R. Carvalho
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View article: A FAIR Perspective on Data Quality Frameworks
A FAIR Perspective on Data Quality Frameworks Open
Despite considerable effort and analysis over the last two to three decades, no integrated scenario yet exists for data quality frameworks. Currently, the choice is between several frameworks dependent upon the type and use of data. While …
View article: A FAIR Perspective on Data-Quality Frameworks
A FAIR Perspective on Data-Quality Frameworks Open
Despite considerable effort and analysis over the last two-to-three decades, no single encompassing solution has been found for data-quality frameworks. Currently, the choice is between a number of frameworks dependent upon the type and us…
View article: Facing further challenges in cancer data quality and harmonisation
Facing further challenges in cancer data quality and harmonisation Open
This article highlights the recent and ongoing activities of European population-based cancer registries (PBCRs) in data quality and harmonisation in the framework of the collaboration between the European Network of Cancer Registries (ENC…
View article: Geographical and temporal differences in gastric and oesophageal cancer registration by subsite and morphology in Europe
Geographical and temporal differences in gastric and oesophageal cancer registration by subsite and morphology in Europe Open
Background Gastric and oesophageal cancers pose a serious public health concern. In 2020 a total of 189,031 incident cases (136,038 stomach, 52,993 oesophagus) and 142,508 deaths (96,997 stomach, 45,511 oesophagus) were estimated in Europe…
View article: The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS) Open
The core activity of population-based cancer registries (PBCRs) is to gather information from all new cancer cases in a defined geographic area, in order to measure the magnitude of cancer burden and to provide a basis for cancer research.…
View article: Lung cancer mortality and soil content of arsenic and cadmium: an ecological study in 26 EU countries
Lung cancer mortality and soil content of arsenic and cadmium: an ecological study in 26 EU countries Open
Background Environmental risk factors, such as exposure to air pollution, are linked with lung cancer. However, potential health impacts of exposure to carcinogenic pollutants in soil are less defined. In this ecological study, we evaluate…
View article: Quality indicators: completeness, validity and timeliness of cancer registry data contributing to the European Cancer Information System
Quality indicators: completeness, validity and timeliness of cancer registry data contributing to the European Cancer Information System Open
Population-based Cancer Registries (PBCRs) are tasked with collecting high-quality data, important for monitoring cancer burden and its trends, planning and evaluating cancer control activities, clinical and epidemiological research and de…
View article: The European Cancer Information System: exploring linkages between indoor radon concentrations and data on cancer burden
The European Cancer Information System: exploring linkages between indoor radon concentrations and data on cancer burden Open
Exposure to radon over time has significant detrimental effects on human health. Approximately 226,000 annual radon-related deaths have been reported from 66 countries (1). Many countries have a radon action plan, in order to reduce the ha…
View article: Impact of the first wave of the COVID-19 pandemic on cancer registration and cancer care: a European survey
Impact of the first wave of the COVID-19 pandemic on cancer registration and cancer care: a European survey Open
Background The coronavirus disease COVID-19 pandemic posed a number of challenges to the oncology community, particularly the diagnosis and care of cancer patients while ensuring safety from the virus for both patients and professionals: m…
View article: Dotting the “i” of Interoperability in FAIR Cancer-Registry Data Sets
Dotting the “i” of Interoperability in FAIR Cancer-Registry Data Sets Open
To conform to FAIR principles, data should be findable, accessible, interoperable, and reusable. Whereas tools exist for making data findable and accessible, interoperability is not straightforward and can limit data reusability. Most inte…
View article: An Ontology to Model the International Rules for Multiple Primary Malignant Tumours in Cancer Registration
An Ontology to Model the International Rules for Multiple Primary Malignant Tumours in Cancer Registration Open
Population-based cancer registry data provide a key epidemiological resource for monitoring cancer in defined populations. Validation of the data variables contributing to a common data set is necessary to remove statistical bias; the proc…
View article: Burden of cancer and human exposure to chemicals
Burden of cancer and human exposure to chemicals Open
Cancer has important impacts on the EU's health systems and economies, with around 3 million new patients diagnosed each year. However, up to 40% of cancers are attributed to preventable causes. For these reasons, cancer is one of the main…
View article: Estimated Cancer Incidence and Mortality in Europe for the year 2020
Estimated Cancer Incidence and Mortality in Europe for the year 2020 Open
Background Up-to-date cancer burden indicators are essential to support political decision making, to enable epidemiological research and as an information source for citizens. Nevertheless, observed cancer incidence and mortality suffer f…
View article: Cancer registries - guardians of breast cancer biomarker information: A systematic review
Cancer registries - guardians of breast cancer biomarker information: A systematic review Open
Background: Breast cancer is the most common cancer and the leading cause of cancer-related death in females, with a large societal and economic impact. Decisions regarding its treatment are largely affected by the categorization into diff…
View article: Comparing two approaches for estimating national incidence with regional cancer registration only
Comparing two approaches for estimating national incidence with regional cancer registration only Open
Results:The application of intersectionality on population-based studies including health reporting may guide the identification of which differences in health outcomes are explained by interlocking power relations.The study will yield the…
View article: European Cancer Information System web-application: analysing and visualising European cancer data
European Cancer Information System web-application: analysing and visualising European cancer data Open
understandings for conceptualisations of subjective and objective wellbeing.Methods: Qualitative phenomenological approach with a purposive sample of six participants drawn from professional services and academic staff at a Higher Educatio…