Megan Dini
YOU?
Author Swipe
View article: Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers
Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers Open
Background: There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap. Objectives: To describ…
View article: Current Status of Integrated Palliative Care Among Parkinson Foundation Centers of Excellence in the United States
Current Status of Integrated Palliative Care Among Parkinson Foundation Centers of Excellence in the United States Open
These results demonstrate the emergence of structures and processes to provide PC to persons with PD at COEs. They also identify concrete opportunities to strengthen integration of PC through educational, quality improvement, and advocacy …
View article: Does a novel community-based outpatient palliative care intervention for Parkinson’s disease and related disorders improve care? Qualitative results from patients and care partners
Does a novel community-based outpatient palliative care intervention for Parkinson’s disease and related disorders improve care? Qualitative results from patients and care partners Open
Background: Palliative care has the potential to address significant unmet needs in people with Parkinson’s disease and related disorders, but models that rely on in-person specialty palliative care teams have limited scalability. Aim: To …
View article: Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease
Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease Open
Importance Parkinson disease and related disorders (PDRD) are the fastest growing neurodegenerative illness in terms of prevalence and mortality. As evidence builds to support palliative care (PC) for PDRD, studies are needed to guide impl…
View article: Reach of Palliative Care for Parkinson Disease
Reach of Palliative Care for Parkinson Disease Open
Although some elements of PC are currently being addressed in routine care for PWP, there are many gaps and opportunities for improvement. These data may facilitate focused attention and development of resources to improve the quality and …
View article: Between a Rock and a Hard Place: The Challenges of Caregiving During a Pandemic for Parkinson’s Family Care Partners
Between a Rock and a Hard Place: The Challenges of Caregiving During a Pandemic for Parkinson’s Family Care Partners Open
Aim: To understand Parkinson’s Disease (PD) care partners’ a) specific challenges that led to worsening strain and b) their suggestions for supports to help them during the ongoing pandemic. Method: Using a qualitative descriptive design, …
View article: Experience of Community Neurologists Providing Care for Patients With Neurodegenerative Illness During the COVID-19 Pandemic
Experience of Community Neurologists Providing Care for Patients With Neurodegenerative Illness During the COVID-19 Pandemic Open
ClinicalTrials.gov identifier: NCT03076671.
View article: Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives
Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives Open
Background: COVID-19 has impacted persons with serious illness, including those with chronic, neurodegenerative conditions. While there are several reports on COVID-19’s impact on inpatient palliative care, literature is limited about the …