Roman Ayele
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View article: Does a novel community-based outpatient palliative care intervention for Parkinson’s disease and related disorders improve care? Qualitative results from patients and care partners
Does a novel community-based outpatient palliative care intervention for Parkinson’s disease and related disorders improve care? Qualitative results from patients and care partners Open
Background: Palliative care has the potential to address significant unmet needs in people with Parkinson’s disease and related disorders, but models that rely on in-person specialty palliative care teams have limited scalability. Aim: To …
View article: Holding back in communications with clinicians: Patient and care partner perspectives in Parkinson’s disease
Holding back in communications with clinicians: Patient and care partner perspectives in Parkinson’s disease Open
By recognizing that cognitive impairment and sensitive topics can be barriers, clinicians can adjust or adopt targeted communication strategies for identifying and discussing care needs.
View article: CLINICIAN AND STAFF PERSPECTIVES IN TRANSITIONS OF CARE FOR DUAL-USE VETERANS LIVING WITH DEMENTIA
CLINICIAN AND STAFF PERSPECTIVES IN TRANSITIONS OF CARE FOR DUAL-USE VETERANS LIVING WITH DEMENTIA Open
The Veterans Administration (VA) has partnered with non-VA hospitals to improve access to care. However, older Veterans living with dementia (VLWD) who use both VA and non-VA care may experience gaps in care, placing them at risk of advers…
View article: Editorial: Understanding, assessing, and guiding adaptations in public health and health systems interventions: current and future directions
Editorial: Understanding, assessing, and guiding adaptations in public health and health systems interventions: current and future directions Open
EDITORIAL article Front. Public Health, 27 June 2023Sec. Public Health Education and Promotion Volume 11 - 2023 | https://doi.org/10.3389/fpubh.2023.1228437
View article: HOW CAREGIVERS AND OLDER US VETERANS MANAGED SOCIAL ISOLATION DURING THE COVID-19 PANDEMIC
HOW CAREGIVERS AND OLDER US VETERANS MANAGED SOCIAL ISOLATION DURING THE COVID-19 PANDEMIC Open
To protect themselves from contracting the SARS-CoV-2 virus, many older adults managing multiple medical conditions experienced increased social isolation. The objective of our qualitative research study was to describe how older Veterans …
View article: Use of the reach, effectiveness, adoption, implementation, and maintenance (RE-AIM) framework to guide iterative adaptations: Applications, lessons learned, and future directions
Use of the reach, effectiveness, adoption, implementation, and maintenance (RE-AIM) framework to guide iterative adaptations: Applications, lessons learned, and future directions Open
Introduction Implementation science frameworks have been used widely for planning and evaluation, but seldom to guide adaptations during program implementation. There is great potential for these frameworks to be used to inform conceptual …
View article: Using a longitudinal multi-method approach to document, assess, and understand adaptations in the Veterans Health Administration Advanced Care Coordination program
Using a longitudinal multi-method approach to document, assess, and understand adaptations in the Veterans Health Administration Advanced Care Coordination program Open
Background Understanding adaptations supports iterative refinement of the implementation process and informs scale out of programs. Systematic documentation of adaptations across the life course of programs is not routinely done, and effic…
View article: Aggression Towards Caregivers in Parkinson's Disease and Related Disorders: A Mixed Methods Study
Aggression Towards Caregivers in Parkinson's Disease and Related Disorders: A Mixed Methods Study Open
Background Aggression is one manifestation of behavioral disturbances in neurodegenerative disease with emerging literature suggesting a high prevalence in Parkinson's disease and related disorders (PDRD). Objectives Our aim was to describ…
View article: Preferences Elicited and Respected for Seriously Ill Veterans through Enhanced Decision-Making (PERSIVED): A protocol for an implementation study in the Veterans Health Administration
Preferences Elicited and Respected for Seriously Ill Veterans through Enhanced Decision-Making (PERSIVED): A protocol for an implementation study in the Veterans Health Administration Open
Background: Empirical evidence supports the use of structured goals of care conversations and documentation of life-sustaining treatment (LST) preferences in durable, accessible and actionable orders to improve the care for people living w…
View article: Optimizing care coordination to address social determinants of health needs for dual-use veterans
Optimizing care coordination to address social determinants of health needs for dual-use veterans Open
Background Veterans increasingly utilize both the Veteran’s Health Administration (VA) and non-VA hospitals (dual-users). Dual-users are at increased risk of fragmented care and adverse outcomes and often do not receive necessary follow-up…
View article: Optimizing Care Coordination to Address Social Determinants of Health Needs for Dual-Use Veterans
Optimizing Care Coordination to Address Social Determinants of Health Needs for Dual-Use Veterans Open
BackgroundVeterans increasingly utilize both the Veteran’s Health Administration (VA) and non-VA hospitals (dual-users). Dual-users are at increased risk of fragmented care and adverse outcomes and often do not receive necessary follow-up …
View article: Experience of Community Neurologists Providing Care for Patients With Neurodegenerative Illness During the COVID-19 Pandemic
Experience of Community Neurologists Providing Care for Patients With Neurodegenerative Illness During the COVID-19 Pandemic Open
ClinicalTrials.gov identifier: NCT03076671.
View article: Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives
Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives Open
Background: COVID-19 has impacted persons with serious illness, including those with chronic, neurodegenerative conditions. While there are several reports on COVID-19’s impact on inpatient palliative care, literature is limited about the …
View article: Influence of Context as a Key Ingredient for High Performance on Skilled Nursing Facility Readmissions
Influence of Context as a Key Ingredient for High Performance on Skilled Nursing Facility Readmissions Open
Improving hospital discharge processes and reducing adverse outcomes post discharge has become a topic of national importance, especially for older patients transitioning to skilled nursing facilities (SNFs). The substantial variation in r…
View article: What’s Driving SNF Readmission Rates? Exploring Differences in Processes Between High and Low Performing Hospitals
What’s Driving SNF Readmission Rates? Exploring Differences in Processes Between High and Low Performing Hospitals Open
Despite the increasing national focus on improving post-acute care outcomes, best practices for reducing readmissions from skilled nursing facilities (SNFs) are unclear. The objective of this rapid ethnographic study was to observe process…
View article: Barriers to and Facilitators of Multimodal Chronic Pain Care for Veterans: A National Qualitative Study
Barriers to and Facilitators of Multimodal Chronic Pain Care for Veterans: A National Qualitative Study Open
Objective Chronic pain is more common among veterans than among the general population. Expert guidelines recommend multimodal chronic pain care. However, there is substantial variation in the availability and utilization of treatment moda…
View article: Addressing Social Determinants of Health for Dual‐Use Veterans
Addressing Social Determinants of Health for Dual‐Use Veterans Open
An estimated 40% of Veterans are eligible for community care. Veterans who access care both outside of the Veterans Health Administration (VA) and at the VA are at risk for fragmented care and adverse outcomes. These dual‐use Veterans ofte…
View article: Making Implementation Science More Rapid: Use of the RE-AIM Framework for Mid-Course Adaptations Across Five Health Services Research Projects in the Veterans Health Administration
Making Implementation Science More Rapid: Use of the RE-AIM Framework for Mid-Course Adaptations Across Five Health Services Research Projects in the Veterans Health Administration Open
Introduction: Implementation science frameworks have helped advance translation of research to practice. They have been widely used for planning and post-hoc evaluation, but seldom to inform and guide mid-course adjustments to intervention…
View article: Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners
Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners Open
Patients and care partners described key needs related to future planning that can inform a comprehensive roadmap to assist with education, communication, and decision making. A roadmap tool can promote individualized anticipatory guidance…
View article: OP65 Framing advance care planning in parkinson’s disease: patient and care partner perspectives
OP65 Framing advance care planning in parkinson’s disease: patient and care partner perspectives Open
Background Advance care planning (ACP) is a new core quality measure in caring for individuals with Parkinson's disease (PD) and there are no best practice standards for how to incorporate the ACP process into PD care. This study describes…