Rob Trubey
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View article: Discussing Data: A UK-wide public consultation on the use of low fidelity synthetic data for research
Discussing Data: A UK-wide public consultation on the use of low fidelity synthetic data for research Open
IntroductionSynthetic data is an emerging tool for health and social care researchers which can be used to expedite research processes and enhance the safety of personal data handling. Although data owners across the UK and globally curren…
View article: Public Perceptions of and Best Practices for Synthetic Data Use in Research
Public Perceptions of and Best Practices for Synthetic Data Use in Research Open
This project aimed to establish recommendations for data owners on the production, release, and public communication of synthetic data. By engaging members of the UK public in facilitated discussions, we explored perceptions of synthetic d…
View article: Enhancing inclusivity and diversity in trials that use routinely collected data: a scoping review
Enhancing inclusivity and diversity in trials that use routinely collected data: a scoping review Open
ObjectivesThe aim of the scoping review was to identify the existing literature on public and professional’s perspectives about inclusivity and diversity in trials that use routinely collected data. The review will inform the development o…
View article: Building Research Capacity for Data-Enabled Trials: Embedding Public Perspectives
Building Research Capacity for Data-Enabled Trials: Embedding Public Perspectives Open
The TOP-CAT project, part of the HDR UK-funded Transforming Data for Trials programme, aims to develop training resources for trial teams, public partners, and data custodians. This will strengthen capacity to conduct data-enabled trials a…
View article: How might we improve the mental health and well-being of care-experienced children and young people? Review and map of intervention theories
How might we improve the mental health and well-being of care-experienced children and young people? Review and map of intervention theories Open
Summary This article presents a review and map of program theories used in mental health and well-being interventions tested with care-experienced children and young people (foster care, kinship care, residential care). Program theories ar…
View article: Interventions to improve mental health and well-being in care-experienced children and young people aged less than 25: the CHIMES systematic review
Interventions to improve mental health and well-being in care-experienced children and young people aged less than 25: the CHIMES systematic review Open
Background Children and young people with experience of being in care (e.g. foster care, kinship care, residential care or at home with a supervision requirement order) are at higher risk of adverse mental health and well-being outcomes co…
View article: Interventions Targeting the Mental Health and Well-being of Care-Experienced Children and Young People: Mixed-Methods Systematic Review with Stakeholder Consultation to Inform Transportability and Adaptability to UK Context
Interventions Targeting the Mental Health and Well-being of Care-Experienced Children and Young People: Mixed-Methods Systematic Review with Stakeholder Consultation to Inform Transportability and Adaptability to UK Context Open
Care-experienced children and young people are at increased risk of poor mental health and well-being, and suicide-related outcomes. There is an evidence-base for intervention effectiveness, but this is primarily from the USA. The present …
View article: Public informed training: Developing a curriculum for trialists using health systems data
Public informed training: Developing a curriculum for trialists using health systems data Open
IntroductionResearchers are increasingly using health systems data to support clinical trials. A recent Delphi study identified a number of remaining challenges across the trial lifecycle and highlighted opportunities to address them throu…
View article: Exploring public views on the use of synthetic datasets for research - results from the DELIMIT study
Exploring public views on the use of synthetic datasets for research - results from the DELIMIT study Open
Background Synthetic data refers to datasets derived from ‘real’ administrative data records but sufficiently abstracted to minimise disclosure risk. They can be an efficient way for researchers to learn about the properties of datasets an…
View article: Effectiveness of Mental Health and Wellbeing Interventions for Children and Young People in Foster, Kinship, and Residential Care: Systematic Review and Meta-Analysis
Effectiveness of Mental Health and Wellbeing Interventions for Children and Young People in Foster, Kinship, and Residential Care: Systematic Review and Meta-Analysis Open
The mental health and wellbeing of children and young people who have been in care, primarily foster care, kinship care or residential care, remains a public health priority. The Care-experienced cHildren and young people’s Interventions t…
View article: Mental health and wellbeing interventions for care-experienced children and young people: Systematic review and synthesis of process evaluations
Mental health and wellbeing interventions for care-experienced children and young people: Systematic review and synthesis of process evaluations Open
Background
The mental health and well-being of care-experienced children and young people remains a concern. Despite a range of interventions, the existing evidence base is limited in scope, with a reliance on standalone outcome evaluation…
View article: Interventions targeting the mental health and wellbeing of care-experienced children and young people in higher-income countries: Evidence map and systematic review
Interventions targeting the mental health and wellbeing of care-experienced children and young people in higher-income countries: Evidence map and systematic review Open
Background The mental health and wellbeing of care-experienced children and young people (i.e. foster care, kinship care, residential care) is poorer than non-care-experienced populations. The Care-experienced cHildren and young people’s I…
View article: Interventions targeting the mental health and wellbeing of care-experienced children and young people: Systematic review and evidence map
Interventions targeting the mental health and wellbeing of care-experienced children and young people: Systematic review and evidence map Open
Background: The mental health and wellbeing of care-experienced children and young people (i.e. foster care, kinship care, residential care) is poorer than non-care-experienced populations. The Care-experienced cHildren and young people’s …
View article: STEADFAST- Education outcomes in young people with diabetes: Innovative public involvement and governance to support public trust
STEADFAST- Education outcomes in young people with diabetes: Innovative public involvement and governance to support public trust Open
Type 1 diabetes is a common long-term health condition affecting 40,000 young people in the UK, requiring daily management. The four UK home nations have legal commitments to support young people with medical conditions in their education.…
View article: Linkage of people experiencing homeless using two consent models.
Linkage of people experiencing homeless using two consent models. Open
ObjectivesAdministrative data linkage is relatively under-utilised as a way of generating evidence to guide homelessness policy and service delivery in the UK. Our objective is to contribute insight into the ethical, legal, and practical c…
View article: Paediatric early warning systems: not a simple answer to a complex question
Paediatric early warning systems: not a simple answer to a complex question Open
Paediatric early warning systems (PEWS) to reduce in-hospital mortality have been a laudable endeavour. Evaluation of their impact has rarely examined the internal validity of the components of PEWS in achieving desired outcomes. We highli…
View article: Identifying researcher learning needs to develop online training for UK researchers working with administrative data: CENTRIC training
Identifying researcher learning needs to develop online training for UK researchers working with administrative data: CENTRIC training Open
BackgroundThe use of administrative data in health and social science research continues to expand, with increased availability of data and interest from funders. Researchers, however, continue to experience delays in access, storage and s…
View article: Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study
Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study Open
Background Paediatric mortality rates in the United Kingdom are amongst the highest in Europe. Clinically missed deterioration is a contributory factor. Evidence to support any single intervention to address this problem is limited, but a …
View article: Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study
Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study Open
Background The Paediatric early warning system Utilisation and Morbidity Avoidance (PUMA) study was commissioned to develop, implement and evaluate a paediatric track-and-trigger tool for widespread adoption. Following findings from three …
View article: Care-experienced cHildren and young people’s Interventions to improve Mental health and wEll-being outcomes: Systematic review (CHIMES) protocol
Care-experienced cHildren and young people’s Interventions to improve Mental health and wEll-being outcomes: Systematic review (CHIMES) protocol Open
Introduction The mental health and well-being of children and young people who have been in care (ie, care-experienced) are a priority. There are a range of interventions aimed at addressing these outcomes, but the international evidence-b…
View article: Recruitment And Retention Of Participants From Socioeconomically Deprived Communities: Lessons From The Awareness And Beliefs About Cancer (ABACus3) Randomised Controlled Trial.
Recruitment And Retention Of Participants From Socioeconomically Deprived Communities: Lessons From The Awareness And Beliefs About Cancer (ABACus3) Randomised Controlled Trial. Open
Background : Recruitment of research participants poses challenges in socioeconomically deprived areas. The Awareness and Beliefs About Cancer (ABACus) phase 3 Randomised Control Trial recruited adult participants from socioeconomically de…
View article: Recruitment And Retention Of Participants From Socioeconomically Deprived Communities: Lessons From The Awareness And Beliefs About Cancer (ABACus3) Randomised Controlled Trial.
Recruitment And Retention Of Participants From Socioeconomically Deprived Communities: Lessons From The Awareness And Beliefs About Cancer (ABACus3) Randomised Controlled Trial. Open
Background: Recruitment of research participants poses challenges in socioeconomically deprived areas. The Awareness and Beliefs About Cancer (ABACus) phase 3 Randomised Control Trial recruited adult participants from socioeconomically dep…
View article: Recruitment And Retention Of Participants From Socioeconomically Deprived Communities: Lessons From The Awareness And Beliefs About Cancer (ABACus3) Randomised Controlled Trial
Recruitment And Retention Of Participants From Socioeconomically Deprived Communities: Lessons From The Awareness And Beliefs About Cancer (ABACus3) Randomised Controlled Trial Open
Background Recruitment of research participants poses challenges in socioeconomically deprived areas. The Awareness and Beliefs About Cancer (ABACus) phase 3 Randomised Control Trial recruited adult participants from socioeconomically depr…
View article: Optimising paediatric afferent component early warning systems: a hermeneutic systematic literature review and model development
Optimising paediatric afferent component early warning systems: a hermeneutic systematic literature review and model development Open
Objective To identify the core components of successful early warning systems for detecting and initiating action in response to clinical deterioration in paediatric inpatients. Methods A hermeneutic systematic literature review informed b…
View article: Validity and effectiveness of paediatric early warning systems and track and trigger tools for identifying and reducing clinical deterioration in hospitalised children: a systematic review
Validity and effectiveness of paediatric early warning systems and track and trigger tools for identifying and reducing clinical deterioration in hospitalised children: a systematic review Open
Objective To assess (1) how well validated existing paediatric track and trigger tools (PTTT) are for predicting adverse outcomes in hospitalised children, and (2) how effective broader paediatric early warning systems are at reducing adve…