Ryan J. Coller
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View article: A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol
A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol Open
Introduction The 2021 Cures Act mandates caregiver access to their child′s medical notes with few exceptions, yet fewer than 10% access notes during hospitalization. Caregiver review of real‐time notes facilitates identification of safety …
View article: Searching for the Best Recipe for Complex Care Services for Children With Neurologic Impairment
Searching for the Best Recipe for Complex Care Services for Children With Neurologic Impairment Open
View article: Preventing respiratory illness in cerebral palsy: Results of a pilot randomized controlled trial
Preventing respiratory illness in cerebral palsy: Results of a pilot randomized controlled trial Open
Background Respiratory illness is consistently the leading cause of death and hospitalization in severe cerebral palsy (CP). Respiratory Exacerbations-Plan for Action and Care Transitions (RE-PACT) is a just-in-time adaptive intervention t…
View article: Differences in COVID-19 testing perceptions among caregivers of children with medical complexity by rurality
Differences in COVID-19 testing perceptions among caregivers of children with medical complexity by rurality Open
Background COVID-19 testing safeguards the health of children with medical complexity (CMC) through several key mechanisms, such as the implementation of clinical action plans and COVID-19-directed therapies. However, testing utility is li…
View article: Correction: Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers
Correction: Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers Open
[This corrects the article DOI: 10.2196/60353.].
View article: Toward digital caregiving network interventions for children with medical complexity living in socioeconomically disadvantaged neighborhoods
Toward digital caregiving network interventions for children with medical complexity living in socioeconomically disadvantaged neighborhoods Open
Background To be usable, useful, and sustainable for families of children with medically complex conditions (CMC), digital interventions must account for the complex sociotechnical context in which these families provide care. CMC experien…
View article: Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers
Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers Open
Background Digital health interventions are a promising method for delivering timely support to underresourced family caregivers. The uptake of digital health interventions among caregivers may be improved by engaging caregivers in partici…
View article: Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial
Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial Open
Background This study will pilot-test the mobile app, Medication Safety @HOME—Meds@HOME intervention to improve medication administration accuracy, reduce preventable adverse drug events, and ultimately improve chronic care management for …
View article: Disparities in COVID-19 vaccine intentions, testing and trusted sources by household language for children with medical complexity
Disparities in COVID-19 vaccine intentions, testing and trusted sources by household language for children with medical complexity Open
Objectives Children with medical complexity experienced health disparities during the coronavirus disease 2019 (COVID-19) pandemic. Language may compound these disparities since people speaking languages other than English (LOE) also exper…
View article: Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial (Preprint)
Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial (Preprint) Open
BACKGROUND This study will pilot-test the mobile app, Medication Safety @HOME—Meds@HOME intervention to improve medication administration accuracy, reduce preventable adverse drug events, and ultimately improve chronic care management for…
View article: Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers (Preprint)
Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers (Preprint) Open
BACKGROUND Digital health interventions are a promising method for delivering timely support to underresourced family caregivers. The uptake of digital health interventions among caregivers may be improved by engaging caregivers in partic…
View article: Quality Improvement Identifies Healthcare Transition Disparities in Adolescents with Congenital Heart Disease and Disabilities
Quality Improvement Identifies Healthcare Transition Disparities in Adolescents with Congenital Heart Disease and Disabilities Open
Introduction: We aim to implement healthcare transition (HCT) education for youth with congenital heart disease (CHD) and assess HCT preparedness for cardiac self-care. Methods: An HCT clinic was implemented at an academic pediatric cardio…
View article: Designing for caregiving networks: a case study of primary caregivers of children with medical complexity
Designing for caregiving networks: a case study of primary caregivers of children with medical complexity Open
Objective The study aimed to characterize the experiences of primary caregivers of children with medical complexity (CMC) in engaging with other members of the child’s caregiving network, thereby informing the design of health information …
View article: Perception of Physicians’ Notes Among Parents of Different Health Literacy Levels
Perception of Physicians’ Notes Among Parents of Different Health Literacy Levels Open
OBJECTIVES To explore the benefits and challenges of accessing physicians’ notes during pediatric hospitalization across parents of different health literacy levels. METHODS For this secondary analysis, we used semi-structured interviews c…
View article: Developing a Sustainable Care Delivery Payment Model for Children With Medical Complexity
Developing a Sustainable Care Delivery Payment Model for Children With Medical Complexity Open
Children with medical complexity (CMC) are a small but growing population representing <1% of all children while accounting for >30% of childhood health care expenditure. Complex care is a relatively new discipline that has emerged w…
View article: An mHealth Design to Promote Medication Safety in Children with Medical Complexity
An mHealth Design to Promote Medication Safety in Children with Medical Complexity Open
Background Children with medical complexity (CMC) are uniquely vulnerable to medication errors and preventable adverse drug events because of their extreme polypharmacy, medical fragility, and reliance on complicated medication schedules a…
View article: Feasibility of social network analysis to study outcomes of children with medical complexity
Feasibility of social network analysis to study outcomes of children with medical complexity Open
Since most care for children with medical complexity (CMC) is delivered daily in communities by multiple caregiving individuals, that is, caregiving networks, tools to assess and intervene across these networks are needed. This study evalu…
View article: An Important Tool to Understand Durable Medical Equipment and Supply Use in Children
An Important Tool to Understand Durable Medical Equipment and Supply Use in Children Open
Arda Hotz, MD, MPH; Eli Sprecher, MD, MPP; Lucia Bastianelli, CRNP; Jonathan Rodean, MS; Isabel Stringfellow, BS; Elizabeth Barkoudah, MD; Laurie E. Cohen, MD; Carlos Estrada, MD, MBA; Robert Graham, MD; Jonathan Greenwood, PT, MS, DPT; Je…
View article: Pediatric Open Notes: Caregiver Experiences Since the 21st Century Cures Act
Pediatric Open Notes: Caregiver Experiences Since the 21st Century Cures Act Open
View article: Adaptive Intervention to Prevent Respiratory Illness in Cerebral Palsy: Protocol for a Feasibility Pilot Randomized Controlled Trial
Adaptive Intervention to Prevent Respiratory Illness in Cerebral Palsy: Protocol for a Feasibility Pilot Randomized Controlled Trial Open
Background This study will pilot-test an innovative just-in-time adaptive intervention to reduce severe respiratory illness among children with severe cerebral palsy (CP). Our intervention program, Respiratory Exacerbation–Plans for Action…
View article: Further Developments in Preventing Emergency Department Visits for Children with Medical Complexity
Further Developments in Preventing Emergency Department Visits for Children with Medical Complexity Open
View article: Barriers to and facilitators of a just-in-time adaptive intervention for respiratory illness in cerebral palsy: a qualitative study
Barriers to and facilitators of a just-in-time adaptive intervention for respiratory illness in cerebral palsy: a qualitative study Open
Objective To understand caregiver, healthcare professional and national expert perspectives on implementation of a just-in-time adaptive intervention, RE-PACT (Respiratory Exacerbation-Plans for Action and Care Transitions) to prevent resp…
View article: School Attendance Decisions for Children With Medical Complexity During COVID-19
School Attendance Decisions for Children With Medical Complexity During COVID-19 Open
OBJECTIVE School attendance by children with medical complexity (CMC) may be influenced by parent perceptions of their child’s risk for coronavirus disease 2019 (COVID-19). The authors of this study aimed to quantify in-person school atten…
View article: Common Data Element Collection in Underserved School Communities: Challenges and Recommendations
Common Data Element Collection in Underserved School Communities: Challenges and Recommendations Open
OBJECTIVES To provide recommendations for future common data element (CDE) development and collection that increases community partnership, harmonizes data interpretation, and continues to reduce barriers of mistrust between researchers an…
View article: Building School-Academic Partnerships to Implement COVID-19 Testing in Underserved Populations
Building School-Academic Partnerships to Implement COVID-19 Testing in Underserved Populations Open
OBJECTIVE In April 2021, the US government made substantial investments in students’ safe return to school by providing resources for school-based coronavirus disease 2019 (COVID-19) mitigation strategies, including COVID-19 diagnostic tes…
View article: Recommendations for SARS-CoV-2 Testing in Children With Disabilities and Medical Complexity
Recommendations for SARS-CoV-2 Testing in Children With Disabilities and Medical Complexity Open
Schools provide important services that cannot be provided virtually to children with medical complexity and children with intellectual and developmental disabilities, yet these children are among the most at risk from coronavirus disease …
View article: Adaptive Intervention to Prevent Respiratory Illness in Cerebral Palsy: Protocol for a Feasibility Pilot Randomized Controlled Trial (Preprint)
Adaptive Intervention to Prevent Respiratory Illness in Cerebral Palsy: Protocol for a Feasibility Pilot Randomized Controlled Trial (Preprint) Open
BACKGROUND This study will pilot-test an innovative just-in-time adaptive intervention to reduce severe respiratory illness among children with severe cerebral palsy (CP). Our intervention program, Respiratory Exacerbation–Plans for Actio…
View article: Domains of professional fulfillment for pediatric hospital medicine: A concept mapping study
Domains of professional fulfillment for pediatric hospital medicine: A concept mapping study Open
Background We know little about how pediatric hospital medicine (PHM) physicians conceptualize their professional fulfillment (PF). The objective of this study was to determine how PHM physicians conceptualize PF. Objective The objective o…
View article: Parent Perspectives on Sharing Pediatric Hospitalization Clinical Notes
Parent Perspectives on Sharing Pediatric Hospitalization Clinical Notes Open
BACKGROUND AND OBJECTIVES Federal guidelines mandate that hospitals provide patients and caregivers with free, online access to their physician’s clinical notes. This study sought to identify parent perceptions of the benefits and challeng…
View article: What makes a home? Designing home personas to represent the homes of families caring for children with medical complexity
What makes a home? Designing home personas to represent the homes of families caring for children with medical complexity Open