Explanipedia

Study partners’ views on remuneration in longitudinal Alzheimer's disease research Open

Erin D. Solomon, Matthew J. Gabel, Semere Bekena, Spondita Goswami, Krista L. Moulder , et al. · 2025

Introduction Recruiting and retaining participants in Alzheimer's disease (AD) research poses a consistent challenge. Remuneration is one “readily modifiable factor” that could improve recruitment and retention in longitudinal observationa…

Trust, trust repair, and public health: a scoping review Open

Peter Kalulu, Arie Fisher, Grace Whitter, Ipek N. Sener, Michelle Doering , et al. · 2025

Objective This study investigates the scope of evidence on trust, trust repair, and public health. Methods We identified quantitative studies that evaluated the relationship between trust or trust repair and public health from January 1990…

Current practices by Alzheimer's Disease Research Centers to remunerate research participants Open

Matthew J. Gabel, Semere Bekena, Margaret O’Meara, Andrea Denny, Erin D. Solomon , et al. · 2025

INTRODUCTION Recent guidance from the National Alzheimer's Coordinating Center (NACC) recommends remuneration for all Alzheimer's disease (AD) research participants. Given AD research recruitment challenges, we assessed the remuneration pr…

CompLaw: A Coding Protocol and Database for the Comparative Study of Judicial Review Open

Matthew J. Gabel, Clifford J. Carrubba, Gretchen Helmke, Andrew D. Martin, Jeffrey K. Staton , et al. · 2024

A growing theoretical literature identifies how the process of constitutional review shapes judicial decision-making, legislative behavior, and even the constitutionality of legislation and executive actions. However, the empirical interro…

Retention of Study Partners in Longitudinal Studies of Alzheimer Disease Open

Rebecca M. Bollinger, Matthew J. Gabel, Dean W. Coble, Szu‐Wei Chen, Audrey A. Keleman , et al. · 2023

Background: Study partners are required for all participants at Alzheimer’s Disease Research Centers (ADRCs). Study partners’ attitudes and beliefs may contribute to missed visits and negatively impact retention of participants in longitud…

Remuneration and Recruitment of Study Participants for AD Cohort Studies From the General Public and From Minority Communities Open

Matthew J. Gabel, Andrea Denny, Jorge J. Llibre‐Guerra, John C. Morris, Jennifer M. Phillips , et al. · 2023

Introduction: Offering remuneration for participation in studies of aging and Alzheimer Disease (AD) may improve recruitment, particularly among minoritized and low-income groups. But remuneration may also raise ethical problems and reduce…

Psychometric Evaluation of the Perceived Research Burden Assessment (PeRBA) in Longitudinal Studies of Alzheimer Disease Using Rasch Analysis Open

Audrey A. Keleman, Chih‐Hung Chang, Rebecca M. Bollinger, Jennifer H. Lingler, Matthew J. Gabel , et al. · 2022

Introduction: The Perceived Research Burden Assessment (PeRBA) was developed to measure participant perceptions of burden in research studies. This study aimed to examine the psychometric properties of this assessment using Rasch analysis …

The timely administration of justice: using computational simulations to evaluate institutional reforms at the CJEU Open

Joshua C. Fjelstul, Matthew J. Gabel, Clifford J. Carrubba · 2022

The Court of Justice of the European Union (CJEU) faces a growing backlog of cases and delays in administering justice. Identifying the factors that prolong the resolution of cases is critical for designing successful institutional reforms…

Perceptions of Research Burden and Retention Among Participants in ADRC Cohorts Open

Matthew J. Gabel, Rebecca M. Bollinger, Melissa Knox, Dean W. Coble, Joshua D. Grill , et al. · 2022

Objectives: Alzheimer disease (AD) and related dementias clinical research is associated with significant participant burden. The Perceived Research Burden Assessment (PeRBA) measures participants’ perceptions of logistical, psychological,…

Retaining Participants in Longitudinal Studies of Alzheimer’s Disease Open

Matthew J. Gabel, Rebecca M. Bollinger, Dean W. Coble, Joshua D. Grill, Dorothy Farrar Edwards , et al. · 2022

Background: Retention of study participants is essential to advancing Alzheimer’s disease (AD) research and developing therapeutic interventions. However, recent multi-year AD studies have lost 10% to 54% of participants. Objective: We sur…

The ideological divide in confidence in science and participation in medical research Open

Matthew J. Gabel, Jonathan Gooblar, Catherine M. Roe, John C. Morris · 2021

Perceived facilitators and barriers to continued enrollment in longitudinal studies of Alzheimer disease Open

Matthew J. Gabel, Dean W. Coble, Rebecca M. Bollinger, Dorothy Farrar Edwards, Jennifer Lingler , et al. · 2020

Background Retention of study participants is critical to the success of longitudinal studies of Alzheimer Disease (AD). A comprehensive understanding of the factors that influence retention requires knowledge of what motivates study parti…

Perceptions of research burden among participants in ADC cohorts Open

Jennifer H. Lingler, Dean W. Coble, Rebecca M. Bollinger, Dorothy Farrar Edwards, Matthew J. Gabel , et al. · 2020

Background The burden of participating in research on Alzheimer’s disease and related disorders (ADRD) has been described as extending beyond the direct risks associated with research procedures to encompass the overall hassle of getting t…

Roll-Call Vote Selection: Implications for the Study of Legislative Politics Open