Nadia Luca
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View article: A Scoping Review of Approaches to Treat Juvenile Idiopathic Arthritis Symptoms to Inform the Expanded Version of the JIA Option Map
A Scoping Review of Approaches to Treat Juvenile Idiopathic Arthritis Symptoms to Inform the Expanded Version of the JIA Option Map Open
Objectives Young people with juvenile idiopathic arthritis (JIA) experience physical and psychological symptoms that negatively impact functional activities. Our team previously developed the JIA Option Map, a web-based patient decision ai…
View article: Rapid Review of Transition Outcomes in Youth with Rheumatic Diseases
Rapid Review of Transition Outcomes in Youth with Rheumatic Diseases Open
Objectives The transition from pediatric to adult healthcare for adolescents with chronic rheumatic diseases is associated with an increased risk of experiencing gaps in care and adverse health outcomes. Despite advancements in structured …
View article: Assessing the impact of the iPeer2Peer program for adolescents with juvenile idiopathic arthritis: a mixed-methods randomized controlled trial
Assessing the impact of the iPeer2Peer program for adolescents with juvenile idiopathic arthritis: a mixed-methods randomized controlled trial Open
Background Juvenile Idiopathic Arthritis (JIA) is a chronic pediatric illness, whereby youth experience physical, emotional and psychosocial challenges that result in reduced health related quality of life (HRQL). Peer mentoring has been s…
View article: Non-invasive biomarkers of disease activity and organ damage in ANCA-associated vasculitis: a systematic review
Non-invasive biomarkers of disease activity and organ damage in ANCA-associated vasculitis: a systematic review Open
Background In anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV), histopathological assessment of affected tissue is often necessary for diagnosis and assessment of disease extent. There is a requirement for validated …
View article: Investigating the Influence of Patient Eligibility Characteristics on the Number of Deferrable Rheumatologist Visits: Planning for a Patient-Initiated Follow-Up Strategy
Investigating the Influence of Patient Eligibility Characteristics on the Number of Deferrable Rheumatologist Visits: Planning for a Patient-Initiated Follow-Up Strategy Open
Objective Patient-initiated follow-up (PIFU) for rheumatoid arthritis (RA) is a model of care delivery wherein patients contact the clinic when needed instead of having regularly scheduled follow-up. Our objective was to investigate the in…
View article: A decade of progress in juvenile idiopathic arthritis treatments and outcomes in Canada: results from ReACCh-Out and the CAPRI registry
A decade of progress in juvenile idiopathic arthritis treatments and outcomes in Canada: results from ReACCh-Out and the CAPRI registry Open
Objective To assess changes in juvenile idiopathic arthritis (JIA) treatments and outcomes in Canada, comparing 2005–2010 and 2017–2021 inception cohorts. Methods Patients enrolled within three months of diagnosis in the Research in Arthri…
View article: Predictors of persisting pain in children with Juvenile Idiopathic Arthritis: a case control study nested in the ReACCh-Out cohort
Predictors of persisting pain in children with Juvenile Idiopathic Arthritis: a case control study nested in the ReACCh-Out cohort Open
Background To identify baseline predictors of persisting pain in children with Juvenile Idiopathic Arthritis (JIA), relative to patients with JIA who had similar baseline levels of pain but in whom the pain did not persist. Methods We used…
View article: Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives
Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives Open
Background Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare pediatric conditions often associated with severe morbidities. Delays in diagnosis are common, increasing the risk for permanent damage and worse outcomes…
View article: Distinct phenotypes of multisystem inflammatory syndrome in children: a cohort study
Distinct phenotypes of multisystem inflammatory syndrome in children: a cohort study Open
View article: Barriers to Care in Juvenile Localized and Systemic Scleroderma: An Exploratory Survey Study of Caregivers’ Perspectives
Barriers to Care in Juvenile Localized and Systemic Scleroderma: An Exploratory Survey Study of Caregivers’ Perspectives Open
Background:Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare pediatric conditions often associated with severe morbidities. Delays in diagnosis are common, increasing the risk for permanent damage and worse outcomes…
View article: Acceptability of an Adolescent <scp>Self‐Management</scp> Program for Juvenile Idiopathic Arthritis
Acceptability of an Adolescent <span>Self‐Management</span> Program for Juvenile Idiopathic Arthritis Open
Objective The study objective was to test the acceptability of a self‐management program (SMP) for adolescents with juvenile idiopathic arthritis (JIA) focused on disease information, self‐management, and social support needs. Methods This…
View article: Impact of the COVID-19 pandemic on juvenile idiopathic arthritis presentation and research recruitment: results from the CAPRI registry
Impact of the COVID-19 pandemic on juvenile idiopathic arthritis presentation and research recruitment: results from the CAPRI registry Open
Objective The COVID-19 pandemic has disrupted healthcare delivery and clinical research worldwide, with data from areas most affected demonstrating an impact on rheumatology care. This study aimed to characterize the impact of the pandemic…
View article: Management of pediatric generalized pustular psoriasis using biologics: An evidence-based review
Management of pediatric generalized pustular psoriasis using biologics: An evidence-based review Open
View article: Evaluation of Real-World Healthcare Resource Utilization and Associated Costs in Children with Juvenile Idiopathic Arthritis: A Canadian Retrospective Cohort Study
Evaluation of Real-World Healthcare Resource Utilization and Associated Costs in Children with Juvenile Idiopathic Arthritis: A Canadian Retrospective Cohort Study Open
View article: Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis
Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis Open
View article: National Priorities for High-quality Rheumatology Transition Care for Youth in Canada
National Priorities for High-quality Rheumatology Transition Care for Youth in Canada Open
Objective. To conduct a needs assessment and environmental scan to support optimal transition from pediatric to adult rheumatology care in Canada. Methods. This initiative involved 3 phases: (1) a survey-based needs assessment of adult and…
View article: Cerebellar Atrophy in Craniofacial Morphea: A Report of 2 Cases with 1-year Neuroimaging Followup
Cerebellar Atrophy in Craniofacial Morphea: A Report of 2 Cases with 1-year Neuroimaging Followup Open
To the Editor: Brain magnetic resonance imaging (MRI) findings in craniofacial morphea including en coup de sabre (ECDS) localized scleroderma and Parry-Romberg syndrome (PRS; progressive facial hemiatrophy) are not unusual1, but the relev…
View article: Patient factors associated with waiting time to pediatric rheumatologist consultation for patients with juvenile idiopathic arthritis
Patient factors associated with waiting time to pediatric rheumatologist consultation for patients with juvenile idiopathic arthritis Open
View article: Patient‐Reported Barriers at School for Children with Juvenile Idiopathic Arthritis
Patient‐Reported Barriers at School for Children with Juvenile Idiopathic Arthritis Open
Objective The objective of this study was to identify patient‐reported school barriers and their associated impact in juvenile idiopathic arthritis ( JIA ). Methods A cross‐sectional observational study of children aged 8 to 17, diagnosed …
View article: Management of Juvenile Idiopathic Arthritis 2015: A Position Statement from the Pediatric Committee of the Canadian Rheumatology Association
Management of Juvenile Idiopathic Arthritis 2015: A Position Statement from the Pediatric Committee of the Canadian Rheumatology Association Open
The medical management of juvenile idiopathic arthritis (JIA) and its complications has undergone significant changes in the last decade, a result largely of the introduction of biologics and increased availability of expertise in the diag…
View article: The iPeer2Peer Program: a pilot randomized controlled trial in adolescents with Juvenile Idiopathic Arthritis
The iPeer2Peer Program: a pilot randomized controlled trial in adolescents with Juvenile Idiopathic Arthritis Open
View article: (528) Development and usability testing of an iPad and desktop psycho-educational game for children with Juvenile Idiopathic Arthritis and their parents
(528) Development and usability testing of an iPad and desktop psycho-educational game for children with Juvenile Idiopathic Arthritis and their parents Open
View article: Case 1: A six-year-old boy with finger contractures
Case 1: A six-year-old boy with finger contractures Open
A six-year-old boy with finger contracturesA six-year-old boy of Chinese descent presents with a six- month history of finger contractures of the right third and fourth digits.His teacher first noticed his inability to lay his right palm f…