Monica Muraca
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View article: Barriers and facilitators associated with long-term follow-up care for childhood, adolescent, and young adult cancer survivors: a systematic review
Barriers and facilitators associated with long-term follow-up care for childhood, adolescent, and young adult cancer survivors: a systematic review Open
View article: The e-QuoL project: enhancing long-term follow-up care for childhood cancer survivors through digital innovation, results of an exploratory questionnaire
The e-QuoL project: enhancing long-term follow-up care for childhood cancer survivors through digital innovation, results of an exploratory questionnaire Open
By developing and implementing comprehensive digital tools, a more personalized, holistic, and effective model of survivorship care can be achieved.
View article: Persistent Cytopenia After Cancer Treatment Reveals Underlying Inborn Errors of Immunity in Childhood Cancer Survivors: A Monocentric Italian Case Series
Persistent Cytopenia After Cancer Treatment Reveals Underlying Inborn Errors of Immunity in Childhood Cancer Survivors: A Monocentric Italian Case Series Open
Background Inborn errors of immunity (IEI) are often associated with higher cancer risks, especially lymphoma, and genetic predispositions underlie many hematologic malignancies. Cytopenias following cancer treatment may occur sporadically…
View article: Timing of Renal Transplant in Survivor Children with Relapse of Wilms Tumor: A Case Series Study
Timing of Renal Transplant in Survivor Children with Relapse of Wilms Tumor: A Case Series Study Open
Introduction: Children with Wilms tumor can rarely experience late relapse of disease. Sometimes bilateral nephrectomy is necessary; as a consequence, the patient needs hemodialysis while waiting for renal transplantation. The waiting time…
View article: Digital Solutions for Cancer Survivorship: European Survey Results on the Needs and Specifications for Long-Term Follow-Up Tools - e-QuoL project
Digital Solutions for Cancer Survivorship: European Survey Results on the Needs and Specifications for Long-Term Follow-Up Tools - e-QuoL project Open
View article: Multiple Tumors in a Patient with Interleukin-2-Inducible T-Cell Kinase Deficiency: A Case Report
Multiple Tumors in a Patient with Interleukin-2-Inducible T-Cell Kinase Deficiency: A Case Report Open
Immune dysregulation in Inborn Errors of Immunity (IEI) shows a broad phenotype, including autoimmune disorders, benign lymphoproliferation, and malignancies, driven by an increasing number of implicated genes. Recent findings suggest that…
View article: Healthcare providers' expected barriers and facilitators to the implementation of person‐centered long‐term follow‐up care for childhood cancer survivors: A <scp>PanCareFollowUp</scp> study
Healthcare providers' expected barriers and facilitators to the implementation of person‐centered long‐term follow‐up care for childhood cancer survivors: A <span>PanCareFollowUp</span> study Open
Background Childhood cancer survivors face high risks of adverse late health effects. Long‐term follow‐up care for childhood cancer survivors is crucial to improve their health and quality of life. However, implementation remains a challen…
View article: Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results
Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results Open
The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR…
View article: Childhood Cancer Survivorship Passport Challenges in the European Health Data Space
Childhood Cancer Survivorship Passport Challenges in the European Health Data Space Open
Innovation in cancer therapy has increased childhood cancer survival rates. However, survivors are still at risk of developing late effects. In the digital transformation of the health sector, the Survivorship Passport (SurPass) can suppor…
View article: Nerve Sheath Myxoma in Pregnancy: A Case Report
Nerve Sheath Myxoma in Pregnancy: A Case Report Open
Nerve sheath myxoma (NSM) is a rare benign peripheral nerve sheath tumor that affects young adults. NSMs are asymptomatic, slow-growing swellings located in the upper extremities, more rarely in the lower extremities. Given the high risk o…
View article: Barriers, facilitators, and other factors associated with health behaviors in childhood, adolescent, and young adult cancer survivors: A systematic review
Barriers, facilitators, and other factors associated with health behaviors in childhood, adolescent, and young adult cancer survivors: A systematic review Open
Background Healthy behaviors are paramount in preventing long‐term adverse health outcomes in childhood, adolescent, and young adult (CAYA) cancer survivors. We systematically reviewed and synthesized existing literature on barriers, facil…
View article: From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors
From long-term follow-up Recommendations for clinical practice to plain language summaries for childhood, adolescent, and young adult cancer survivors Open
Background: Having sufficient knowledge of cancer diagnosis, treatment and late effects in survivors of childhood, adolescent, and young adult (CAYA) cancer is important for effective self-management and optimising health outcomes. Therefo…
View article: Interindividual variation in ovarian reserve after gonadotoxic treatment in female childhood cancer survivors – a genome-wide association study: results from PanCareLIFE
Interindividual variation in ovarian reserve after gonadotoxic treatment in female childhood cancer survivors – a genome-wide association study: results from PanCareLIFE Open
View article: IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey Open
Background To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semiau…
View article: Scaling up and implementing the digital Survivorship Passport tool in routine clinical care – The European multidisciplinary PanCareSurPass project
Scaling up and implementing the digital Survivorship Passport tool in routine clinical care – The European multidisciplinary PanCareSurPass project Open
View article: Correction: Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study
Correction: Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study Open
View article: Twinning to reduce research and innovation inequalities in paediatric solid tumours across Europe
Twinning to reduce research and innovation inequalities in paediatric solid tumours across Europe Open
Inequalities in research and innovations affect childhood cancer survival across Europe. Vilnius University Hospital Santaros Klinikos (VULSK, the coordinator) and eight research-intensive institutions from seven European countries impleme…
View article: European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline
European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline Open
View article: Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study
Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study Open
View article: Current practices of follow-up programs for childhood cancer survivors in Italy
Current practices of follow-up programs for childhood cancer survivors in Italy Open
Introduction Quality of life in childhood cancer survivors is largely affected by survivorship care and transition from treatment to long-term follow-up (LTFU). Referring to evidence-based recommendations, we wanted to evaluate LTFU care f…
View article: IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey (Preprint)
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey (Preprint) Open
BACKGROUND To overcome knowledge gaps and optimize long-term follow-up (LTFU) care for childhood cancer survivors, the concept of the Survivorship Passport (SurPass) has been invented. Within the European PanCareSurPass project, the semia…
View article: Perceived barriers and facilitators to health behaviors in European childhood cancer survivors: A qualitative <scp>PanCareFollowUp</scp> study
Perceived barriers and facilitators to health behaviors in European childhood cancer survivors: A qualitative <span>PanCareFollowUp</span> study Open
Background Healthy behaviors, that is, engaging in regular physical activities, maintaining a healthy diet, limiting alcohol consumption, and avoiding tobacco and drug use, decrease the risk of developing late adverse health conditions in …
View article: Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study
Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study Open
View article: Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol
Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol Open
Introduction: Long-term survival after childhood cancer often comes at the expense of late, adverse health conditions. However, survivorship care is frequently not available for adult survivors in Europe. The PanCareFollowUp Consortium the…
View article: Healthcare professionals' perceived barriers and facilitators of health behavior support provision: A qualitative study
Healthcare professionals' perceived barriers and facilitators of health behavior support provision: A qualitative study Open
Background Childhood cancer survivors (CCSs) have an increased risk of developing chronic health conditions. Evidence suggests that poor health behaviors further increase health risks. Healthcare professionals (HCPs) involved in survivorsh…
View article: Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol
Evaluating the feasibility, effectiveness and costs of implementing person-centred follow-up care for childhood cancer survivors in four European countries: the PanCareFollowUp Care prospective cohort study protocol Open
Introduction Long-term survival after childhood cancer often comes at the expense of late, adverse health conditions. However, survivorship care is frequently not available for adult survivors in Europe. The PanCareFollowUp Consortium ther…
View article: Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns Open
Purpose: Long-term follow-up (LTFU) care is essential to optimise health outcomes in childhood cancer survivors (CCS). We aimed to assess the impact of the COVID-19 pandemic on LTFU services and providers. Methods: A COVID-19 working group…
View article: Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns Open
View article: The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer
The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer Open
View article: Identification of Biochemical and Molecular Markers of Early Aging in Childhood Cancer Survivors
Identification of Biochemical and Molecular Markers of Early Aging in Childhood Cancer Survivors Open
Survival rates of childhood cancer patients have improved over the past four decades, although cancer treatments increase the risk of developing chronic diseases typical of aging. Thus, we aimed to identify molecular/metabolic cellular alt…