Niki Jurbergs
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View article: Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience
Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience Open
Given the understandable patient and caregiver distress that often fluctuates across treatment, especially at diagnosis and with major disease milestones, it is important to prioritize interventions that are known to best support families …
View article: Integrated Psychological Services in Pediatric Oncology: Caregiver Perspectives at Diagnosis
Integrated Psychological Services in Pediatric Oncology: Caregiver Perspectives at Diagnosis Open
Background/Objectives: Pediatric oncology patients and families are at risk for increased distress at diagnosis. The New Oncology Program in Psychology (NOPP) aligns psychological care with the established standards of care at diagnosis. T…
View article: Integrated psychological care: Promoting positive mental health across the pediatric oncology illness trajectory
Integrated psychological care: Promoting positive mental health across the pediatric oncology illness trajectory Open
Psychosocial care for children with cancer and their families should follow published standards of care.Universal services should be offered to all patient families at specific disease milestones known to be associated with increased distr…
View article: Support for Community School Personnel Working with Pediatric Cancer Patients: A Quality Improvement Initiative
Support for Community School Personnel Working with Pediatric Cancer Patients: A Quality Improvement Initiative Open
Improved therapies and increased survival rates are sending more pediatric cancer patients and survivors back to their classrooms; however, most community school personnel lack training or experience in working with these students. The aim…
View article: Factors Associated With Declining to Participate in a Pediatric Oncology Next-Generation Sequencing Study
Factors Associated With Declining to Participate in a Pediatric Oncology Next-Generation Sequencing Study Open
PURPOSE For the advances of pediatric oncology next-generation sequencing (NGS) research to equitably benefit all children, a diverse and representative sample of participants is needed. However, little is known about demographic and clini…
View article: Cognitive and Psychosocial Development in Young Children with Brain Tumors: Observations from a Clinical Sample
Cognitive and Psychosocial Development in Young Children with Brain Tumors: Observations from a Clinical Sample Open
Survivors of pediatric brain tumor (BT) are known to be at risk for developing cognitive and psychosocial late effects. Young age at treatment (≤6 years) is typically considered to put patients at increased risk. However, there is limited …
View article: Speaking genomics to parents offered germline testing for cancer predisposition: Use of a 2‐visit consent model
Speaking genomics to parents offered germline testing for cancer predisposition: Use of a 2‐visit consent model Open
Background Patients with cancer are increasingly offered genomic sequencing, including germline testing for cancer predisposition or other disorders. Such testing is unfamiliar to patients and families, and clear communication is needed to…