Ronald Cornet
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View article: FAIRness assessment of the metadata of omics datasets in online repositories
FAIRness assessment of the metadata of omics datasets in online repositories Open
Background Current omics repositories aim to make different types of omics data findable to improve data reuse. Data reuse requires sufficient metadata about the way the data was produced and processed. This is part of the "rich metadata" …
View article: Mapping Automatic Alerting Concepts in the Early Rescue Chain to ICD-11
Mapping Automatic Alerting Concepts in the Early Rescue Chain to ICD-11 Open
The early rescue chain (ERC) is a sequence of actions initiated by alerts. After alerting, responding systems and hospital emergency units ensure an effective response. However, automatic alerting systems (AAS) and early warning systems re…
View article: Using the Observational Medical Outcomes Partnership Common Data Model for a multi-registry intensive care unit benchmarking federated analysis: lessons learned
Using the Observational Medical Outcomes Partnership Common Data Model for a multi-registry intensive care unit benchmarking federated analysis: lessons learned Open
Objective Federated analysis is a method that allows data analysis to be performed on similar datasets without exchanging any data, thus facilitating international research collaboration while adhering to strict privacy laws. This study ai…
View article: The FAIR Lesson Plan Handbook: Open Educational Resources for FAIR Training
The FAIR Lesson Plan Handbook: Open Educational Resources for FAIR Training Open
Recognizing the need for practical guidance in implementing the FAIR Data Principles, a collaborative effort involving over 50 contributors led to the development of the FAIR Lesson Plan Handbook. The handbook serves as a framework to assi…
View article: Preparing for ICD-11: Exploring the Current Use of ICD-10 in Dutch Hospital Mortality and Morbidity Coding
Preparing for ICD-11: Exploring the Current Use of ICD-10 in Dutch Hospital Mortality and Morbidity Coding Open
The healthcare sector uses the International Classification of Diseases (ICD) to record and analyze mortality and morbidity, as well as to monitor public health, reimbursement, quality measurement, and clinical decision support. This paper…
View article: Identifying a cohort of hospitalized chronic kidney disease patients using electronic health records: lessons learnt and implications for future research and clinical practice guidelines
Identifying a cohort of hospitalized chronic kidney disease patients using electronic health records: lessons learnt and implications for future research and clinical practice guidelines Open
Background Safe medication prescribing for hospitalized chronic kidney disease (CKD) patients is challenging. Leveraging electronic health records (EHRs) offers potential for decision support. A first step is to capture the CKD cohort thro…
View article: Paediatric-specific content in data standards for health
Paediatric-specific content in data standards for health Open
View article: ATC-to-RxNorm mappings – A comparison between OHDSI Standardized Vocabularies and UMLS Metathesaurus
ATC-to-RxNorm mappings – A comparison between OHDSI Standardized Vocabularies and UMLS Metathesaurus Open
In conclusion, opting for OSV rather than UMLS is generally preferable for an ATC to RxNorm mapping since OSV provides more mappings. However, the results of the sample data show that UMLS can have fewer null mappings in concrete applicati…
View article: Implementing Findable, Accessible, Interoperable, Reusable (FAIR) Principles in Child and Adolescent Mental Health Research: Mixed Methods Approach
Implementing Findable, Accessible, Interoperable, Reusable (FAIR) Principles in Child and Adolescent Mental Health Research: Mixed Methods Approach Open
Background The FAIR (Findable, Accessible, Interoperable, Reusable) data principles are a guideline to improve the reusability of data. However, properly implementing these principles is challenging due to a wide range of barriers. Objecti…
View article: Cross-Standard Health Data Harmonization using Semantics of Data Elements
Cross-Standard Health Data Harmonization using Semantics of Data Elements Open
View article: Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study
Exploring the Impact of the Multimodal CAPABLE eHealth Intervention on Health-Related Quality of Life in Patients With Melanoma Undergoing Immune-Checkpoint Inhibition: Prospective Pilot Study Open
Background Patients with melanoma receiving immunotherapy with immune-checkpoint inhibitors often experience immune-related adverse events, cancer-related fatigue, and emotional distress, affecting health-related quality of life () and cli…
View article: Usability and Usefulness of a Symptom Management Coaching System for Patients With Cancer Treated With Immune Checkpoint Inhibitors: Comparative Mixed Methods Study
Usability and Usefulness of a Symptom Management Coaching System for Patients With Cancer Treated With Immune Checkpoint Inhibitors: Comparative Mixed Methods Study Open
Background The prognosis for patients with several types of cancer has substantially improved following the introduction of immune checkpoint inhibitors, a novel type of immunotherapy. However, patients may experience symptoms both from th…
View article: Linking Health Terminologies: A Unified Approach to the WHO Family of International Classifications
Linking Health Terminologies: A Unified Approach to the WHO Family of International Classifications Open
This paper presents an effort by the World Health Organization (WHO) to integrate the reference classifications of the Family of International Classifications (ICD, ICF, and ICHI) into a unified digital framework. The integration was accom…
View article: Development of the CDISC Pediatrics User Guide: a CDISC and conect4children collaboration
Development of the CDISC Pediatrics User Guide: a CDISC and conect4children collaboration Open
Introduction The conect4children (c4c) project aims to facilitate efficient planning and delivery of paediatric clinical trials. One objective of c4c is data standardization and reuse. Interoperability and reusability of paediatric clinica…
View article: Mapping of Data-Sharing Repositories for Paediatric Clinical Research—A Rapid Review
Mapping of Data-Sharing Repositories for Paediatric Clinical Research—A Rapid Review Open
The reuse of paediatric individual patient data (IPD) from clinical trials (CTs) is essential to overcome specific ethical, regulatory, methodological, and economic issues that hinder the progress of paediatric research. Sharing data throu…
View article: Learning from conect4children: A Collaborative Approach towards Standardisation of Disease-Specific Paediatric Research Data
Learning from conect4children: A Collaborative Approach towards Standardisation of Disease-Specific Paediatric Research Data Open
The conect4children (c4c) initiative was established to facilitate the development of new drugs and other therapies for paediatric patients. It is widely recognised that there are not enough medicines tested for all relevant ages of the pa…
View article: Usability and Usefulness of a Symptom Management Coaching System for Patients With Cancer Treated With Immune Checkpoint Inhibitors: Comparative Mixed Methods Study (Preprint)
Usability and Usefulness of a Symptom Management Coaching System for Patients With Cancer Treated With Immune Checkpoint Inhibitors: Comparative Mixed Methods Study (Preprint) Open
BACKGROUND The prognosis for patients with several types of cancer has substantially improved following the introduction of immune checkpoint inhibitors, a novel type of immunotherapy. However, patients may experience symptoms both from t…
View article: Assessing the use of HL7 FHIR for implementing the FAIR guiding principles: a case study of the MIMIC-IV Emergency Department module
Assessing the use of HL7 FHIR for implementing the FAIR guiding principles: a case study of the MIMIC-IV Emergency Department module Open
Objectives To provide a real-world example on how and to what extent Health Level Seven Fast Healthcare Interoperability Resources (FHIR) implements the Findable, Accessible, Interoperable, and Reusable (FAIR) guiding principles for scient…
View article: Changes in child and adolescent mental health across the COVID‐19 pandemic (2018–2023): Insights from general population and clinical samples in the Netherlands
Changes in child and adolescent mental health across the COVID‐19 pandemic (2018–2023): Insights from general population and clinical samples in the Netherlands Open
Background The COVID‐19 pandemic negatively affected child and adolescent mental health and at the end of the pandemic (April 2022) child mental health had not returned to pre‐pandemic levels. We investigated whether this observed increase…
View article: Assessing resolvability, parsability, and consistency of RDF resources: a use case in rare diseases
Assessing resolvability, parsability, and consistency of RDF resources: a use case in rare diseases Open
Introduction Healthcare data and the knowledge gleaned from it play a key role in improving the health of current and future patients. These knowledge sources are regularly represented as ‘linked’ resources based on the Resource Descriptio…
View article: Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution
Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution Open
Since 2014, “Bring Your Own Data” workshops (BYODs) have been organised to inform people about the process and benefits of making resources Findable, Accessible, Interoperable, and Reusable (FAIR, and the FAIRification process). The BYOD w…
View article: Correctly structured problem lists lead to better and faster clinical decision-making in electronic health records compared to non-curated problem lists: A single-blinded crossover randomized controlled trial
Correctly structured problem lists lead to better and faster clinical decision-making in electronic health records compared to non-curated problem lists: A single-blinded crossover randomized controlled trial Open
Correctly structured problem lists lead to better and faster clinical decision-making. Increased structured problem lists usage may be warranted for which implementation policies should be developed.
View article: SNOMED CT and Basic Formal Ontology – convergence or contradiction between standards? The case of “clinical finding”
SNOMED CT and Basic Formal Ontology – convergence or contradiction between standards? The case of “clinical finding” Open
Background: SNOMED CT is a large terminology system designed to represent all aspects of healthcare. Its current form and content result from decades of bottom-up evolution. Due to SNOMED CT’s formal descriptions, it can be considered an o…
View article: Changes in child and adolescent mental health across the COVID-19 pandemic (2018-2023): Insights from general population and clinical samples in the Netherlands
Changes in child and adolescent mental health across the COVID-19 pandemic (2018-2023): Insights from general population and clinical samples in the Netherlands Open
Background The COVID-19 pandemic negatively affected child and adolescent mental health and at the end of the pandemic (April 2022) child mental health had not returned to pre-pandemic levels. We investigated whether this observed increase…
View article: Determining and assessing characteristics of data element names impacting the performance of annotation using Usagi
Determining and assessing characteristics of data element names impacting the performance of annotation using Usagi Open
The results show that Usagi performed better to annotate the data element names than the synonymous names. The hospital origin in the synonymous names dataset was associated with the amount of correctly annotated concepts. Hospitals that p…
View article: CAPABLE D7.2: AI Ethics and Incidental Findings Policy
CAPABLE D7.2: AI Ethics and Incidental Findings Policy Open
The aim of this deliverable is to describe the approach that the CAPABLE consortium will have with respect to the ethical issues that might arise during the development and use of the CAPABLE AI-based clinical decision support system. In a…
View article: Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their evolution
Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their evolution Open
This preprint describes an effort to instruct people on the benefits and the process of making resources FAIR through Bring Your Own Data (BYOD) workshops. This work describes how the BYODs, which we have organised and participated in sinc…
View article: Assessing Resolvability, Parsability, and Consistency of RDF Resources: A Use Case in Rare Diseases
Assessing Resolvability, Parsability, and Consistency of RDF Resources: A Use Case in Rare Diseases Open
Introduction: Healthcare data and the knowledge gleaned from it play a key role in improving the health of current and future patients. These knowledge sources are regularly represented as ‘linked’ resources based on the Resource Descripti…
View article: An eHealth App (CAPABLE) Providing Symptom Monitoring, Well-Being Interventions, and Educational Material for Patients With Melanoma Treated With Immune Checkpoint Inhibitors: Protocol for an Exploratory Intervention Trial
An eHealth App (CAPABLE) Providing Symptom Monitoring, Well-Being Interventions, and Educational Material for Patients With Melanoma Treated With Immune Checkpoint Inhibitors: Protocol for an Exploratory Intervention Trial Open
Background Since treatment with immune checkpoint inhibitors (ICIs) is becoming standard therapy for patients with high-risk and advanced melanoma, an increasing number of patients experience treatment-related adverse events such as fatigu…
View article: Dataset on comparison of use of problem list versus a real-world patient record
Dataset on comparison of use of problem list versus a real-world patient record Open
<p>This dataset contains information about performance of clinicians interacting with two versions of a patient record, where time spent and successful completion of the task are captured.</p><p>The research has been publ…