Melody Hellsten
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View article: Positive impact of an inpatient early childhood literacy programme on literacy practices and family experience in a paediatric heart centre
Positive impact of an inpatient early childhood literacy programme on literacy practices and family experience in a paediatric heart centre Open
Objective: CHD predisposes children to neurodevelopmental delays. Frequent, prolonged hospitalisations during infancy prevent children with heart disease from participating in recommended language and cognitive development programmes, such…
View article: Differences in the Symptom Experience and Quality of Life of Children and Adolescents Undergoing Hematopoietic Stem Cell Transplantation Compared to Chimeric Antigen Receptor T-Cell Therapy
Differences in the Symptom Experience and Quality of Life of Children and Adolescents Undergoing Hematopoietic Stem Cell Transplantation Compared to Chimeric Antigen Receptor T-Cell Therapy Open
BackgroundAllogeneic hematopoietic stem cell transplantation (HSCT) and chimeric antigen receptor (CAR) T-cell therapy are therapeutic options for children with recurrent or refractory malignancies. High symptom burden and poor quality of …
View article: The Impact of Parent Distress on Symptoms and Quality of Life Experienced By Children Undergoing Hematopoietic Stem Cell Transplantation or Chimeric Antigen Receptor T-Cell Therapy: An Argument for Increased Parent Support
The Impact of Parent Distress on Symptoms and Quality of Life Experienced By Children Undergoing Hematopoietic Stem Cell Transplantation or Chimeric Antigen Receptor T-Cell Therapy: An Argument for Increased Parent Support Open
BackgroundHematopoietic stem cell transplantation (HSCT) and chimeric antigen receptor (CAR) T-cell therapy are potentially curative for children with life-threatening conditions but can result in a high symptom burden and poor quality of …
View article: Factors Influencing Family Burden in Pediatric Hematology/Oncology Encounters
Factors Influencing Family Burden in Pediatric Hematology/Oncology Encounters Open
These data establish theme categories for future study of caregiver-perceived burden in pediatric hematologic/oncologic encounters, demonstrate that certain components of cost contribute disproportionately to caregivers' overall sense of c…