Explanipedia

Advance Care Planning Motivators Among Adults With Serious Illness Open

Sarah Nouri, Carine Davila, Stephanie H. Chan, Brian Feltz, Anna Gosline , et al. · 2025

Importance Advance care planning (ACP) engagement is poorly understood among people with serious illness. Objective Determine whether diagnosis of and worries about serious illness are associated with ACP engagement. Design, Setting, and P…

Adaptation of a Serious Illness Communication Training Intervention for the Rwandan Context Open

Rebecca DeBoer, Pacifique Uwamahoro, Diane A. Ndoli, Eulade Rugengamanzi, Augustin Mulindabigwi , et al. · 2025

Setting the stage for communication skills training in Rwandan cancer care: a qualitative study of local priorities and key contextual factors Open

Pacifique Uwamahoro, Ignace Girukubonye, Jean Bosco Bigirimana, Cyprien Shyirambere, Katherine Van Loon , et al. · 2025

Engaging English- and Spanish-speaking older adults with and without possible cognitive impairment in advance care planning group visits: protocol for the ENgaging in Advance Care Planning Talks (ENACT) randomized controlled trial Open

Samantha A. Farro, Elizabeth Juaréz-Colunga, Chandni Patel, Brianne M. Bettcher, Christine Haynes , et al. · 2025

Clinicaltrials.gov: NCT05421728. Registered on 13 June 2022.

Telehealth Care for People With Serious Illnesses and Preferred Languages Other Than English Open

Yidi Wang, Rebecca L. Sudore, Carly Zapata, Román Martínez, Jorge A. González , et al. · 2025

Importance Telehealth use in outpatient care has increased. Patients who speak preferred languages other than English (PLOE) experience disparities in telehealth use and in care provided via telehealth for serious illnesses (eg, cancer and…

72 The optimal versus feasible approach of advance care planning in dementia Open

Jenny T. van der Steen, Lieve Van den Block, Miharu Nakanishi, Karen Harrison Dening, Deborah Parker , et al. · 2025

I CAN DO Surgical ACP (Improving Completion, Accuracy and Dissemination of Surgical Advanced Care Planning): a protocol for a multisite, single-blinded, pragmatic randomised controlled trial to improve ACP completion in older adults in the presurgical setting Open

Lindsay Welton, Alexis Colley, Rebecca L. Sudore, Genevieve B. Melton, Chloe Botsford , et al. · 2025

Introduction Approximately, 20 million older adults undergo major elective surgery annually, yet less than 10% engage in advance care planning (ACP). This is a critical missed opportunity to optimally engage in patient-aligned medical deci…

Factors influencing engagement with patient‐directed and facilitated advance care planning interventions for patients with advanced cancer Open

Kimberly J. Rak, Renusha Indralingam, Aaron Richardson, Neha Dhole, Shane Belin , et al. · 2025

A constellation of internal and external factors interact as facilitators or barriers to engagement with advance care planning. Therefore, a one‐time, one‐size approach is not recommended; facilitating engagement may require flexible appro…

Associations of Patient Experience With Doctor-Patient Communication and Patient-Reported Physical and Mental Health in Seriously Ill Adults Open

Sarah D’Ambruoso, Anne M Walling, Neil S. Wenger, Rebecca L. Sudore, Lisa Gibbs , et al. · 2025

The importance of effective doctor-patient communication is well established; however, rigorous evaluations of its association with patient-reported outcomes among seriously ill patients are needed. We analyzed 2 waves of survey data from …

Resident Physician Experiences of Discharging Hospitalized Older Adults to Skilled Nursing Facilities Open

Bingyan Shi, Margaret C. Fang, Rebecca L. Sudore, Audrey Lyndon, Tasce Bongiovanni , et al. · 2025

Engaging English- and Spanish-speaking older adults with and without possible cognitive impairment in advance care planning group visits: Protocol for the ENgaging in Advance Care Planning Talks (ENACT) Randomized Controlled Trial Open

Hillary D. Lum, Samantha A. Farro, Elizabeth Juaréz-Colunga, Chandni Patel, Brianne M. Bettcher , et al. · 2025

Serious Illness Conversations in the Emergency Department for Older Adults With Advanced Illnesses Open

Kei Ouchi, Susan D. Block, Dorene M. Rentz, Donna L. Berry, Hannah Oelschlager , et al. · 2025

Importance Conversations between seriously ill patients and clinicians about values and goals (ie, serious illness conversations [SICs]) can lead to patient-centered care toward the end of life. However, many patients have not had SICs whe…

‘They Were Talking to Each Other but Not to Me’: Examining the Drivers of Patients' Poor Experiences During the Transition From the Hospital to Skilled Nursing Facility Open

James D. Harrison, Margaret C. Fang, Rebecca L. Sudore, Andrew D. Auerbach, Tasce Bongiovanni , et al. · 2025

Introduction Hospital‐to‐skilled nursing facility (SNF) transitions have been characterised as fragmented and having poor quality. The drivers, or the factors and actions, that directly lead to these poor experiences are not well described…

Advance Care Planning Engagement of Older Adults in the Emergency Department Open

Adrian D. Haimovich, Kenji Numata, Justin Wolozin, Zara Foroohar, Carlo Ottanelli , et al. · 2025

Background Advance care planning (ACP) helps older adults make end-of-life medical decisions. While ACP discussions are associated with improved patient outcomes, overall engagement remains low in the emergency department (ED). Objectives …

Expanded care planning paradigm for older adults with type 2 diabetes: Rationale, design, and protocol of the PREPARE for Your Diabetes Care randomized trial Open

Alexandra K. Lee, J. Mejía, Clarissa Ferguson, Brookelle H. Li, Richard W. Grant , et al. · 2025

NCT05263310; Pre-results.

A scoping review of clinical communication in cancer care in Africa Open

Rebecca DeBoer, Chiara A. Wabl, Beatrice P. Mushi, Pacifique Uwamahoro, Raymond Athanas , et al. · 2025

Background Cancer care involves disclosing difficult information, making treatment decisions, and advance care planning. Communication practices and preferences are strongly influenced by sociocultural context. This scoping review aims to …

Perceptions of Patient-Clinician Communication Among Adults With and Without Serious Illness Open

Carine Davila, Sarah Nouri, Stephanie H. Chan, Brian Feltz, Anna Gosline , et al. · 2025

Importance High-quality, person-centered patient-clinician communication is critical in health care and may be less effective for patients with serious illness. Little is understood about differences in patient-clinician communication expe…

“Nobody Can Be Equipped for This”: Advice From New Residents of Long‐Term Care Facilities Open

Kenneth Lam, James D. Harrison, Landon Haller, William James Deardorff, Rebecca L. Sudore , et al. · 2025

Background The transition into a long‐term care facility (LTCF) is difficult for older adults, prompting calls for clinicians to help guide and plan. Yet we know little about how those with lived experience of moving into an LTCF would adv…

Optimizing Advance Care Planning in Dementia: Recommendations From a 33-Country Delphi Study Open

Jenny T. van der Steen, Lieve Van den Block, Miharu Nakanishi, Karen Harrison Dening, Deborah Parker , et al. · 2025

Quality of Virtual vs. In-Person Outpatient Palliative Care: Disparities by Language and Race Open

Sarah Nouri, Steven Z. Pantilat, Christine S. Ritchie, Courtney R. Lyles, Ying Shi , et al. · 2025

Study protocol for a randomized controlled trial: Integrating the ‘Time-limited Trial’ in the emergency department Open

Tadayuki Hashimoto, Rachel K. Putman, Anthony F. Massaro, Youkie Shiozawa, Katherine McGough , et al. · 2024

Introduction Time-limited trial (TLT) is a structured approach between clinicians and seriously ill patients or their surrogates to discuss patients’ values and preferences, prognosis, and shared decision-making to use specific therapies f…

Boost Your Brain Health: Methods and Baseline Characteristics for a Randomized, Controlled Trial of an Online Study to Reduce Dementia Risk Factors Open

Patricia Turo, Cynthia Benjamin, Henry Brodaty, Rebecca L. Sudore, Margaret A. Chesney , et al. · 2024

Background Nearly 1 in 3 older adults are living with mild cognitive impairment (MCI) or subjective cognitive decline (SCD), which places them at increased risk of developing Alzheimer’s disease or related dementias (ADRD). Behavioral inte…

HOW INTERNATIONAL EXPERTS DEFINE ADVANCE CARE PLANNING: A CONTENT ANALYSIS Open

Jenny T. van der Steen, Emma de Wit, Mandy Visser, Miharu Nakanishi, Lieve Van den Block , et al. · 2024

Planning for future medical care, referred to as Advance Care Planning (ACP), has evolved to a focus on conversations that explore values and preferences in a broad sense. It is unclear how this conceptualization has been adopted internati…

ADAPTING A VIRTUAL MEDICAL PLANNING PROGRAM FOR CARE PARTNERS OF PERSONS WITH COGNITIVE IMPAIRMENT Open

Jasmine Santoyo‐Olsson, Deborah E. Barnes, Brookelle Li, Angélica Martínez, Rebecca L. Sudore · 2024

Care partners want to help persons with cognitive impairment (PCI) engage in advance care planning (ACP) before they lose decision-making capacity, but report needing more support and access to virtual information. We created the video-bas…

How international experts would define advance care planning: a content analysis Open

Jenny T. van der Steen, Emma J de Wit, Mandy Visser, Miharu Nakanishi, Lieve Van den Block , et al. · 2024

Planning for future medical treatment, and care, referred to as advance care planning (ACP), has evolved to a focus on conversations that explore values and preferences in a broad sense. Given diverse practices internationally, we examined…

Barriers and Strategies to Effective Serious Illness Communication for Patients with End-Stage Liver Disease in the Intensive Care Setting Open

Cristal Brown, Saif Khan, Trisha M. Parekh, Andrew J. Muir, Rebecca L. Sudore · 2024

Background: Patients with end-stage liver disease (ESLD) often require Intensive Care Unit (ICU) admission during the disease trajectory, but aggressive medical treatment has not resulted in increased quality of life for patients or caregi…

Differences in Health Care and Palliative Care Use at the End of Life Open

Angela O. Suen, Kara Bischoff, Anand Iyer, K.R. Radhakrishnan, Cynthia Fenton , et al. · 2024

Action plans increase advance care planning documentation and engagement among English and Spanish‐speaking older adults Open

Clarissa Ferguson, Joni Gilissen, Charlotte Scheerens, Aiesha Volow, Jana Powell , et al. · 2024

Background Advance care planning (ACP) has been reconceptualized as a health behavior. Action plans (APs), or patient‐directed mini contracts, improve behavior change. However, no prior studies have assessed whether APs can increase ACP do…

Making advance care planning easier for adults with kidney disease and their clinicians Open

Ryan D. McMahan, Rebecca L. Sudore · 2024

Increasing goals of care conversations in primary care: Study protocol for a cluster randomized, pragmatic, sequential multiple assignment randomized trial Open

David B. Bekelman, Karleen F. Giannitrapani, Kristin A. Linn, Paula Langner, Rebecca L. Sudore , et al. · 2024

Rebecca L. Sudore YOU? Author Swipe