Martin Howell
YOU?
Author Swipe
View article: Toward Normalizing Inclusive Design by Uncovering Patient Experiences of a Web Portal in a Dental Hospital: Mixed Methods Study
Toward Normalizing Inclusive Design by Uncovering Patient Experiences of a Web Portal in a Dental Hospital: Mixed Methods Study Open
Background Patient portals can improve care delivery and the efficient use of health care resources. Barriers to uptake can hinder the realization of expected benefits for health services and patients, particularly for older adults (≥ 65 y…
View article: Critically Important Cancer Outcomes to Report in Kidney Transplant Trials
Critically Important Cancer Outcomes to Report in Kidney Transplant Trials Open
View article: A Within-Trial Economic Evaluation of a Patient Navigator Program in Children With CKD
A Within-Trial Economic Evaluation of a Patient Navigator Program in Children With CKD Open
View article: Patient-reported outcome measures for fatigue in patients with chronic kidney disease: a systematic review
Patient-reported outcome measures for fatigue in patients with chronic kidney disease: a systematic review Open
Objective Fatigue is a common and debilitating symptom that is associated with an increased risk of mortality, dialysis initiation and hospitalisation among patients with chronic kidney disease (CKD). The aim of this study was to identify …
View article: The Standardized Outcomes in Nephrology (SONG) initiative: a decade of harmonizing patient voices and research in kidney disease
The Standardized Outcomes in Nephrology (SONG) initiative: a decade of harmonizing patient voices and research in kidney disease Open
View article: TELEnutrition and KIdNey hEalth Study: protocol for a randomised controlled trial comparing the effect of digital health to standard care on serum phoSphate control in patients on dIalysiS (TeleKinesis Study)
TELEnutrition and KIdNey hEalth Study: protocol for a randomised controlled trial comparing the effect of digital health to standard care on serum phoSphate control in patients on dIalysiS (TeleKinesis Study) Open
Introduction Diet and nutrition play a vital role in all stages of chronic kidney disease (CKD) prevention, treatment and management. In particular, dietary interventions are essential to manage hyperphosphataemia, a common metabolic compl…
View article: Interventions to Improve Life Participation in Kidney Transplant Recipients: A Systematic Review
Interventions to Improve Life Participation in Kidney Transplant Recipients: A Systematic Review Open
View article: A Global Survey of Self-Reported Cancer Screening Practices by Health Professionals for Kidney Transplant Candidates and Recipients
A Global Survey of Self-Reported Cancer Screening Practices by Health Professionals for Kidney Transplant Candidates and Recipients Open
Cancer is a major cause of morbidity and mortality in kidney transplant recipients. Health professionals have a critical role in promoting cancer screening participation. From March 2023 to February 2024, an online survey was distributed t…
View article: Towards Normalising Inclusive Design: Uncovering Patient Experiences of a Web Portal in a Dental Hospital Authors
Towards Normalising Inclusive Design: Uncovering Patient Experiences of a Web Portal in a Dental Hospital Authors Open
View article: Validating the SONG-PKD Pain Instrument, a Core Outcome Measure for Pain in ADPKD
Validating the SONG-PKD Pain Instrument, a Core Outcome Measure for Pain in ADPKD Open
View article: Patient-reported outcome measures for life participation in patients with chronic kidney disease: a systematic review
Patient-reported outcome measures for life participation in patients with chronic kidney disease: a systematic review Open
Background The symptoms, comorbidities and treatment burden associated with chronic kidney disease (CKD) can be debilitating and limit life participation in patients with CKD not requiring kidney replacement therapy (KRT). The aim of this …
View article: Perspectives of Caregivers on Access to Health Care for Children with CKD
Perspectives of Caregivers on Access to Health Care for Children with CKD Open
Caregivers of children with CKD from disadvantaged backgrounds feel disempowered and vulnerable when accessing care for their child. Strategies are needed to improve access to health care for families who are socioeconomically or geographi…
View article: Understanding modelled economic evaluations: a reader's guide for clinicians
Understanding modelled economic evaluations: a reader's guide for clinicians Open
Economic evaluations have a long history in health care.1, 2 Full economic evaluations aim to inform decision making through comparing the costs and outcomes of two or more interventions, strategies, programs or policies, to estimate their…
View article: What attributes of digital devices are important to clinicians in rehabilitation? A cross-cultural best-worst scaling study
What attributes of digital devices are important to clinicians in rehabilitation? A cross-cultural best-worst scaling study Open
Clinicians prioritise patients' needs and practical application over technical aspects of digital rehabilitation devices. Contextual factors shape clinician preferences rather than individual clinician characteristics. Future device design…
View article: Improving Diverse and Equitable Involvement of Patients and Caregivers in Research in CKD: Report of a Better Evidence and Translation–Chronic Kidney Disease (BEAT-CKD) Workshop
Improving Diverse and Equitable Involvement of Patients and Caregivers in Research in CKD: Report of a Better Evidence and Translation–Chronic Kidney Disease (BEAT-CKD) Workshop Open
View article: WCN24-1599 PATIENT-REPORTED OUTCOMES MEASURES FOR LIFE PARTICIPATION IN PATIENTS WITH CHRONIC KIDNEY DISEASE: A SYSTEMATIC REVIEW
WCN24-1599 PATIENT-REPORTED OUTCOMES MEASURES FOR LIFE PARTICIPATION IN PATIENTS WITH CHRONIC KIDNEY DISEASE: A SYSTEMATIC REVIEW Open
View article: WCN24-715 ADDRESSING SOCIAL DETERMINANTS OF HEALTH IN CHRONIC KIDNEY DISEASE: AN ANALYSIS OF HEALTH POLICY RESPONSES ACROSS AUSTRALIAN JURISDICTIONS
WCN24-715 ADDRESSING SOCIAL DETERMINANTS OF HEALTH IN CHRONIC KIDNEY DISEASE: AN ANALYSIS OF HEALTH POLICY RESPONSES ACROSS AUSTRALIAN JURISDICTIONS Open
The health of populations and individuals is substantially determined by the conditions in which people are born, grow, work, live and age, known as the social determinants of health (SDH). These factors are key drivers of people's health …
View article: WCN24-1587 PATIENT-REPORTED OUTCOMES MEASURES FOR PATIENTS WITH CHRONIC KIDNEY DISEASE: A SYSTEMATIC REVIEW
WCN24-1587 PATIENT-REPORTED OUTCOMES MEASURES FOR PATIENTS WITH CHRONIC KIDNEY DISEASE: A SYSTEMATIC REVIEW Open
View article: WCN24-1881 Interventions to improve life participation in kidney transplant recipients: a systematic review and meta-analysis
WCN24-1881 Interventions to improve life participation in kidney transplant recipients: a systematic review and meta-analysis Open
View article: Consumer involvement in the development and dissemination of chronic kidney disease guidelines: a summary of a meaningful and sustainable approach developed by Caring for Australians and New ZealandeRs with kidney Impairment guidelines
Consumer involvement in the development and dissemination of chronic kidney disease guidelines: a summary of a meaningful and sustainable approach developed by Caring for Australians and New ZealandeRs with kidney Impairment guidelines Open
View article: Erratum
Erratum Open
View article: What Matters to Aboriginal and Torres Strait Islander Youth (WM2Y): a study protocol to develop a national youth well-being measure
What Matters to Aboriginal and Torres Strait Islander Youth (WM2Y): a study protocol to develop a national youth well-being measure Open
Introduction Adolescents face challenges associated with unprecedented environmental, social and technological changes. The impacts of colonisation, intergenerational trauma, racism and socioeconomic disadvantage intensify these challenges…
View article: It matters who you are and where you live: Commonwealth, state and territory policies for access to care for Australians with chronic kidney disease and their caregivers
It matters who you are and where you live: Commonwealth, state and territory policies for access to care for Australians with chronic kidney disease and their caregivers Open
Despite the known disparities in the burden of CKD there are few policies addressing CKD disparities for Aboriginal and Torres Strait Islander people and Australians living in rural and remote areas. Policies that specifically address the …
View article: Development of the What Matters 2 Adults (WM2A) wellbeing measure for Aboriginal and Torres Strait Islander adults
Development of the What Matters 2 Adults (WM2A) wellbeing measure for Aboriginal and Torres Strait Islander adults Open
The unique combination of Indigenist and psychometric methodologies to develop WM2A ensures a culturally and psychometrically robust measure, relevant across a range of settings and applications.
View article: The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life
The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life Open
Applying the RETRIEVE checklists to relevant studies suggests feasibility. RETRIEVE has the potential to improve completeness in the reporting of preference-based values for child HRQOL outcomes and to improve assessment of preference-base…
View article: OP06 Development Of A Tool To Support The Collection Of Policy-Relevant, Stakeholder-Informed Clinical Evidence For Innovative Digital Health Technologies
OP06 Development Of A Tool To Support The Collection Of Policy-Relevant, Stakeholder-Informed Clinical Evidence For Innovative Digital Health Technologies Open
Introduction The number of studies on digital health technologies (DHTs) for remote treatment and patient self-management is increasing. Existing health technology assessment (HTA) frameworks for DHTs, which guide researchers in generating…
View article: Multi-center, pragmatic, cluster-randomized, controlled trial of standardized peritoneal dialysis (PD) training versus usual care on PD-related infections (the TEACH-PD trial): trial protocol
Multi-center, pragmatic, cluster-randomized, controlled trial of standardized peritoneal dialysis (PD) training versus usual care on PD-related infections (the TEACH-PD trial): trial protocol Open
View article: School attendance and sport participation amongst children with chronic kidney disease: a cross-sectional analysis from the Kids with CKD (KCAD) study
School attendance and sport participation amongst children with chronic kidney disease: a cross-sectional analysis from the Kids with CKD (KCAD) study Open
View article: Systematic Review of the Relative Social Value of Child and Adult Health
Systematic Review of the Relative Social Value of Child and Adult Health Open
View article: Validation of a Core Patient-Reported Outcome Measure for Life Participation in Kidney Transplant Recipients: the SONG Life Participation Instrument
Validation of a Core Patient-Reported Outcome Measure for Life Participation in Kidney Transplant Recipients: the SONG Life Participation Instrument Open
The SONG-LP instrument is a simple, internally consistent, reliable measure for kidney transplant recipients and correlates with similar measures. Routine incorporation in clinical trials will ensure consistent and appropriate assessment o…