Muhammad Rafie Raza
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View article: Whom to include? A cross-sectional survey study investigating how culture impacts diagnostic decision making for paediatric cancer in Pakistan
Whom to include? A cross-sectional survey study investigating how culture impacts diagnostic decision making for paediatric cancer in Pakistan Open
Objectives This study sought to explore decision making among caregivers of children with cancer in Pakistan, one of the largest lower middle-income countries in the world. Design Cross-sectional survey study Setting This study was conduct…
View article: Communication practices and information exchange for caregivers of children with cancer in Pakistan
Communication practices and information exchange for caregivers of children with cancer in Pakistan Open
Introduction Information exchange is a core component of communication that has been understudied globally. This study sought to examine eight core functions of communication, including information exchange, among caregivers of children wi…
View article: From blueprint to biobank: Leveraging expert recommendations for implementing change (ERIC) to pediatric cancer biobanking in Pakistan
From blueprint to biobank: Leveraging expert recommendations for implementing change (ERIC) to pediatric cancer biobanking in Pakistan Open
Background In low- and middle-income countries, limited infrastructure and resources hinder biobank establishment, affecting specimen diversity. Addressing this gap is crucial for equitable health outcomes, as current databases are skewed …
View article: Evaluation of task sharing as a workforce optimization strategy in pediatric oncology
Evaluation of task sharing as a workforce optimization strategy in pediatric oncology Open
Task sharing is a pragmatic response to the growing shortage of pediatric oncologists globally, especially in low- and middle-income countries (LMICs). However, there have been limited evaluations of how task sharing has been implemented. …
View article: Exploring Pediatric Oncology Care Practices Influencing the Relationships Among Children, Caregivers, and Health Care Providers: A Multi-Institutional Study From Pakistan
Exploring Pediatric Oncology Care Practices Influencing the Relationships Among Children, Caregivers, and Health Care Providers: A Multi-Institutional Study From Pakistan Open
PURPOSE The quality of relationships between health care professionals (HCPs) and patients is an important factor influencing people's experiences with their health systems. In Pakistan, pediatric oncologists highlight the need for effecti…
View article: Assessment of Drug Toxicity and Mortality in Children with Classical Hodgkin Lymphoma on ABVD/COPDAC Protocol – A Single Centre Study
Assessment of Drug Toxicity and Mortality in Children with Classical Hodgkin Lymphoma on ABVD/COPDAC Protocol – A Single Centre Study Open
Objective: To assess the frequency of drug toxicity and mortality associated with ABVD/COPDAC protocol in children with classical Hodgkin Lymphoma at IHHN, Karachi. Methodology: A prospective observational study was conducted over six mont…
View article: The Basics of Pediatric Oncology-Physicians Course (BPO): A Nationwide E-learning Initiative in Pakistan
The Basics of Pediatric Oncology-Physicians Course (BPO): A Nationwide E-learning Initiative in Pakistan Open
View article: Optimizing Implementation of Comfort Measures in Pediatric Oncology: A Quality Improvement Initiative in Indus Hospital and Health Network Karachi, Pakistan
Optimizing Implementation of Comfort Measures in Pediatric Oncology: A Quality Improvement Initiative in Indus Hospital and Health Network Karachi, Pakistan Open
View article: Diagnostic Decision Making for Pediatric Cancer in Pakistan
Diagnostic Decision Making for Pediatric Cancer in Pakistan Open
View article: Clinical Presentation and Treatment Outcomes of Pediatric Acute Promyelocytic Leukemia: A study from a developing country
Clinical Presentation and Treatment Outcomes of Pediatric Acute Promyelocytic Leukemia: A study from a developing country Open
View article: Decentralizing Pediatric Oncology Care: Early Outcomes of a Shared Care Model in Resource-Limited Settings
Decentralizing Pediatric Oncology Care: Early Outcomes of a Shared Care Model in Resource-Limited Settings Open
View article: Diagnostic accuracy and safety of ultrasound-guided percutaneous core needle biopsy among children with extra cranial solid masses at a tertiary care hospital in Karachi, Pakistan
Diagnostic accuracy and safety of ultrasound-guided percutaneous core needle biopsy among children with extra cranial solid masses at a tertiary care hospital in Karachi, Pakistan Open
Objective: To determine the diagnostic accuracy and procedure safety of ultrasound-guided core needle biopsy of extra cranial solid masses in the pediatric population. Method: A cross-sectional survey was conducted by the Department of Ped…
View article: Exploring treatment decision-making at diagnosis for children with advanced cancer in low- and middle-income countries
Exploring treatment decision-making at diagnosis for children with advanced cancer in low- and middle-income countries Open
Upfront treatment decision-making for children with advanced or poor prognosis cancer in LMICs is variable and challenging. Difficulties with decision-making in LMICs may be amplified by inconsistent definitions of poor prognosis and under…
View article: Functions of patient- and family-centered pediatric cancer communication in Pakistan
Functions of patient- and family-centered pediatric cancer communication in Pakistan Open
Background Communication is an essential aspect of high-quality patient- and family-centered care. A model for pediatric cancer communication developed in the United States defined eight communication functions. The purpose of this study w…
View article: Knowledge, Attitudes, and Practices regarding Pain Assessment among Nurses Working at Public-Sector Pediatric Oncology Units in Pakistan
Knowledge, Attitudes, and Practices regarding Pain Assessment among Nurses Working at Public-Sector Pediatric Oncology Units in Pakistan Open
Introduction Pain in pediatric oncology patients is often undertreated due to a lack of timely assessment and inefficient communication between health care workers. Improper pain assessment is a leading cause of poorly managed pain in chil…
View article: Pediatric discordant lymphoma with classic Hodgkin lymphoma in cervical lymph nodes and high-grade B-cell non-Hodgkin lymphoma in bone marrow: a case report from Pakistan
Pediatric discordant lymphoma with classic Hodgkin lymphoma in cervical lymph nodes and high-grade B-cell non-Hodgkin lymphoma in bone marrow: a case report from Pakistan Open
Discordant lymphoma (DL) is an uncommon condition in which two or more histologically different types of lymphomas are present at distinct anatomical sites in the same patient. Here, we report a case of a pediatric patient under 10 years o…
View article: Factors Modifying Decision-Making at Diagnosis of Advanced Childhood Cancer in Low- and Middle-Income Countries (RP223)
Factors Modifying Decision-Making at Diagnosis of Advanced Childhood Cancer in Low- and Middle-Income Countries (RP223) Open
View article: Factors Leading to Delay in Diagnosis of Childhood Cancer in Pakistan
Factors Leading to Delay in Diagnosis of Childhood Cancer in Pakistan Open
Objective: To evaluate the factors leading to the delay in diagnosis of childhood cancers. Methodology: This prospective cross-sectional study was conducted at the pediatric Hematology/Oncology Department of Indus Hospital & Health Network…
View article: Barriers and Facilitators of Quality Family-Centered Communication in Pakistan
Barriers and Facilitators of Quality Family-Centered Communication in Pakistan Open
PURPOSE Communication is a fundamental aspect of patient- and family-centered care. Unfortunately, there is a dearth of evidence regarding pediatric cancer communication in low- and middle-income countries, where over 90% of all children w…
View article: Communication transforms the impact of the <scp>COVID</scp>‐19 pandemic on children with cancer and their families
Communication transforms the impact of the <span>COVID</span>‐19 pandemic on children with cancer and their families Open
Background The COVID‐19 pandemic altered healthcare systems globally, causing delays in care delivery and increased anxiety among patients and families. This study examined how hospital stakeholders and clinicians perceived the global impa…
View article: Investigating paediatric sarcoma management worldwide: a study protocol
Investigating paediatric sarcoma management worldwide: a study protocol Open
Introduction Cancer is the leading cause of non-accidental death among children worldwide. The most common types of paediatric cancers include sarcomas: a group of cancers that are difficult to manage due to their heterogeneity and lack of…
View article: Childhood Langerhans Cell Histiocytosis: A ten-year study from Pakistan
Childhood Langerhans Cell Histiocytosis: A ten-year study from Pakistan Open
Introduction: Between 2 and 9 children per million per year are affected by Langerhans Cell Histiocytosis (LCH) globally. Despite aggressive treatment, mortality and reactivation rates for multisystem LCH remain above 20% and 30%, respecti…
View article: Virtual Teaching and Training Models in Pediatric Oncology: A Retrospective Study from an LMIC
Virtual Teaching and Training Models in Pediatric Oncology: A Retrospective Study from an LMIC Open
Introduction A multidisciplinary approach is essential for success in pediatric oncology treatment. Updated protocols, quality nursing care, psychosocial support, safe and standardized preparation of chemotherapy, infection control, and ef…
View article: Achievements and pitfalls in improving Pediatric Oncology Nursing standards: A public-private partnership project.
Achievements and pitfalls in improving Pediatric Oncology Nursing standards: A public-private partnership project. Open
Development and maintenance of PPP in national healthcare systems is essential to improve pediatric oncology nursing care.
View article: Utilizing Multilingual Methods and Rapid Analysis for Global Qualitative Research During a Pandemic
Utilizing Multilingual Methods and Rapid Analysis for Global Qualitative Research During a Pandemic Open
Historically, qualitative research has complemented quantitative biologic and epidemiologic studies to provide a more complete understanding of pandemics. The COVID-19 pandemic has generated unique and novel challenges for qualitative rese…
View article: Resilient health care in global pediatric oncology during the COVID‐19 pandemic
Resilient health care in global pediatric oncology during the COVID‐19 pandemic Open
Background In the face of unprecedented challenges because of coronavirus disease 2019, interdisciplinary pediatric oncology teams have developed strategies to continue providing high‐quality cancer care. This study explored factors contri…
View article: Primary Hodgkin's Lymphoma of bone in 7-year-old- an exceptional case report of youngest child in literature
Primary Hodgkin's Lymphoma of bone in 7-year-old- an exceptional case report of youngest child in literature Open
Hodgkin lymphoma (HL) is mainly considered a nodal disease but extra nodal involvement can also be seen with variable frequency. Solitary bone involvement in HL known as Primary osseous hodgkin lymphoma (POHL) is very rare. It is defined a…
View article: Impact of the coronavirus disease 2019 (COVID‐19) pandemic on pediatric oncology care in the Middle East, North Africa, and West Asia region: A report from the Pediatric Oncology East and Mediterranean (POEM) group
Impact of the coronavirus disease 2019 (COVID‐19) pandemic on pediatric oncology care in the Middle East, North Africa, and West Asia region: A report from the Pediatric Oncology East and Mediterranean (POEM) group Open
Background Childhood cancer is a highly curable disease when timely diagnosis and appropriate therapy are provided. A negative impact of the coronavirus disease 2019 (COVID‐19) pandemic on access to care for children with cancer is likely …
View article: Prognostic factors and their influence on therapeutic outcomes in children and adolescents with parameningeal rhabdomyosarcoma: A multicenter study from Pakistan
Prognostic factors and their influence on therapeutic outcomes in children and adolescents with parameningeal rhabdomyosarcoma: A multicenter study from Pakistan Open
The study was aimed at evaluating prognostic factors and treatment outcomes of pediatric parameningeal rhabdomyosarcoma (PM-RMS) at two major pediatric oncology centers in Pakistan. PM-RMS age 1–16 years diagnosed from 2005 to 2015 at Aga …