Rachael Pattinson
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View article: Interactions between autonomic symptoms, interoception, illness perceptions and distress in Long COVID fatigue: An integrative model
Interactions between autonomic symptoms, interoception, illness perceptions and distress in Long COVID fatigue: An integrative model Open
BackgroundLong COVID is characterised by persistent symptoms, especially fatigue. We investigated the severity and impact of cognitive and physical fatigue in Long COVID, exploring associations with autonomic symptoms, interoceptive sensib…
View article: Picture perfect: study protocol for assessing the accuracy, feasibility and acceptability of intraoral photographs captured by parents for remote dental screening in children – an observational mixed-methods study
Picture perfect: study protocol for assessing the accuracy, feasibility and acceptability of intraoral photographs captured by parents for remote dental screening in children – an observational mixed-methods study Open
Background Children with limited access to dental care can be negatively impacted by reduced frequency of oral health monitoring, delays in diagnosis of dental disease and increased waits for dental care, resulting in them experiencing mor…
View article: A qualitative exploration of the prospective acceptability of the MiDerm app; a complex digital intervention for adults living with skin conditions
A qualitative exploration of the prospective acceptability of the MiDerm app; a complex digital intervention for adults living with skin conditions Open
Objectives Skin conditions carry a substantial psychological burden but support for patients is limited. Digital technology could support patient self‐management; we found preliminary evidence for the effectiveness and acceptability of dig…
View article: Positive reinforcement: Balancing negative and positive feedback for comprehensive improvement
Positive reinforcement: Balancing negative and positive feedback for comprehensive improvement Open
Patient feedback plays a vital role in healthcare, offering insights into the quality of care and promoting professional development. Despite the emphasis on feedback collection from regulatory bodies, institutional policies appear to focu…
View article: Defining and measuring long COVID fatigue: a scoping review
Defining and measuring long COVID fatigue: a scoping review Open
Objective Long COVID encompasses a range of symptoms in which fatigue is one of the most prevalent. It is clear from other conditions that the definition and measurement of fatigue can be complex; however, it is not clear how fatigue is de…
View article: A Qualitative Exploration of the Impact, Management, and Existing Psychological Support Available for Adults Living with Skin Conditions
A Qualitative Exploration of the Impact, Management, and Existing Psychological Support Available for Adults Living with Skin Conditions Open
Skin conditions carry a significant physical, psychological, and social burden. People with skin conditions often engage in health-threatening behaviours that can worsen symptoms and increase cardiovascular disease risk. However, access to…
View article: Somatosensory processing in long COVID fatigue and its relations with physiological and psychological factors
Somatosensory processing in long COVID fatigue and its relations with physiological and psychological factors Open
Fatigue is prevalent amongst people with long COVID, but is poorly understood. The sensory attenuation framework proposes that impairments in sensory processing lead to heightened perception of effort, driving fatigue. This study aims to i…
View article: Measurement properties and interpretability of the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure
Measurement properties and interpretability of the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure Open
Background Patient-reported outcome measures (PROMs) are crucial in assessing the impact of dermatological conditions on people’s lives, but the existing dermatology-specific PROMs are not recommended for use, according to COSMIN. We devel…
View article: Further refinement of the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure using classical test theory and item response theory
Further refinement of the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure using classical test theory and item response theory Open
Background Existing dermatology-specific Patient-Reported Outcome Measures (PROMs) do not fully capture the substantial physical, psychological and social impact of dermatological conditions on patients’ lives and are not recommended for u…
View article: Patient prioritisation of impact items to develop the <scp>patient‐reported</scp> impact of dermatological diseases (<scp>PRIDD</scp>) measure: European Delphi data
Patient prioritisation of impact items to develop the <span>patient‐reported</span> impact of dermatological diseases (<span>PRIDD</span>) measure: European Delphi data Open
Background The Global Research on the Impact of Dermatological Diseases (GRIDD) project is developing a patient‐reported measure of the impact of dermatological disease on the patient's life called Patient Reported Impact of Dermatological…
View article: Registered Nurses' and nursing students' perspectives on moral distress and its effects: A mixed‐methods systematic review and thematic synthesis
Registered Nurses' and nursing students' perspectives on moral distress and its effects: A mixed‐methods systematic review and thematic synthesis Open
Aim To examine Registered Nurses (RNs') and nursing students' perspectives on factors contributing to moral distress and the effects on their health, well‐being and professional and career intentions. Design Joanna Briggs Institute mixed‐m…
View article: Evidence of the content validity, acceptability, and feasibility of a new Patient-Reported Impact of Dermatological Diseases measure
Evidence of the content validity, acceptability, and feasibility of a new Patient-Reported Impact of Dermatological Diseases measure Open
Background The Global Research on the Impact of Dermatological Diseases (GRIDD) team is developing the new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure of the impact of dermatological conditions on the patient’s life,…
View article: Nurses' coping strategies caring for patients during severe viral pandemics: A mixed‐methods systematic review
Nurses' coping strategies caring for patients during severe viral pandemics: A mixed‐methods systematic review Open
Background Nurses play an essential role in responding to severe viral disease which bring considerable challenges to their personal and professional well‐being. This subsequently can affect the delivery of care and healthcare systems' org…
View article: A mixed methods systematic review of digital interventions to support the psychological health and well-being of people living with dermatological conditions
A mixed methods systematic review of digital interventions to support the psychological health and well-being of people living with dermatological conditions Open
Background Dermatological conditions can have a substantial impact on psychological as well as physical health yet dedicated face-to-face psychological support for patients is lacking. Thus, individuals may require additional support to se…
View article: Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study
Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study Open
Existing patient-reported outcome measures cannot comprehensively capture the full impact of living with a dermatological condition. The aim of this study was to develop a conceptual framework on which to build a new Patient-Reported Impac…
View article: P8 Patient Prioritisation of Items for the New Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Delphi Study
P8 Patient Prioritisation of Items for the New Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Delphi Study Open
View article: Covid-19 Coping Survey: an In-depth Qualitative Analysis of Free-Text Responses from People With and Without Existing Health Conditions in the UK
Covid-19 Coping Survey: an In-depth Qualitative Analysis of Free-Text Responses from People With and Without Existing Health Conditions in the UK Open
View article: Online survey comparing coping responses to SARS-CoV-2 by people with and without existing health conditions in the UK
Online survey comparing coping responses to SARS-CoV-2 by people with and without existing health conditions in the UK Open
Objectives To investigate the impact of SARS-CoV-2 on self-reported mood, coping and health behaviours of people living with existing health conditions in the UK to understand how to improve coping responses to the threat of SARS-CoV-2. De…
View article: Measurement properties of patient‐reported outcome measures for eczema control: a systematic review
Measurement properties of patient‐reported outcome measures for eczema control: a systematic review Open
Atopic eczema (herein referred to as ‘eczema’) is a skin disease characterized by remitting and relapsing symptoms. The Harmonising Outcome Measures for Eczema (HOME) initiative was developed to establish a core outcome set (COS) for eczem…
View article: Patient-Reported Outcome Measures in Dermatology: A Systematic Review
Patient-Reported Outcome Measures in Dermatology: A Systematic Review Open
By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across sk…
View article: Implementation of the PsoWell™ Model for the Management of People with Complex Psoriasis
Implementation of the PsoWell™ Model for the Management of People with Complex Psoriasis Open
The Psoriasis and Well-being (PsoWell)™ training programme, incorporating motivational interviewing, improves clinicians' knowledge and skills to manage complex psoriasis, including behaviour change. The aims of this study were to deliver …