wearable technologies by pregnant women with Type one diabetes (T1D). The World Health Organisation estimates the incidence of T1D globally to be more than 422 million. Wearable tech-nologies can…
View article: Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study
Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study Open
Background Using social media for research purposes is novel and challenging in terms of recruitment, participant knowledge about the research process, and ethical issues. This paper provides insight into the recruitment of European parent…
View article: Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study (Preprint)
Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study (Preprint) Open
BACKGROUND Using social media for research purposes is novel and challenging in terms of recruitment, participant knowledge about the research process, and ethical issues. This paper provides insight into the recruitment of European parent…