Richard A. Powell
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View article: Community-based palliative care in Kenya: its history, current status, challenges and future
Community-based palliative care in Kenya: its history, current status, challenges and future Open
View article: Google Trends Data to Determine Vaping Prevalence and Predictability in Europe: Usability Study (Preprint)
Google Trends Data to Determine Vaping Prevalence and Predictability in Europe: Usability Study (Preprint) Open
BACKGROUND The increasing use, and negative health effects, of e-cigarettes across Europe warrants continuous surveillance. Google Trends (GT) is a promising surveillance tool, providing real-time data that contrasts positively with cross…
View article: A decade of deprioritisation? Ethnicity and health in the 10-year NHS plan
A decade of deprioritisation? Ethnicity and health in the 10-year NHS plan Open
View article: The legal needs of people receiving palliative care in Uganda: A multi-method assessment to advance universal health coverage
The legal needs of people receiving palliative care in Uganda: A multi-method assessment to advance universal health coverage Open
Background: Palliative care (PC), a holistic approach to care for persons living with serious illness or injury, is a crucial component of Universal Health Coverage (UHC) and Sustainable Development Goal 3. While Uganda has made commendabl…
View article: Creating the evidence base for palliative care in cancer – models and strategies to build research capacity
Creating the evidence base for palliative care in cancer – models and strategies to build research capacity Open
The evidence base for palliative care in cancer in Africa is growing in Africa and identifiable models can and are steering this growth.
View article: Healthcare workers’ mental health during the COVID-19 pandemic: a qualitative analysis of a text message-based NHS workforce support line
Healthcare workers’ mental health during the COVID-19 pandemic: a qualitative analysis of a text message-based NHS workforce support line Open
Background The National Health Service (NHS) is suffering from a workforce crisis of mental and physical sickness and attrition following the COVID-19 pandemic. An in-depth understanding of healthcare workers’ (HCWs) experiences during the…
View article: Learning experiences from an online QI fellowship programme during COVID-19 – a qualitative study
Learning experiences from an online QI fellowship programme during COVID-19 – a qualitative study Open
Background During the COVID-19 pandemic in the United Kingdom, multiple aspects of everyday human existence were disrupted. In contrast, almost all levels of educational learning continued, albeit with modifications, including adaptation t…
View article: A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study
A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study Open
Background: Outcome measurement is pivotal to person-centred assessment, quality improvement and research. Children and young people with life-limiting and -threatening illness have high needs and service use, yet there is a lack of eviden…
View article: Healthcare workers’ mental health during the COVID-19 pandemic: A qualitative analysis of a text message-based NHS workforce support line
Healthcare workers’ mental health during the COVID-19 pandemic: A qualitative analysis of a text message-based NHS workforce support line Open
Background The National Health Service (NHS) is suffering from a workforce crisis of mental and physical sickness and attrition following the COVID-19 pandemic. An in-depth understanding of healthcare workers’ (HCWs) experiences during the…
View article: Implementing the English health inequalities agenda: addressing challenges to person-level, cross-sectoral data linkage, access and routine use for local authority public health
Implementing the English health inequalities agenda: addressing challenges to person-level, cross-sectoral data linkage, access and routine use for local authority public health Open
Local authorities are central to the implementation of English Integrated Care Systems' health inequalities agendas, embedding public health into population health management planning. They work with partners to deliver a range of 'health …
View article: A cross-sectional study of the psychosocial and occupational impact of COVID-19 among NHS staff: findings from a Northwest London cohort during the second wave
A cross-sectional study of the psychosocial and occupational impact of COVID-19 among NHS staff: findings from a Northwest London cohort during the second wave Open
Background: Evidence of the deleterious mental health impact of COVID-19 on healthcare workers shows the priority need to support their psychological wellbeing. We assessed the nature, prevalence and factors associated with the psychosocia…
View article: The quality of death and dying of patients with advanced cancer in hospice care in Uganda and Kenya
The quality of death and dying of patients with advanced cancer in hospice care in Uganda and Kenya Open
Objectives Minimal information is available about the quality of dying and death in Uganda and Kenya, which are African leaders in palliative care. We investigated the quality of dying and death in patients with advanced cancer who had rec…
View article: From disease- to people-centred pandemic management: organized communities, community-oriented primary care and health information systems
From disease- to people-centred pandemic management: organized communities, community-oriented primary care and health information systems Open
View article: Balancing climate anxiety with hope: learning from collective climate activism
Balancing climate anxiety with hope: learning from collective climate activism Open
View article: Relationship Between Standardized Measures of Chronic Kidney Disease-associated Pruritus Intensity and Health-related Quality of Life Measured with the EQ-5D Questionnaire: A Mapping Study
Relationship Between Standardized Measures of Chronic Kidney Disease-associated Pruritus Intensity and Health-related Quality of Life Measured with the EQ-5D Questionnaire: A Mapping Study Open
Chronic kidney disease-associated pruritus is linked with decreased health-related quality of life assessed using disease-specific instruments. The extent to which worsening pruritus reduces generic quality of life assessed using the EQ-5D…
View article: #5510 CKD-ASSOCIATED PRURITUS SEVERITY AND ITS ASSOCIATION WITH BODY DISTRIBUTION AND EQ-5D HEALTH-RELATED QUALITY OF LIFE IN HAEMODIALYSIS PATIENTS
#5510 CKD-ASSOCIATED PRURITUS SEVERITY AND ITS ASSOCIATION WITH BODY DISTRIBUTION AND EQ-5D HEALTH-RELATED QUALITY OF LIFE IN HAEMODIALYSIS PATIENTS Open
Background and Aims Chronic Kidney Disease associated pruritus (CKD-aP) is common affecting 40% of people with kidney disease receiving dialysis. It is associated with decreased health-related quality of life (HRQoL) as assessed using dise…
View article: MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London
MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London Open
Online survey data collected at baseline for participants enrolled in the MeCareNWL study - see MeCareNWL (nihr.ac.uk). Data extracted from the Qualtrics database on 13 July 2021. Some additional post-processing to satisfy anonymisation re…
View article: MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London
MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London Open
Online survey data collected at baseline for participants enrolled in the MeCareNWL study - see MeCareNWL (nihr.ac.uk). Data extracted from the Qualtrics database on 13 July 2021. Some additional post-processing to satisfy anonymisation re…
View article: MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London
MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London Open
Online survey data collected at baseline for participants enrolled in the MeCareNWL study - see MeCareNWL (nihr.ac.uk). Data extracted from the Qualtrics database on 13 July 2021. Some additional post-processing to satisfy anonymisation re…
View article: MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London
MeCareNWL - baseline data concerning the psychosocial and occupational impact of COVID-19 among NHS and social care staff in NW London Open
Online survey data collected at baseline for participants enrolled in the MeCareNWL study - see MeCareNWL (nihr.ac.uk). Data extracted from the Qualtrics database on 13 July 2021. Some additional post-processing to satisfy anonymisation re…
View article: Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries
Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries Open
Background: The Children’s Palliative Care Outcome Scale (C-POS) is the first measure developed for children with life-limiting and -threatening illness. It is essential to determine whether the measure addresses what matters to children, …
View article: Tackling racism in UK health research
Tackling racism in UK health research Open
Richard A Powell and colleagues set out the barriers and solutions to eliminating inequalities embedded in the UK health research system
View article: ’We weren't checked in on, nobody spoke to us’: an exploratory qualitative analysis of two focus groups on the concerns of ethnic minority NHS staff during COVID-19
’We weren't checked in on, nobody spoke to us’: an exploratory qualitative analysis of two focus groups on the concerns of ethnic minority NHS staff during COVID-19 Open
Objective To gain exploratory insights into the multifaceted, lived experience impact of COVID-19 on a small sample of ethnic minority healthcare staff to cocreate a module of questions for follow-up online surveys on the well-being of hea…
View article: COVID-19’s impact on neglected pharmaceutical staff: wake-up call for needed research
COVID-19’s impact on neglected pharmaceutical staff: wake-up call for needed research Open
Discussion of the necessity of the compulsory vaccination of UK patient-facing care workers as an employment conditionality has deflected from the initial and ongoing impact of Coronavirus disease on relatively neglected occupational group…
View article: Status of Palliative Oncology Care for Children and Young People in Sub-Saharan Africa: A Perspective Paper on Priorities for New Frontiers
Status of Palliative Oncology Care for Children and Young People in Sub-Saharan Africa: A Perspective Paper on Priorities for New Frontiers Open
PURPOSE The burden of cancer disproportionately affects low- and middle-income countries. Low 5-year survival figures for children with cancer in low-income countries are due to late presentation at diagnosis, treatment abandonment, absenc…
View article: Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision
Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision Open
Objectives To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction…
View article: Valuing the Spiritual
Valuing the Spiritual Open
View article: Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision
Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision Open
Objectives To review and synthesize the existing evidence on bereavement care, within the United Kingdom (UK), for ethnic minority communities in terms of barriers and facilitators to access; models of care; outcomes from, and satisfaction…
View article: Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study
Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study Open
BackgroundGlobal health investment has reduced HIV mortality and transmission. However, little is known of patient-reported outcomes alongside ART rollout. This study aimed to measure wellbeing using patient-reported outcome measures (PROM…
View article: “From good hearted community members we get volunteers” – an exploratory study of palliative care volunteers across Africa
“From good hearted community members we get volunteers” – an exploratory study of palliative care volunteers across Africa Open
Background Volunteers play a significant role in supporting hospice and palliative care in Africa, but little is known about the types of volunteers, their motivations and roles in service delivery. Methods Palliative care experts from 30 …