Ian M. MacFarlane
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View article: Representation of skin tone: The use of medical imagery in the genetic counseling profession
Representation of skin tone: The use of medical imagery in the genetic counseling profession Open
The utilization of medical imagery featuring human bodies is a common practice in educational settings and patient interactions. However, these images predominantly depict white bodies and lighter skin tones, raising questions about their …
View article: An introduction to Delphi studies and consensus methods for genetic counselors
An introduction to Delphi studies and consensus methods for genetic counselors Open
Delphi studies, a type of consensus method, are instrumental in healthcare research for gathering expert perspectives, especially when conclusive evidence is not available. Developed in the 1950s, Delphi methodology is characterized by ano…
View article: Patient care practices for LGBTQ+ individuals in clinical genetics: A scoping review.
Patient care practices for LGBTQ+ individuals in clinical genetics: A scoping review. Open
Individuals who are LGBTQ+ (Lesbian, Gay, Bisexual, Transgender, Queer/Questioning, and/or have a sexual orientations and/or gender identity beyond cisheteronormative conceptions) face systemic barriers to healthcare, leading to significan…
View article: Genetic counseling program director competencies as proposed by the program leadership development subcommittee of the Genetic Counselor Educators Association
Genetic counseling program director competencies as proposed by the program leadership development subcommittee of the Genetic Counselor Educators Association Open
The growth and maintenance of a highly qualified genetic counselor workforce necessitates the cultivation of competent leaders of accredited genetic counseling graduate programs. This study aimed to identify essential competencies for Gene…
View article: Linking genetic counseling communication skills to patient outcomes and experiences using a community-engagement and provider-engagement approach: research protocol for the GC-PRO mixed methods sequential explanatory study
Linking genetic counseling communication skills to patient outcomes and experiences using a community-engagement and provider-engagement approach: research protocol for the GC-PRO mixed methods sequential explanatory study Open
Introduction In over 50 years since the genetic counseling (GC) profession began, a systematic study of GC communication skills and patient-reported outcomes in actual sessions across multiple clinical specialties has never been conducted.…
View article: Inconvenient sampling: Community‐engaged and restorative justice approaches to genetic counseling student research
Inconvenient sampling: Community‐engaged and restorative justice approaches to genetic counseling student research Open
Genetic counseling research requires a comprehensive approach since it frequently serves as the foundation for clinical care practice. Genetic counseling students play a pivotal role in advancing the profession, as they contribute a signif…
View article: Exploration of support for Black, Indigenous, and people of color students in genetic counseling programs
Exploration of support for Black, Indigenous, and people of color students in genetic counseling programs Open
Students in higher education who identify as Black, Indigenous, and people of color (BIPOC) experience racism, discrimination, and microaggressions through tokenization, hypervisibility, invisibility, and marginalization. The experiences o…
View article: Parental request for familial carrier testing in early childhood: The genetic counseling perspective
Parental request for familial carrier testing in early childhood: The genetic counseling perspective Open
Professional guidelines generally caution against carrier testing in minors, though prior research indicates parents request and providers sometimes facilitate testing for unaffected siblings of a child affected by a genetic disorder. We i…
View article: Promoting the integration of genetic counseling education and research across the spectrum of learners at a large academic institution
Promoting the integration of genetic counseling education and research across the spectrum of learners at a large academic institution Open
Genetic counselors are valuable members of research teams and are increasingly taking leadership roles in major research trials. While the field of genetic counseling has explored a doctoral degree several times, the terminal degree is sti…
View article: Genetic counselors' response types to prenatal patient deferring or attributing religious/spiritual statements: An exploratory study of <scp>US</scp> genetic counselors
Genetic counselors' response types to prenatal patient deferring or attributing religious/spiritual statements: An exploratory study of <span>US</span> genetic counselors Open
Research shows religiosity and spirituality (R/S) influence genetic counseling patients' and families' risk perception, decision‐making, and coping. No published studies have examined how genetic counselors respond to patient‐initiated R/S…
View article: Changes to the genetic counseling workforce as a result of the COVID‐19 pandemic
Changes to the genetic counseling workforce as a result of the COVID‐19 pandemic Open
The COVID‐19 pandemic has affected all aspects of our lives. The full impact of the pandemic is still unfolding and will take years to fully understand. This longitudinal study followed a sample of 189 genetic counselors from June to Novem…
View article: Genetic counselor experiences with telehealth before and after COVID‐19
Genetic counselor experiences with telehealth before and after COVID‐19 Open
While genetic counselor (GC) utilization of telehealth has increased in recent years, the onset of the COVID‐19 pandemic significantly accelerated the adoption of telehealth for many. We investigated GC experiences with telehealth includin…
View article: Advancing the genetic counseling profession through research: Identification of priorities by the National Society of Genetic Counselors research task force
Advancing the genetic counseling profession through research: Identification of priorities by the National Society of Genetic Counselors research task force Open
To help advance research critical to the achievement of the National Society of Genetic Counselors’ (NSGC) strategic objectives, coordination and prioritization of society resources are needed. NSGC convened a task force to advance researc…
View article: A Roadmap for Precision Medicine Research Recruitment: Empirical Assessment of the Public’s Willingness to Participate
A Roadmap for Precision Medicine Research Recruitment: Empirical Assessment of the Public’s Willingness to Participate Open
Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials…
View article: “If It Helps, It's Worth a Try”: an Investigation of Perceptions and Attitudes about Genetic Counseling among Southern Manitoba Hutterites
“If It Helps, It's Worth a Try”: an Investigation of Perceptions and Attitudes about Genetic Counseling among Southern Manitoba Hutterites Open
Few studies have explored the public's views of genetic counseling services, and even fewer focus on founder populations with high prevalence of genetic disease, such as Hutterites. The Hutterites are an Anabaptist religious group grounded…
View article: Characterizing Clinical Genetic Counselors’ Countertransference Experiences: an Exploratory Study
Characterizing Clinical Genetic Counselors’ Countertransference Experiences: an Exploratory Study Open
Countertransference (CT) refers to conscious and unconscious emotions, fantasies, behaviors, perceptions, and psychological defenses genetic counselors experience in response to any aspect of genetic counseling situations (Weil 2010 ). Som…
View article: Effects of Anxiety on Novice Genetic Counseling Students’ Experience of Supervised Clinical Rotations
Effects of Anxiety on Novice Genetic Counseling Students’ Experience of Supervised Clinical Rotations Open
Supervised clinical experiences with patients comprise a critical component of genetic counseling student education. Previous research has found genetic counseling students tend to be more anxiety prone than the general population, and anx…
View article: Genetic Counseling Supervisors’ Self‐Efficacy for Select Clinical Supervision Competencies
Genetic Counseling Supervisors’ Self‐Efficacy for Select Clinical Supervision Competencies Open
Supervision is a primary instructional vehicle for genetic counseling student clinical training. Approximately two‐thirds of genetic counselors report teaching and education roles, which include supervisory roles. Recently, Eubanks Higgins…