Robert Mitchell-Thain
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View article: Development of a Question Prompt List for People Living With Primary Biliary Cholangitis: A Delphi Study
Development of a Question Prompt List for People Living With Primary Biliary Cholangitis: A Delphi Study Open
The PBC patient question prompt list serves as a user-facing document, to enhance the patient experience, and drive value-based healthcare in routine clinical practice.
View article: A multisociety Delphi consensus statement on new fatty liver disease nomenclature
A multisociety Delphi consensus statement on new fatty liver disease nomenclature Open
The principal limitations of the terms NAFLD and NASH are the reliance on exclusionary confounder terms and the use of potentially stigmatising language. This study set out to determine if content experts and patient advocates were in favo…
View article: O70 Patient reported experiences through PBC foundation app: what impacts upon a PBC patient’s experience?
O70 Patient reported experiences through PBC foundation app: what impacts upon a PBC patient’s experience? Open
Intro The PBC Foundation is a UK-based patient support organisation which supports patients with PBC in over 75 countries, affected by Primary Biliary Cholangitis (PBC). The PBC Foundation has developed a self-management App to conduct sur…
View article: Patient ownership of primary biliary cholangitis long-term management
Patient ownership of primary biliary cholangitis long-term management Open
Objective Patient ownership of disease is vital in rare diseases like primary biliary cholangitis (PBC). This survey of UK members of the PBC foundation aimed to assess patients’ perception of their disease management, focusing on key biom…
View article: Guidelines on the management of abnormal liver blood tests
Guidelines on the management of abnormal liver blood tests Open
These updated guidelines on the management of abnormal liver blood tests have been commissioned by the Clinical Services and Standards Committee (CSSC) of the British Society of Gastroenterology (BSG) under the auspices of the liver sectio…