Abby R. Rosenberg
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View article: Defining and measuring tolerability in pediatric, adolescent, and young adult oncology: The essential voices
Defining and measuring tolerability in pediatric, adolescent, and young adult oncology: The essential voices Open
In this review on the status of tolerability in pediatric oncology, the authors address the relevance and meaning of this important concept and offer a definition to represent treatment tolerability experiences of pediatric, adolescent, an…
View article: Talking with adolescent and young adult cancer survivors about health after cancer: A review and communication guide for clinicians
Talking with adolescent and young adult cancer survivors about health after cancer: A review and communication guide for clinicians Open
Adolescent and young adult (AYA) cancer survivors represent a vulnerable population in cancer care and survivorship. AYA survivors are a heterogeneous group that includes people between the ages of 15 and 39 years who were treated for canc…
View article: Research Burden in Pediatric Cancer: A Mixed Methods Study From the PediQUEST Response Trial
Research Burden in Pediatric Cancer: A Mixed Methods Study From the PediQUEST Response Trial Open
View article: Resilience Coaching for Adolescent Chronic Musculoskeletal Pain: Protocol for a Pilot Randomized Controlled Trial of Promoting Resilience in Stress Management (PRISM)
Resilience Coaching for Adolescent Chronic Musculoskeletal Pain: Protocol for a Pilot Randomized Controlled Trial of Promoting Resilience in Stress Management (PRISM) Open
Background Levels of self-perceived psychological resilience are low to moderate among youth with chronic musculoskeletal pain (CMP). Furthermore, resilience has been associated with symptom severity in CMP. Resilience coaching programs ma…
View article: Promoting resilience in stress management (PRISM) for patients with early stage breast cancer: a pilot feasibility study
Promoting resilience in stress management (PRISM) for patients with early stage breast cancer: a pilot feasibility study Open
View article: Treatment and Decision‐Making Preferences of Adolescents and Young Adults With Advanced Cancer and Their Parents or Trusted Persons: An Adaptive Conjoint Analysis Study
Treatment and Decision‐Making Preferences of Adolescents and Young Adults With Advanced Cancer and Their Parents or Trusted Persons: An Adaptive Conjoint Analysis Study Open
Purpose Treatment decision‐making in adolescents and young adults (AYAs) requires preference consideration and tradeoffs. Using MyPref, an adaptive conjoint analysis tool, we examined and compared the decision‐making and treatment preferen…
View article: A photo-narrative intervention protocol for clinicians and parents of children with severe neurological impairment in the PICU
A photo-narrative intervention protocol for clinicians and parents of children with severe neurological impairment in the PICU Open
NCT06208332.
View article: Heart Rate Variability as a Digital Biomarker in Adolescents and Young Adults Receiving Hematopoietic Cell Transplantation
Heart Rate Variability as a Digital Biomarker in Adolescents and Young Adults Receiving Hematopoietic Cell Transplantation Open
Introduction Adolescents and young adults (AYAs) receiving hematopoietic cell transplantation (HCT) are at high risk for poor psychosocial outcomes. Heart rate variability (HRV), a surrogate for autonomic nervous system activity, is a prom…
View article: Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross‐Sectional Survey
Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross‐Sectional Survey Open
Background Some adult transplant surgeons consider transplant to be contraindicated in patients receiving palliative care (PC). Little is known about pediatric transplant surgeons' attitudes toward PC. We sought to ascertain pediatric kidn…
View article: Developing a skill-based intervention to address social health needs of adolescents and young adults with cancer: an ORBIT Phase 1 Study
Developing a skill-based intervention to address social health needs of adolescents and young adults with cancer: an ORBIT Phase 1 Study Open
Background Few interventions have improved social health of adolescents and young adults (AYAs) with cancer. Following the obesity-related behavioral intervention trials model, we developed a skill-based social needs module for integration…
View article: Adaptation and feasibility of the Swedish Promoting Resilience in Stress Management intervention targeting adolescents and young adults newly diagnosed with cancer
Adaptation and feasibility of the Swedish Promoting Resilience in Stress Management intervention targeting adolescents and young adults newly diagnosed with cancer Open
This study suggests that participating in PRISM has the potential to guide AYAs during the initial period after a cancer diagnosis. Further work to make PRISM more personalized might increase AYAs' interest in, and completion of, PRISM.
View article: Primary‐ Versus Secondary‐Control Coping as Described by Adults With Congenital Heart Disease
Primary‐ Versus Secondary‐Control Coping as Described by Adults With Congenital Heart Disease Open
View article: Social support resources in adolescents and young adults with advanced cancer: a qualitative analysis
Social support resources in adolescents and young adults with advanced cancer: a qualitative analysis Open
View article: Mobile App Promoting Resilience in Stress Management for Adolescents and Young Adults With Cancer: Protocol for a Pilot Randomized Controlled Trial
Mobile App Promoting Resilience in Stress Management for Adolescents and Young Adults With Cancer: Protocol for a Pilot Randomized Controlled Trial Open
Background Adolescents and young adults (AYAs) with cancer are at risk of poor psychosocial outcomes. AYAs grew up with the internet and digital technology, and mobile Health (mHealth) psychosocial interventions have the potential to overc…
View article: Impact of Subspecialty Pediatric Palliative Care on Children with Heart Disease; A Systematic Review and Meta-analysis
Impact of Subspecialty Pediatric Palliative Care on Children with Heart Disease; A Systematic Review and Meta-analysis Open
View article: Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trial
Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trial Open
Background The prevalence and characteristics of household material hardship (HMH) in families of children with advanced cancer and its association with parent distress are unknown and herein described. Methods Parents of children aged ≥2 …
View article: Improving Quality of Life in Pediatric Advanced Cancer: Results from the PediQUEST Response RCT (CO101C)
Improving Quality of Life in Pediatric Advanced Cancer: Results from the PediQUEST Response RCT (CO101C) Open
View article: Distress Matters: Results from the PRISM-HCT Randomized Trial for Adolescents and Young Adults (CO101A)
Distress Matters: Results from the PRISM-HCT Randomized Trial for Adolescents and Young Adults (CO101A) Open
View article: Palliative Care in the Post-Roe Era: A Call to Engagement and Advocacy
Palliative Care in the Post-Roe Era: A Call to Engagement and Advocacy Open
View article: Application of the PRISM Resilience Intervention in Adult Congenital Heart Disease (RP213)
Application of the PRISM Resilience Intervention in Adult Congenital Heart Disease (RP213) Open
View article: Extracting Social Determinants of Health from Pediatric Patient Notes Using Large Language Models: Novel Corpus and Methods
Extracting Social Determinants of Health from Pediatric Patient Notes Using Large Language Models: Novel Corpus and Methods Open
Social determinants of health (SDoH) play a critical role in shaping health outcomes, particularly in pediatric populations where interventions can have long-term implications. SDoH are frequently studied in the Electronic Health Record (E…
View article: Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit
Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit Open
Background: Children with severe neurological impairment (SNI) often receive care in the pediatric intensive care unit (PICU), yet little is known about their parents' experiences. Objective: To examine sources …
View article: Little patients, big impacts: a narrative review of palliative and emergent radiotherapy for pediatric cancers
Little patients, big impacts: a narrative review of palliative and emergent radiotherapy for pediatric cancers Open
Palliative RT can be of valuable benefit in most settings for patients with pediatric cancer. There is an unmet need for prospective data to inform on dose-fractionation along with patient and caregiver reported outcomes.
View article: Inequitable Poverty Exposures: A Subspecialty Opportunity to Address Disparities
Inequitable Poverty Exposures: A Subspecialty Opportunity to Address Disparities Open
Subspecialty pediatrics have lagged behind primary care pediatrics in recognizing adverse social determinants of health (SDOH) as salient to outcomes, key drivers of inequity, and worthy of systematic investigation.1 A population frequentl…
View article: Fostering resilience in adolescence and young adulthood: Considerations for evidence‐based, patient‐centered oncology care
Fostering resilience in adolescence and young adulthood: Considerations for evidence‐based, patient‐centered oncology care Open
Adolescence and young adulthood are times of growth and change. For adolescents and young adults (AYAs) who are diagnosed with cancer, the demands of illness may compound normal developmental challenges and adversely affect physical, emoti…
View article: Impact of Social Determinants of Health on Self-Perceived Resilience: An Exploratory Study of Two Cohorts of Adults with Congenital Heart Disease
Impact of Social Determinants of Health on Self-Perceived Resilience: An Exploratory Study of Two Cohorts of Adults with Congenital Heart Disease Open
Social determinants of health (SDOH) affect quality of life.We investigated SDOH impacts on self-perceived resilience among people with adult congenital heart disease (ACHD).Secondary analysis of data from two complementary studies: a surv…
View article: Factors influencing parents’ choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi‐site longitudinal survey study
Factors influencing parents’ choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi‐site longitudinal survey study Open
Background Many parents of children with advanced cancer report curative goals and continue intensive therapies that can compound symptoms and suffering. Factors that influence parents to choose palliation as the primary treatment goal are…
View article: Family Responses to Different Types of Clinician Empathy Expression in Pediatric Care Conferences
Family Responses to Different Types of Clinician Empathy Expression in Pediatric Care Conferences Open
Background: Clinician empathy positively impacts patient outcomes. Few studies have assessed the effects of different types of empathic expression. Objective: To describe how families respond when clinicians exp…
View article: Palliative Care in Adolescents and Young Adults With Cancer
Palliative Care in Adolescents and Young Adults With Cancer Open
Palliative care (PC) aims to improve quality of life (QOL) for patients with serious illness and their families by recognizing and alleviating the physical, emotional, social, existential, and spiritual suffering of patients and their comm…
View article: Integrating evidence-based communication principles into routine cancer care
Integrating evidence-based communication principles into routine cancer care Open