Mirjam A. G. Sprangers
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View article: Bidirectional Associations Between Physical Activity, Sedentary Behavior, and Daily Symptoms in Patients With Chronic Obstructive Pulmonary Disease: Longitudinal Observational Study
Bidirectional Associations Between Physical Activity, Sedentary Behavior, and Daily Symptoms in Patients With Chronic Obstructive Pulmonary Disease: Longitudinal Observational Study Open
Background Questionnaire-based symptom assessment may introduce recall bias and lacks bidirectional exploration. This is particularly relevant, given the unclear direction of the associations between physical activity (PA), sedentary time …
View article: IBD-specific Cognitive Behavioral Therapy: Sustainability of effect after three years
IBD-specific Cognitive Behavioral Therapy: Sustainability of effect after three years Open
Background and Aims ‘Inflammatory Bowel Disease (IBD)-specific-Cognitive-Behavioral Therapy’ (CBT) is effective in improving Quality of Life (QoL) and in decreasing anxiety and depression in IBD-patients with poor mental QoL, one month aft…
View article: Associated factors of fatigue in patients with COPD: results from the FAntasTIGUE study
Associated factors of fatigue in patients with COPD: results from the FAntasTIGUE study Open
Background Fatigue is present in about half of the patients with COPD. The associated factors of fatigue in COPD remain unclear and have not been studied in an integrated and holistic analysis. The aim of this study is to identify associat…
View article: Integration of experiences of contingency in patients with advanced cancer supported by a multimodal art approach
Integration of experiences of contingency in patients with advanced cancer supported by a multimodal art approach Open
To support patients with cancer in a palliative treatment phase with the integration of experiences of contingency into their life narrative, we developed a multi-modal approach: In Search of Stories (ISOS). ISOS consists of the following …
View article: Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy
Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy Open
The development of the first European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group (QLG) health-related quality of life (HRQoL) questionnaires contributed to the systematic uptake of HRQoL as an endpoint …
View article: Narrative meaning-making at the crossroads between life and death: a qualitative study into contemplating literary texts with advanced cancer patients.
Narrative meaning-making at the crossroads between life and death: a qualitative study into contemplating literary texts with advanced cancer patients. Open
View article: Quality of Life Among Patients With Locally Advanced Pancreatic Cancer: A Prospective Nationwide Multicenter Study
Quality of Life Among Patients With Locally Advanced Pancreatic Cancer: A Prospective Nationwide Multicenter Study Open
Background: Health care providers of patients with cancer should discuss the impact of treatment, such as multiagent chemotherapy and surgery, on quality of life (QoL). However, in the era of shared decision-making, data on QoL in locally …
View article: Beyond the current state of just-in-time adaptive interventions in mental health: a qualitative systematic review
Beyond the current state of just-in-time adaptive interventions in mental health: a qualitative systematic review Open
Background Just-In-Time Adaptive Interventions (JITAIs) are interventions designed to deliver timely tailored support by adjusting to changes in users' internal states and external contexts. To accomplish this, JITAIs often apply complex a…
View article: An international Phase IV field study - psychometric properties of the updated module on assessing quality of life of patients with breast cancer EORTC QLQ-BR42
An international Phase IV field study - psychometric properties of the updated module on assessing quality of life of patients with breast cancer EORTC QLQ-BR42 Open
View article: Longitudinal health-related quality of life in patients with pancreatic cancer stratified by treatment: a nationwide cohort study
Longitudinal health-related quality of life in patients with pancreatic cancer stratified by treatment: a nationwide cohort study Open
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View article: Response shift results of quantitative research using patient-reported outcome measures: a meta-regression analysis
Response shift results of quantitative research using patient-reported outcome measures: a meta-regression analysis Open
Purpose Our objectives were to identify characteristics of response shift studies using patient-reported outcomes (PROMs) that explain variability in (1) the detection and (2) the magnitude of response shift effects. Methods We conducted a…
View article: Reasons for fear of cancer recurrence after endoscopic treatment of T1 esophageal adenocarcinoma. A semi-structured interview study
Reasons for fear of cancer recurrence after endoscopic treatment of T1 esophageal adenocarcinoma. A semi-structured interview study Open
SUMMARY Prior research has shown that patients with early Barrett’s neoplasia treated endoscopically report at least the same level of fear for cancer recurrence as patients treated surgically for a more advanced disease stage. The aim of …
View article: Information Needs in Patients with Potentially Curable Gastroesophageal Cancer
Information Needs in Patients with Potentially Curable Gastroesophageal Cancer Open
Introduction: Gastroesophageal cancer patients’ information needs remain understudied, despite their complex treatment trajectories. Methods: This study examined the (i) information needs of patients with or without postoperative complicat…
View article: Correction: Gender differences in quality of life in coronary artery disease patients with comorbidities undergoing coronary revascularization
Correction: Gender differences in quality of life in coronary artery disease patients with comorbidities undergoing coronary revascularization Open
[This corrects the article DOI: 10.1371/journal.pone.0234543.].
View article: Postoperative quality of life and pain after upper hemisternotomy and conventional median sternotomy for aortic valve replacement: results of a randomized clinical trial
Postoperative quality of life and pain after upper hemisternotomy and conventional median sternotomy for aortic valve replacement: results of a randomized clinical trial Open
OBJECTIVES Surgical aortic valve replacement through conventional sternotomy yields excellent results. Minimally invasive techniques are deemed equally safe and serve as a viable and less traumatic alternative. However, it is unclear how b…
View article: Exploring resonance theory and uncontrollability during co‐creative art making: A qualitative study among cancer patients
Exploring resonance theory and uncontrollability during co‐creative art making: A qualitative study among cancer patients Open
Purpose Co‐creation, characterised by artists and patients creating a joint work of art, may support patients with the integration of life events, such as living with cancer, into their life story. In the process of co‐creation, resonance …
View article: Toward an improved conceptualization of emotions in patients with cancer
Toward an improved conceptualization of emotions in patients with cancer Open
Cancer and its associated treatment is a major stressor, leading to emotions such as anxiety or depressive mood. Human emotions have developed through the course of evolution because they facilitate adaptation to important events, such as …
View article: Network analysis used to investigate the interplay among somatic and psychological symptoms in patients with cancer and cancer survivors: a scoping review
Network analysis used to investigate the interplay among somatic and psychological symptoms in patients with cancer and cancer survivors: a scoping review Open
Purpose Patients with cancer often experience multiple somatic and psychological symptoms. Somatic and psychological symptoms are thought to be connected and may reinforce each other. Network analysis allows examination of the interconnect…
View article: The expression of ultimate life goals in co-creative art processes with palliative cancer patients
The expression of ultimate life goals in co-creative art processes with palliative cancer patients Open
Background Co-creation, characterized by artists and patients creating a joint work of art, may support patients with the integration of disruptive life events into their life story, such as living with cancer. Focusing on experiences of c…
View article: Minimally invasive versus open pancreatoduodenectomy for pancreatic and peri-ampullary neoplasm (DIPLOMA-2): study protocol for an international multicenter patient-blinded randomized controlled trial
Minimally invasive versus open pancreatoduodenectomy for pancreatic and peri-ampullary neoplasm (DIPLOMA-2): study protocol for an international multicenter patient-blinded randomized controlled trial Open
Background Minimally invasive pancreatoduodenectomy (MIPD) aims to reduce the negative impact of surgery as compared to open pancreatoduodenectomy (OPD) and is increasingly becoming part of clinical practice for selected patients worldwide…
View article: Response shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review
Response shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review Open
View article: Impact of Short-Course Palliative Radiation Therapy on Pancreatic Cancer-Related Pain: Prospective Phase 2 Nonrandomized PAINPANC Trial
Impact of Short-Course Palliative Radiation Therapy on Pancreatic Cancer-Related Pain: Prospective Phase 2 Nonrandomized PAINPANC Trial Open
Short-course palliative radiation therapy for pancreatic cancer-related pain was associated with rapid, clinically relevant reduction in pain severity, and clinically relevant improvement in global QoL, with mostly mild toxicity.
View article: Minimally invasive versus open pancreatoduodenectomy for pancreatic and peri-ampullary neoplasm (DIPLOMA-2): study protocol for an international multicenter patient-blinded randomized controlled trial
Minimally invasive versus open pancreatoduodenectomy for pancreatic and peri-ampullary neoplasm (DIPLOMA-2): study protocol for an international multicenter patient-blinded randomized controlled trial Open
Background Minimally invasive pancreatoduodenectomy (MIPD) aims to reduce the negative impact of surgery as compared to open pancreatoduodenectomy (OPD) and is increasingly becoming part of clinical practice for selected patients worldwide…
View article: The course of health-related quality of life in the first 2 years after a diagnosis of head and neck cancer: the role of personal, clinical, psychological, physical, social, lifestyle, disease-related, and biological factors
The course of health-related quality of life in the first 2 years after a diagnosis of head and neck cancer: the role of personal, clinical, psychological, physical, social, lifestyle, disease-related, and biological factors Open
View article: Late Toxicity and Health-Related Quality of Life Following Definitive Chemoradiotherapy for Esophageal Cancer: A Systematic Review and Meta-analysis
Late Toxicity and Health-Related Quality of Life Following Definitive Chemoradiotherapy for Esophageal Cancer: A Systematic Review and Meta-analysis Open
View article: Minimally important differences for interpreting EORTC QLQ-C30 change scores over time: A synthesis across 21 clinical trials involving nine different cancer types
Minimally important differences for interpreting EORTC QLQ-C30 change scores over time: A synthesis across 21 clinical trials involving nine different cancer types Open
View article: Co-creative art processes with cancer patients from the artists’ perspective: a qualitative study exploring resonance theory
Co-creative art processes with cancer patients from the artists’ perspective: a qualitative study exploring resonance theory Open
View article: Protocol for a qualitative metasynthesis on response shift.
Protocol for a qualitative metasynthesis on response shift. Open
Review question / Objective: The aim of this qualitative metasynthesis is to describe and synthesize qualitative response shift studies. We will: 1. describe the studies, including their methods, and 2. synthesize results about response sh…
View article: Implications of the syntheses on definition, theory, and methods conducted by the Response Shift – in Sync Working Group
Implications of the syntheses on definition, theory, and methods conducted by the Response Shift – in Sync Working Group Open
View article: Minimally Important Differences for Interpreting ORTC QLQ-C30 Change Scores Over Time: A Synthesis Across 21 Clinical Trials Involving Nine Different Cancer Types
Minimally Important Differences for Interpreting ORTC QLQ-C30 Change Scores Over Time: A Synthesis Across 21 Clinical Trials Involving Nine Different Cancer Types Open