Phillip Harniess
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View article: Interventions supporting the empowerment of parent carers of children with neurodisability and other long‐term health conditions: A scoping review
Interventions supporting the empowerment of parent carers of children with neurodisability and other long‐term health conditions: A scoping review Open
Aim To compile information about interventions that have been developed to support the empowerment of parent carers of children and young people aged 0 to 19 years with neurodisability (e.g. cerebral palsy, epilepsy, autism) or other long‐…
View article: What Are the Important Health and Well‐Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study
What Are the Important Health and Well‐Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study Open
Background Patient‐reported outcome measures (PROMs) are used to evaluate the effectiveness of interventions, particularly for subjective health states such as well‐being. A parent carer is an adult primary caregiver for a child with a dis…
View article: Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from “Baby Ubuntu” to “Encompass”
Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from “Baby Ubuntu” to “Encompass” Open
The “Baby Ubuntu” programme is a well-established, low-cost, community-based intervention to support caregivers of children with complex neurodisability, like cerebral palsy, in low- and middle-income country (LMIC) contexts. This process-…
View article: Improving the health and wellbeing of parent carers of disabled children: systematic and iterative development and evaluation of a peer-led group-based programme
Improving the health and wellbeing of parent carers of disabled children: systematic and iterative development and evaluation of a peer-led group-based programme Open
View article: The Interactive Work of Implementing Synchronous Video‐Conference Calls—A Qualitative Study Within Early Intervention for Infants With Childhood‐Onset Neurodisability
The Interactive Work of Implementing Synchronous Video‐Conference Calls—A Qualitative Study Within Early Intervention for Infants With Childhood‐Onset Neurodisability Open
Introduction This study explores the ‘peripandemic’ implementation of synchronous videoconference calls during COVID‐19 for delivering physiotherapy early intervention services to families of infants with childhood‐onset disability. The in…
View article: Situated Learning within Early Years Physiotherapy for Child Disability – an Embodied Dialogical Approach
Situated Learning within Early Years Physiotherapy for Child Disability – an Embodied Dialogical Approach Open
View article: Ensuring equitable access, engagement and ability of socially and ethnically diverse participants to benefit from health promotion programmes: a qualitative study with parent carers of disabled children
Ensuring equitable access, engagement and ability of socially and ethnically diverse participants to benefit from health promotion programmes: a qualitative study with parent carers of disabled children Open
Background Equity is fundamental to health promotion programmes. However, unintentional or unseen barriers may exist for some underserved groups. We aimed to identify how to ensure equitable access and engagement for diverse parent carers …
View article: Evaluation of the Ei SMART training programme in the UK
Evaluation of the Ei SMART training programme in the UK Open
View article: <i>‘There was nothing, just absolute darkness’</i>: Understanding the needs of those caring for children and young people with complex neurodisability in a diverse UK context: A qualitative exploration in the ENCOMPASS study
<i>‘There was nothing, just absolute darkness’</i>: Understanding the needs of those caring for children and young people with complex neurodisability in a diverse UK context: A qualitative exploration in the ENCOMPASS study Open
Background Children and young people (CYP) with complex neurodisability experience multiple physical, communication, educational and social challenges, which require complex packages of multidisciplinary care. Part of the holistic care req…
View article: What aspects of health and wellbeing are most important to parent carers of children with disabilities?
What aspects of health and wellbeing are most important to parent carers of children with disabilities? Open
Introduction Parent carers of children with special educational needs or disabilities are at risk of poorer health and wellbeing outcomes because of the distinct and challenging circumstances they face. Evaluations of interventions promoti…
View article: Barriers and facilitators to parent-delivered interventions for children with or infants at risk of cerebral palsy. An integrative review informed by behaviour change theory
Barriers and facilitators to parent-delivered interventions for children with or infants at risk of cerebral palsy. An integrative review informed by behaviour change theory Open
Fostering parent-delivered interventions requires addressing knowledge gaps, skill and capacity of parents and therapists. Therapists forming strong alliances with parents and setting collaborative realistic goals are key to successful par…
View article: How do parents frame their engagement experience in early intervention? A grounded theory study
How do parents frame their engagement experience in early intervention? A grounded theory study Open
This theorising has implications for early intervention therapists in how they engage in the lives of families and partner with parents to support healthier parental transition, wellbeing and subsequent improved infant outcomes.
View article: What are the priority needs for those caring for children and young people with complex neurodisability within an ethnically diverse UK context? - The feasibility phase of the ENCOMPASS study
What are the priority needs for those caring for children and young people with complex neurodisability within an ethnically diverse UK context? - The feasibility phase of the ENCOMPASS study Open
Background Children and young people (CYP) with complex neurodisability experience multiple physical, communication, educational and social challenges which require complex packages of multidisciplinary care. Cerebral palsy, an exemplar co…
View article: A collaborative research manifesto! An early career response to uncertainties
A collaborative research manifesto! An early career response to uncertainties Open
Social researchers have been adapting methods and practices in response to COVID-19. In the wake of these adaptations, but still in the midst of intersecting crises that the pandemic has exacerbated or shifted (e.g. health-social-political…
View article: How do parents frame their engagement experience in early intervention? A grounded theory study
How do parents frame their engagement experience in early intervention? A grounded theory study Open
Parent and therapist engagement and partnership are critical in early intervention physiotherapy and occupational therapy for infants with cerebral palsy to improve outcomes. The main aim of this study was to understand how parents perceiv…
View article: Parental engagement in early intervention for infants with cerebral palsy—A realist synthesis
Parental engagement in early intervention for infants with cerebral palsy—A realist synthesis Open
Background Emphasis on parental engagement strategies within occupational therapy and physiotherapy early intervention (EI) programmes for infants at high risk of cerebral palsy (CP) has increased. This reflects consensus that increasing p…
View article: Feasibility, safety and acceptability of select outcome measures in a physiotherapy study protocol for boys with haemophilia
Feasibility, safety and acceptability of select outcome measures in a physiotherapy study protocol for boys with haemophilia Open
Background There is a lack of functional performance measures for children and young people with haemophilia (CYPwH) with associated control data from typically developing boys (TDB). The literature advocates development of a core set of o…
View article: 69 ‘The importance of peer-support for clinical academics at great ormond street children’s hospital’
69 ‘The importance of peer-support for clinical academics at great ormond street children’s hospital’ Open
Over the last four years, ORCHID (the Centre for Outcomes and Experience Research in Children's Health, Illness and Disability) at GOSH has had great success in supporting nurses, allied health professionals (AHPs) and a junior doctor to …