Nadia Corsini
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View article: ‘Living Well With a <scp>PICC</scp> at Home’: Co‐Design and Evaluation of a Peripherally Inserted Central Catheter ( <scp>PICC</scp> ) Booklet
‘Living Well With a <span>PICC</span> at Home’: Co‐Design and Evaluation of a Peripherally Inserted Central Catheter ( <span>PICC</span> ) Booklet Open
Aim To co‐design an information booklet to support adults living with a peripherally inserted central catheter (PICC) at home. Design A sequential, mixed‐method approach using Boyd's co‐design framework. Method A diverse project team led c…
View article: The South Australian 177Lu-DOTATATE peptide receptor radionuclide therapy service: an 11-year review of toxicity, health-related quality of life, and survival
The South Australian 177Lu-DOTATATE peptide receptor radionuclide therapy service: an 11-year review of toxicity, health-related quality of life, and survival Open
Background: The aim of this study was to audit clinical and patient-reported outcomes of patients treated with [177Lu]-DOTA-octreotate (177Lu-DOTATATE) at a single Australian centre over an 11-year period. Methods: A retrospective analysis…
View article: Mental health of Australian frontline nurses during the COVID-19 pandemic: Results of a large national survey
Mental health of Australian frontline nurses during the COVID-19 pandemic: Results of a large national survey Open
This paper investigates the effects of work demands on burnout indices of emotional exhaustion, depersonalization and personal accomplishment, and mental health indices of anxiety, depression and stress, among Australian nurses and midwive…
View article: Credit where it’s due: Recognising lived experience in research authorship
Credit where it’s due: Recognising lived experience in research authorship Open
View article: A project co-created with the community to mitigate loneliness in midlife women
A project co-created with the community to mitigate loneliness in midlife women Open
This paper describes how a team of researchers, policy stakeholders and community members came together to co-create prevention-oriented and community-informed solutions to address loneliness in women—The Loneliness Project. Our aim is to …
View article: ‘Just Google it’—A scoping review of online mental health resources for survivors of breast cancer
‘Just Google it’—A scoping review of online mental health resources for survivors of breast cancer Open
Objective As the Internet is a ubiquitous resource for information, we aimed to replicate a patient's Google search to identify and assess the quality of online mental health/wellbeing materials available to support women living with or be…
View article: Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis
Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis Open
View article: Development of consensus-based considerations for use of adult proxy reporting: an ISOQOL task force initiative
Development of consensus-based considerations for use of adult proxy reporting: an ISOQOL task force initiative Open
View article: Community-based Intravenous Treatment and Central Venous Access Devices: A Scoping Review of the Consumer and Caregiver Experience, Information Preferences, and Supportive Care Needs
Community-based Intravenous Treatment and Central Venous Access Devices: A Scoping Review of the Consumer and Caregiver Experience, Information Preferences, and Supportive Care Needs Open
Some consumers and caregivers may require additional support while undergoing community-based intravenous treatment.
View article: The association of circadian parameters and the clustering of fatigue, depression, and sleep problems in breast cancer survivors: a latent class analysis
The association of circadian parameters and the clustering of fatigue, depression, and sleep problems in breast cancer survivors: a latent class analysis Open
View article: Challenges and opportunities for using population health data to investigate cancer survivors’ quality of life in Australia
Challenges and opportunities for using population health data to investigate cancer survivors’ quality of life in Australia Open
View article: Stopping the Spread? Enhancing Legal Frameworks for the Protection of Personal Information in the Context of COVID-19 Contact Tracing
Stopping the Spread? Enhancing Legal Frameworks for the Protection of Personal Information in the Context of COVID-19 Contact Tracing Open
Personal privacy versus public safety is a rights trade-off that has been brought into sharp focus by the COVID-19 pandemic, with flow-on implications for the success of contract tracing regimes implemented across Australia. These contact …
View article: ‘Food for Thought’—The Relationship between Diet and Cognition in Breast and Colorectal Cancer Survivors: A Feasibility Study
‘Food for Thought’—The Relationship between Diet and Cognition in Breast and Colorectal Cancer Survivors: A Feasibility Study Open
Survivors of cancer frequently experience persistent and troublesome cognitive changes. Little is known about the role diet and nutrition plays in survivors’ cognition. We explored the feasibility of collecting cross-sectional online data …
View article: The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force
The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force Open
View article: Review_Figshare_File.xlsx
Review_Figshare_File.xlsx Open
This contains information about the studies included in a review where the search took place in 2018.
View article: Measuring psychosocial outcomes of men living with prostate cancer: feasibility of regular assessment of patient‐reported outcomes
Measuring psychosocial outcomes of men living with prostate cancer: feasibility of regular assessment of patient‐reported outcomes Open
Objective To trial collecting patient‐reported outcome measures (PROMs) to assess psychosocial outcomes in men with prostate cancer (PC). Methods A cross‐sectional postal survey was sent to three groups of 160 men with PC (6, 12 and 24 mon…
View article: Core outcome sets in cancer and their approaches to identifying and selecting patient-reported outcome measures: a systematic review
Core outcome sets in cancer and their approaches to identifying and selecting patient-reported outcome measures: a systematic review Open
View article: A core set of patient-reported outcomes for population-based cancer survivorship research: a consensus study
A core set of patient-reported outcomes for population-based cancer survivorship research: a consensus study Open
View article: Cancer control plans
Cancer control plans Open
This review, commissioned by the NSW Cancer Institute, highlights key trends and common elements of cancer control plans from Australia and countries with health systems similar to NSW. It will be used as the basis for a discussion paper i…
View article: Accuracy and acceptability of survivorship care plans: results of a pilot study
Accuracy and acceptability of survivorship care plans: results of a pilot study Open
Survivorship treatment summaries and care plans are increasingly incorporated into cancer care but there are limited data on their accuracy and acceptability. We have evaluated written care plans developed as part of a once‐off, nurse‐led …
View article: A quality improvement pilot to initiate treatment summaries and survivorship care plans in oncology services in South Australia
A quality improvement pilot to initiate treatment summaries and survivorship care plans in oncology services in South Australia Open
Aim:
\nTo review, test and refine standardised tools for nurses to initiate treatment summaries and care plans, and identify barriers and enablers to providing them. Background:
\nThis paper reports on a pilot study informed by the develop…
View article: Correction to: Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out
Correction to: Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out Open
The original version of the article contains a mistake in figure 2 labeling.
View article: Development of a Core Set of Patient-Reported Outcomes for Population-Based Cancer Survivorship Research: Protocol for an Australian Consensus Study
Development of a Core Set of Patient-Reported Outcomes for Population-Based Cancer Survivorship Research: Protocol for an Australian Consensus Study Open
Background Core outcome sets seek to improve the consistency and quality of research by providing agreed-upon recommendations regarding what outcomes should be measured as a minimum for a population and setting. The problems arising from a…
View article: Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out
Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out Open
View article: Development of a Core Set of Patient-Reported Outcomes for Population-Based Cancer Survivorship Research: Protocol for an Australian Consensus Study (Preprint)
Development of a Core Set of Patient-Reported Outcomes for Population-Based Cancer Survivorship Research: Protocol for an Australian Consensus Study (Preprint) Open
BACKGROUND Core outcome sets seek to improve the consistency and quality of research by providing agreed-upon recommendations regarding what outcomes should be measured as a minimum for a population and setting. The problems arising from …
View article: Challenges to uptake of cancer education resources 
by rural Aboriginal Health Workers: the Cancer 
Healing Messages flipchart experience
Challenges to uptake of cancer education resources
by rural Aboriginal Health Workers: the Cancer
Healing Messages flipchart experience Open
The Cancer Healing Messages flipchart and patient flyer are perceived as appropriate, valuable, and useful tools for AHWs. A long-term strategy and clear implementation plan involving education, training and promotion of the materials, is …