Rose Steele
YOU?
Author Swipe
View article: Examining Emotional and Behavioural Trajectories in Siblings of Children with Life-Threatening Conditions
Examining Emotional and Behavioural Trajectories in Siblings of Children with Life-Threatening Conditions Open
Background Healthy siblings of children with life-limiting conditions often experience emotional and behavioral struggles over the course of the ill child’s condition(s). Resources to support these siblings are limited due to the lack of u…
View article: Family Health Care Nursing: Theory, Practice, and Research
Family Health Care Nursing: Theory, Practice, and Research Open
Foundations in Family Health Care Nursing Introduction to Family Health Care Nursing Families and Health Demographics Theoretical Foundations for Family Nursing Family Assessment Approaches and Intervention Strategies Family Social Policy …
View article: A novel classification system for research reporting in rare and progressive genetic conditions
A novel classification system for research reporting in rare and progressive genetic conditions Open
Aim To create a classification system for severe, rare, and progressive genetic conditions for use in research reporting. Method A modified Delphi consensus technique was used to create and reach agreement on a new system of condition cate…
View article: Pain reporting and analgesia management in 270 children with a progressive neurologic, metabolic or chromosomally based condition with impairment of the central nervous system: cross-sectional, baseline results from an observational, longitudinal study
Pain reporting and analgesia management in 270 children with a progressive neurologic, metabolic or chromosomally based condition with impairment of the central nervous system: cross-sectional, baseline results from an observational, longitudinal study Open
Little is known about the prevalence, characterization and treatment of pain in children with progressive neurologic, metabolic or chromosomal conditions with impairment of the central nervous system. The primary aims of this study were to…
View article: Siblings of Children With a Complex Chronic Health Condition: Maternal Posttraumatic Growth as a Predictor of Changes in Child Behavior Problems
Siblings of Children With a Complex Chronic Health Condition: Maternal Posttraumatic Growth as a Predictor of Changes in Child Behavior Problems Open
The findings suggest that the benefits of posttraumatic growth may extend beyond the self to other family members, particularly to children in the family.
View article: Charting the Territory: Children and families living with progressive life-threatening conditions
Charting the Territory: Children and families living with progressive life-threatening conditions Open
These families experience many challenges, for the patient, other individual members and the family as a whole. At least some of these challenges may be alleviated by early and organized palliative care. Effective interventions are needed …
View article: Initial development and psychometric testing of an instrument to measure the quality of children’s end-of-life care
Initial development and psychometric testing of an instrument to measure the quality of children’s end-of-life care Open
There is good initial evidence for the reliability and validity of this new quality of end-of-life care instrument as a mechanism for evaluative feedback to health professionals, health systems, and policy makers to improve children's end-…