Explanipedia

Burden of hypereosinophilic syndromes in the United States: Patients’ perspective Open

Jared Silver, Anna Kovalszki, Mary Jo Strobel, Dan Gratie, A. Edgecomb , et al. · 2025

Frequent report of vitamin deficiencies and use of supplements and complementary/alternative treatment approaches in patients with eosinophilic gastrointestinal diseases Open

Brenderia A. Cameron, Elizabeth T. Jensen, Xiangfeng Dai, Chelsea Anderson, Ellyn Kodroff , et al. · 2025

Background: Eosinophilic gastrointestinal diseases (EGIDs) impact nutrition. Objectives: To assess the frequency of vitamin deficiencies, supplement use, and complementary/alternative-medication (CAM) use in EoE and non-EoE EGID patients. …

Segmental overlap is common in eosinophilic gastrointestinal diseases and impacts clinical presentation and treatment Open

Corey J. Ketchem, Elizabeth T. Jensen, Xiangfeng Dai, Chelsea Anderson, Ellyn Kodroff , et al. · 2025

Summary Little is known about the extent or importance of overlapping gastrointestinal (GI) tract involvement in eosinophilic gastrointestinal diseases (EGIDs), how presentations differ by areas of involvement, and whether overlap impacts …

Extraintestinal Symptoms of Pain Are Common in Patients With Eosinophilic Gastrointestinal Diseases Open

Jennifer Dziwis, Xiangfeng Dai, Chelsea Anderson, Ellyn Kodroff, Mary Jo Strobel , et al. · 2025

Patients with EGIDs may experience extraintestinal symptoms of pain. These symptoms may be more prominent in patients with non-EoE only EGIDs. Understanding of the underlying factors contributing to these symptoms is needed to guide mitiga…

Emotional Journey of Patients with Eosinophilic Esophagitis Open

Helén Larsson, Mary Jo Strobel, Eduardo Perez-Guagnelli · 2023

This study pays attention to the different stages of the journey of patients with EoE. There is a lack of awareness by both physicians and patients that negatively affects every stage of the patient journey, but especially the initial phas…

Early life exposures as risk factors for non-esophageal eosinophilic gastrointestinal diseases Open

Elizabeth T. Jensen, Xiangfeng Dai, Ellyn Kodroff, Mary Jo Strobel, Amy Zicarelli , et al. · 2023

Plain Language Summary of principles for improving the care of people with eosinophil-associated diseases Open

David J. Jackson, Praveen Akuthota, Rebeca Andradas, Albert J. Bredenoord, Amanda Cordell , et al. · 2023

Eosinophil-associated diseases (EADs) are a group of conditions in which eosinophils (a type of white blood cell) are thought to play a key role in the disease and how it develops. Some EADs are common, such as atopic dermatitis (also call…

Development of a Practical Guide to Implement and Monitor Diet Therapy for Eosinophilic Esophagitis Open

Joy W. Chang, Kara Kliewer, Emily Haller, Amanda Lynett, Bethany Doerfler , et al. · 2023

Enhancing diversity, equity, inclusion, and accessibility in eosinophilic gastrointestinal disease research: the consortium for eosinophilic gastrointestinal disease researchers’ journey Open

Mirna Chehade, Glenn T. Furuta, Amy D. Klion, J. Pablo Abonia, Seema S. Aceves , et al. · 2023

In response to the social inequities that exist in health care, the NIH-funded Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) recently formed a diversity committee to examine systemic racism and implicit bias in th…

Improving Care in Eosinophil-Associated Diseases: A Charter Open

David J. Jackson, Praveen Akuthota, Rebeca Andradas, Albert J. Bredenoord, Amanda Cordell , et al. · 2022

Insights from Social Media on the Patient Experience of Living With Rare Eosinophil-Driven Diseases Open

Mary Jo Strobel, Debbie Alves, Florence Roufosse, Zeina Antoun, Namhee Kwon , et al. · 2022

Eosinophilic granulomatosis with polyangiitis (EGPA) and hypereosinophilic syndrome (HES) are driven by persistently high eosinophil numbers, causing damage to tissues and organs. As rare diseases, they are often underappreciated by health…

Hashing out current social media use in eosinophilic esophagitis Open

Shivani U. Thanawala, Claire Beveridge, Amanda B. Muir, Mary Jo Strobel, Amity Westcott-Chavez , et al. · 2021

Summary Background Patients affected by chronic illnesses have increasingly turned to social media to gather disease-related information and connect with other patients. Eosinophilic esophagitis (EoE) is a chronic disease with rapidly evol…

Fr195 PERCEPTIONS OF COVID-19 IN THE EOSINOPHILIC ESOPHAGITIS POPULATION Open

Shivani U. Thanawala, Claire Beveridge, Amanda B. Muir, Mary Jo Strobel, Amity Westcott-Chavez , et al. · 2021

Motivations, Barriers, and Outcomes of Patient-Reported Shared Decision Making in Eosinophilic Esophagitis Open

Joy W. Chang, Joel H. Rubenstein, Jessica L. Mellinger, Ellyn Kodroff, Mary Jo Strobel , et al. · 2020

High Patient Disease Burden in a Cross‐sectional, Multicenter Contact Registry Study of Eosinophilic Gastrointestinal Diseases Open

Elizabeth T. Jensen, Seema S. Aceves, Peter A Bonis, Kimberly Bray, Wendy Book , et al. · 2020

Objectives: Clinical features of eosinophilic esophagitis (EoE) have been well‐described in the literature, however, characterization of features experienced by patients with other eosinophilic gastrointestinal diseases (EGIDs) is lacking.…

Comparing Two Restrictive Diets for Treating Eosinophilic Esophagitis in Children Open

Kara Kliewer, Qin Sun, Lin Fei, J. Pablo Abonia, Seema S. Aceves , et al. · 2020

Perspectives Of Patients And Caregivers On The Use Of Elemental Formula For Eosinophilic Gastrointestinal Disease Open

João Pedro Lopes, Jennifer Roeder, Stacey Adjei, Mary Jo Strobel, Juliet M Ross , et al. · 2020

Mo1133 – High Patient-Reported Disease Burden for Eosinophilic Gastrointestinal Disorders Open

Elizabeth T. Jensen, J. Pablo Abonia, Seema S. Aceves, Peter A Bonis, Kimberly Bray , et al. · 2019

Updated International Consensus Diagnostic Criteria for Eosinophilic Esophagitis: Proceedings of the AGREE Conference Open

Evan S. Dellon, Chris A. Liacouras, Javier Molina‐Infante, Glenn T. Furuta, Jonathan M. Spergel , et al. · 2018

Alignment of parent- and child-reported outcomes and histology in eosinophilic esophagitis across multiple CEGIR sites Open

Seema S. Aceves, Eileen King, Margaret H. Collins, Guang‐Yu Yang, Kelley E. Capocelli , et al. · 2018

Individuals affected by eosinophilic gastrointestinal disorders have complex unmet needs and frequently experience unique barriers to care Open

Girish Hiremath, Ellyn Kodroff, Mary Jo Strobel, Melissa Scott, Wendy Book , et al. · 2018

Characteristics of Newly Enrolled Members of an Integrated Delivery System after the Affordable Care Act Open

Elizabeth A. Bayliss, Jennifer L. Ellis, Mary Jo Strobel, Deanna B. McQuillan, Irena B Petsche , et al. · 2015

Of 89,289 newly enrolled non-Medicare members, 25.3% completed the Brief Health Questionnaire between 1/1/2014, and 8/31/2014. Of these, 3593 respondents were insured through Medicaid, 9434 through the individual health exchange, and 9521 …

Mary Jo Strobel YOU? Author Swipe