Explanipedia

Postneonatal epilepsy after acute provoked neonatal seizures: Incidence, predictors, and clinical burden in a multicenter cohort followed through early childhood Open

Adam L. Numis, Hannah C. Glass, Janet S. Soul, Courtney J. Wusthoff, Shavonne L. Massey , et al. · 2025

Objective Epilepsy is a known potential outcome following acute provoked neonatal seizures, but its onset, treatment patterns, and health care utilization through childhood remain poorly characterized. This study aimed to define the incide…

Correction: Communicating neurological prognosis in the prenatal period: a narrative review and practice guidelines Open

Natalie K Field, Charu Venkatesan, Dawn Gano, Sonika Agarwal, Kathleen A. Young , et al. · 2025

Parental experience of having a child with hypoxic ischaemic encephalopathy: a qualitative study Open

Alexandra Bache, Alastair Sutcliffe, Monica E. Lemmon, Carrie Williams, Chris Gale , et al. · 2025

Objective To explore hypoxic ischaemic encephalopathy (HIE) families’ experiences of care in the NHS and the impact of HIE on families. Design Geographically maximum variation sampled semi-structured interviews (n=28) were conducted with p…

Parent and Family Well-Being and Associated Risk Factors as Children with Neonatal Seizures Reach Preschool and School-Age: A Longitudinal Cohort Study Open

Linda S. Franck, Monica E. Lemmon, Lisa Grossbauer, Kamil Pawlowski, Julie Sturza , et al. · 2025

Fetal intracerebral hemorrhage: review of the literature and practice considerations Open

Mary Dunbar, Sonika Agarwal, Charu Venkatesan, Brigitte Vollmer, Barbara Scelsa , et al. · 2025

Fetal intracerebral hemorrhage is increasingly recognized on prenatal imaging. In this review, we discuss clinically relevant aspects of fetal intracerebral hemorrhage, including germinal matrix-intraventricular hemorrhage, as well as intr…

Fetal malformations of cortical development: review and clinical guidance Open

Jeffrey B. Russ, Sonika Agarwal, Charu Venkatesan, Barbara Scelsa, Brigitte Vollmer , et al. · 2025

Malformations of cortical development (MCDs) are a heterogeneous family of congenital brain malformations that originate from disturbed development of the cerebral cortex. MCDs can arise from primary genetic disorders that lead to dysfunct…

“Trying to Grab Pieces of Hope”: Exploring the Experiences of Black and Hispanic Parents following a Congenital Heart Disease Diagnosis Open

Sharla Rent, Kenneth S. Poon, Meredith Sooy-Mossey, M. Weeks, James C. Roberts , et al. · 2025

Objective Congenital heart disease (CHD) is an important contributor to pediatric morbidity and mortality. Unfortunately, disparities in the diagnosis and treatment of CHD exist across racial and ethnic groups. The objective of this study …

Preferred Parental Language and Neurodevelopmental Outcomes Among Infants With Acute Provoked Neonatal Seizures in the United States Open

Greta Solinap Peng, Karin Halsey, Courtney J. Wusthoff, Catherine J. Chu, Shavonne L. Massey , et al. · 2024

Children with parental NELP were more likely to have functional developmental impairment at age 24 months when compared with children without parental NELP. Since parental NELP does not have a biologically plausible impact on neurodevelopm…

Perinatal palliative care in low- and middle-income countries: a scoping review Open

Sharla Rent, Daniela Titchiner, Erin Rholl, Allison N. J. Lyle, Ellen Diego , et al. · 2024

Global perinatal palliative care strategies must encompass compassionate communication with families, psychosocial support after stillbirth or neonatal death, and emotional and mental health support for healthcare workers who provide perin…

Neuromonitoring practices for neonates with congenital heart disease: a scoping review Open

Andrea C. Pardo, Melisa Carrasco, Pia Wintermark, Denise Nunes, Valerie Y. Chock , et al. · 2024

Neonates with congenital heart disease (CHD) are at risk for adverse neurodevelopmental outcomes. This scoping review summarizes neuromonitoring methods in neonates with CHD. We identified 84 studies investigating the use of near-infrared …

Perinatal loss in Tanzania: Perspectives of maternal-child healthcare providers Open

Sharla Rent, Raziya Gaffur, Getrude Nkini, Enna Sengoka, Pendo Mlay , et al. · 2024

Over 98% of stillbirths and neonatal deaths occur in Low- and Middle-Income Countries, such as Tanzania. Despite the profound burden of perinatal loss in these regions, access to facility or community-based palliative and psychosocial care…

Education Research: Introduction of a Standardized Communication Card to Facilitate Patient-as-Teacher Training for Medical Students in the Neurology Clerkship Open

Carmen Priego-Pérez, Punthitra Arpornsuksant, Rachel Marie E. Salas, Charlene E. Gamaldo, Monica E. Lemmon , et al. · 2024

Overall, students' reflections after patient conversations were very positive. Future work should consider studying the impact of this communication tool on patients' perspectives and determine whether they align with the student's percept…

Measuring Clinical Benefit in Neonatal Randomized Clinical Trials: Challenges and Opportunities Open

An N. Massaro, Beth Boyer, Mira Gill, Dure Kim, Matthew M. Laughon , et al. · 2024

Neonatal Seizures and Associated Neurobehavioral Profiles in Preschool Age Children Open

Allyssa M. Mattes, Reneé A. Shellhaas, Hannah C. Glass, Julie Sturza, Stephanie Rau , et al. · 2024

Preferred Parental Language and Neurodevelopmental Outcomes Among Infants with Acute Provoked Neonatal Seizures in the United States Open

Greta Solinap Peng, Karin Halsey, Courtney J. Wustoff, Catherine J. Chu, Shavonne L. Massey , et al. · 2024

Neuroprotective therapies in the NICU in preterm infants: present and future (Neonatal Neurocritical Care Series) Open

Eleanor J. Molloy, Mohamed El‐Dib, Janet S. Soul, Sandra E. Juul, Alistair J. Gunn , et al. · 2023

Prognostic Discordance Among Parents and Physicians Caring for Infants with Neurologic Conditions Open

Sarah Bernstein, Mary Carol Barks, Peter A. Ubel, Kevin P. Weinfurt, Margaret H. Barlet , et al. · 2023

Proceedings of the 14<sup>th</sup> International Newborn Brain Conference: Fetal and/or neonatal brain development, both normal and abnormal Open

Khadar Abdi, Eleri Adams, Sonika Agarwal, Mehmet Ali Ergün, Talal Altamimi , et al. · 2023

INTRODUCTION:The early brain damage of the premature has been correlated to several risk factors and among them the histological chorioamnionitis (HC).However, the study of the placenta is not systematically performed in the underdeveloped…

Life on the Frontlines: Caregiver Experience of Pediatric Cerebrospinal Shunt Malfunction Open

Rebecca A. Dorner, Renee D. Boss, Turaj Vazifedan, Erin Johnson, Amanda Garzón , et al. · 2023

Neonatal brain MRI and short-term outcomes after acute provoked seizures Open

Yi Li, Aaron Scheffler, A. James Barkovich, Taeun Chang, Catherine J. Chu , et al. · 2023

Objective We investigated how diagnosis and injury location on neonatal brain MRI following onset of acute provoked seizures was associated with short term outcome. Study design A multicenter cohort of neonates with acute provoked seizures…

Supporting Disclosure of Unmet Mental Health Needs among Parents of Critically Ill Infants Open

Simran Bansal, Rheaya Willis, Mary Carol Barks, Kathryn I. Pollak, Debra Brandon , et al. · 2023

Defining Outcomes that Matter Most to Parents: Challenging and Important Work Open

Monica E. Lemmon, Bryce B. Reeve · 2023

More Than a Headache: Lived Experience of Migraine in Youth Open

Madison Canfora, Isabella K. Pallotto, J. Kelly Davis, Samantha Farley, Matthew J. Khayata , et al. · 2023

A question prompt list for sudden unexpected death in epilepsy Open

Simran Bansal, Isabella K. Pallotto, Reneé A. Shellhaas, Gardiner Lapham, Thomas H. Stanton , et al. · 2023

Sudden unexpected death in epilepsy (SUDEP) is a common cause of premature mortality in people with epilepsy.1 Professional guidelines and existing data from caregivers of children with epilepsy support SUDEP risk disclosure in the clinica…

Neurological conditions: Prognostic communication, shared decision making, and symptom management Open

Dana Peralta, Jori F. Bogetz, Monica E. Lemmon · 2023

Affirming Perspectives About Quality-of-Life With Caregivers of Children With Severe Neurological Impairment Open

Jori F. Bogetz, Monica E. Lemmon · 2023

Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation Open

Reneé A. Shellhaas, Monica E. Lemmon, Brian N. Gosselin, Julie Sturza, Linda S. Franck , et al. · 2023

Communication about sudden unexpected death in epilepsy: Understanding the caregiver perspective Open

Isabella K. Pallotto, Reneé A. Shellhaas, Kayli Maney, Madelyn Milazzo, Zachary M. Grinspan , et al. · 2023

Objective We aimed to characterize (1) the caregiver experience of learning about sudden unexpected death in epilepsy (SUDEP), and (2) caregiver preferences for SUDEP risk disclosure. Methods We distributed a 24‐question survey to caregive…

Symptoms of Cerebrospinal Shunt Malfunction in Young Children: A National Caregiver Survey Open

Rebecca A. Dorner, Monica E. Lemmon, Turaj Vazifedan, Erin Johnson, Renee D. Boss · 2023

Objective: This study aimed to describe shunt malfunction symptoms in children ≤5 years old. Results: In a national survey of 228 caregivers, vomiting (23.1%), irritability (20.8%), and sleepiness (17.2%) were the most frequent symptoms of…

Neonatal Brain MRI and Short-Term Outcomes after Acute Provoked Seizures Open

Yi Li, Aaron Scheffler, A. James Barkovich, Catherine J. Chu, Shavonne L. Massey , et al. · 2023

Monica E. Lemmon YOU? Author Swipe