Samantha Flynn
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View article: Implementation of Online Mindfulness With Peer Mentoring for Parent and Sibling Carers of People With Intellectual and Developmental Disabilities
Implementation of Online Mindfulness With Peer Mentoring for Parent and Sibling Carers of People With Intellectual and Developmental Disabilities Open
Background There is promising evidence for the adaptation of online mindfulness interventions for parent carers of individuals with intellectual and developmental disabilities by including supplementary peer support sessions. However, ther…
View article: Effectiveness of Headsprout Early Reading® in Special Educational Needs Schools: A cluster randomised controlled trial
Effectiveness of Headsprout Early Reading® in Special Educational Needs Schools: A cluster randomised controlled trial Open
Children with intellectual disabilities often find acquiring age‐appropriate reading skills difficult. We evaluated the impact of a structured online reading intervention on the reading skills of children aged 5–11 years in special educati…
View article: Challenges of using and managing medication: a meta-ethnography of the experiences and perceptions of people with intellectual disability and people who support them
Challenges of using and managing medication: a meta-ethnography of the experiences and perceptions of people with intellectual disability and people who support them Open
Objective To explore the challenges experienced by people with intellectual disability, their carers and health and social care professionals when using and managing medication. Design A synthesis of qualitative research using meta-ethnogr…
View article: Down Syndrome in Maternity Care: Mothers' Experiences of Prenatal Screening
Down Syndrome in Maternity Care: Mothers' Experiences of Prenatal Screening Open
Prenatal screening for Down syndrome (DS) is offered to expectant parents receiving antenatal care in many countries, with an emphasis on providing parents with the opportunity to make informed choices about their pregnancy. We examined ex…
View article: The benefits and harms of cancer screening programmes for adults with intellectual disabilities: A systematic review
The benefits and harms of cancer screening programmes for adults with intellectual disabilities: A systematic review Open
Introduction Cancer screening programmes are an important public health initiative aimed at reducing morbidity and mortality through the early detection of breast, cervical, and colorectal cancers. The available evidence points towards low…
View article: Conducting research in real world settings—lessons learned from an implementation and process evaluation of Headsprout Early Reading® in special schools
Conducting research in real world settings—lessons learned from an implementation and process evaluation of Headsprout Early Reading® in special schools Open
Background Evaluating the success of randomised controlled trials (RCTs) requires an understanding of the processes and experiences of those involved in implementation as much as an analysis of outcomes, particularly when conducted in real…
View article: Digital Psychological Wellbeing Interventions for Family Carers of Children and Adults With Intellectual and Developmental Disabilities: A Systematic Review
Digital Psychological Wellbeing Interventions for Family Carers of Children and Adults With Intellectual and Developmental Disabilities: A Systematic Review Open
Background This review explored (1) what digital psychological wellbeing interventions for family carers of people with intellectual and developmental disabilities were reported in the literature, (2) evidence about their effectiveness, (3…
View article: ‘You Understand Me’: Experiences of Peer Mentors Delivering Support for a Mindfulness Intervention to Family Carers of People With Intellectual and Developmental Disabilities
‘You Understand Me’: Experiences of Peer Mentors Delivering Support for a Mindfulness Intervention to Family Carers of People With Intellectual and Developmental Disabilities Open
Background Family carers of people with intellectual and developmental disabilities are at increased risk of stress and often face barriers to accessing appropriate supports. Peer support can enhance the effects of well‐being interventions…
View article: Family functioning as a mediator or moderator between child behavioural and emotional problems and maternal psychological distress
Family functioning as a mediator or moderator between child behavioural and emotional problems and maternal psychological distress Open
The mechanism of the effect of child behavioural and emotional problems on maternal mental health may at least partially involve changes in family functioning.
View article: Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children With Intellectual Disabilities and/or Who Are Autistic
Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children With Intellectual Disabilities and/or Who Are Autistic Open
Background Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co‐produced, positively‐oriented, family‐systems support programme for fa…
View article: Correction: Statistical analysis plan for the SOLUTIONS randomised controlled trial with internal pilot: Solution Focused Brief Therapy (SFBT) in 10–17-year-olds presenting at police custody
Correction: Statistical analysis plan for the SOLUTIONS randomised controlled trial with internal pilot: Solution Focused Brief Therapy (SFBT) in 10–17-year-olds presenting at police custody Open
View article: Statistical analysis plan for the SOLUTIONS randomised controlled trial with internal pilot: Solution Focused Brief Therapy (SFBT) in 10–17-year-olds presenting at policy custody
Statistical analysis plan for the SOLUTIONS randomised controlled trial with internal pilot: Solution Focused Brief Therapy (SFBT) in 10–17-year-olds presenting at policy custody Open
Background Within England, children and young people entering police custody are referred to Liaison and Diversion (L&D) teams. These teams liaise with healthcare and other support services aiming to divert children and young people away f…
View article: Teaching Reading Skills to Individuals with Autism and/or Intellectual Disabilities Using Computer-Assisted Instruction: a Systematic Review
Teaching Reading Skills to Individuals with Autism and/or Intellectual Disabilities Using Computer-Assisted Instruction: a Systematic Review Open
Reading is an essential life skill that can lead to independence. However, many individuals with autism and/or intellectual disabilities find this skill difficult to acquire. Computer-assisted instruction (CAI) is one approach that combine…
View article: Solutions Trial: Solution Focused Brief Therapy (SFBT) in 10–17-year-olds presenting at police custody: a randomised controlled trial
Solutions Trial: Solution Focused Brief Therapy (SFBT) in 10–17-year-olds presenting at police custody: a randomised controlled trial Open
View article: Improving the inclusion of an under-served group in trials: development and implementation of the INCLUDE Impaired Capacity to Consent Framework
Improving the inclusion of an under-served group in trials: development and implementation of the INCLUDE Impaired Capacity to Consent Framework Open
Background For the potential benefits of trials to reach all that they should, trials must be designed to ensure that those taking part reflect the population who will receive the intervention. However, adults with impaired capacity to con…
View article: Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England
Mapping and identifying service models for community-based services for children with intellectual disabilities and behaviours that challenge in England Open
Background One in five children with an intellectual disability in the UK display behaviours that challenge. Despite associated impacts on the children themselves, their families, and services, little research has been published about how …
View article: Reducing the risk of criminal exploitation using multi-systemic therapy (the RESET Study): study protocol for a feasibility study and process evaluation
Reducing the risk of criminal exploitation using multi-systemic therapy (the RESET Study): study protocol for a feasibility study and process evaluation Open
Background Child criminal exploitation is a form of child abuse that poses a serious risk to the welfare, safety, and wellbeing of young people. Multisystemic therapy (MST) is an intensive family and community-based intervention for young …
View article: Family‐systems interventions for families of people with an intellectual disability or who are autistic: a systematic review
Family‐systems interventions for families of people with an intellectual disability or who are autistic: a systematic review Open
Background Family‐systems interventions have been proposed as one way of supporting families of people with an intellectual disability (ID) or who are autistic. This systematic review aimed to summarise what family‐systems interventions ha…
View article: Issues related to medication usage experienced by people with a learning disability and their carers and interventions to address them: A scoping review
Issues related to medication usage experienced by people with a learning disability and their carers and interventions to address them: A scoping review Open
This scoping review aims to explore what research has been conducted on issues related to medication usage experienced by people with a learning disability and their carers, and strategies and interventions that have been proposed or evalu…
View article: Digital participation of people with profound and multiple learning disabilities during the Covid‐19 pandemic in the UK
Digital participation of people with profound and multiple learning disabilities during the Covid‐19 pandemic in the UK Open
Background During the Covid‐19 pandemic, there has been a worldwide increase in the use of digital technology. Many people with learning disabilities have learned new digital skills, taken part in online activities, and kept in touch with …
View article: Online social connections and Internet use among people with intellectual disabilities in the United Kingdom during the COVID-19 pandemic
Online social connections and Internet use among people with intellectual disabilities in the United Kingdom during the COVID-19 pandemic Open
Having a disability, in particular, an intellectual disability, is associated with Internet non-use. This article explores how people with intellectual disabilities used the Internet across the United Kingdom during the COVID-19 pandemic. …
View article: Early positive approaches to support for families of young children with intellectual disability: the E-PAtS feasibility RCT
Early positive approaches to support for families of young children with intellectual disability: the E-PAtS feasibility RCT Open
Background Parents of children with intellectual disability are 1.5–2 times more likely than other parents to report mental health difficulties. There is a lack of clinically effective and cost-effective group well-being interventions desi…
View article: Early Positive Approaches to Support (E-PAtS) for Families of Young Children With Intellectual Disability: A Feasibility Randomised Controlled Trial
Early Positive Approaches to Support (E-PAtS) for Families of Young Children With Intellectual Disability: A Feasibility Randomised Controlled Trial Open
Background: Parents of children with intellectual disabilities are likely to experience poorer mental well-being and face challenges accessing support. Early Positive Approaches to Support (E-PAtS) is a group-based programme, co-produced w…
View article: The experiences of adults with learning disabilities in the UK during the COVID-19 pandemic: qualitative results from Wave 1 of the Coronavirus and people with learning disabilities study
The experiences of adults with learning disabilities in the UK during the COVID-19 pandemic: qualitative results from Wave 1 of the Coronavirus and people with learning disabilities study Open
Purpose The purpose of this paper is to present data about the experiences of adults with learning disabilities during the COVID-19 pandemic across the UK. Design/methodology/approach Interviews were conducted with 609 adults with learning…
View article: The willingness of UK adults with intellectual disabilities to take COVID‐19 vaccines
The willingness of UK adults with intellectual disabilities to take COVID‐19 vaccines Open
Background Given the much greater COVID‐19 mortality risk experienced by people with intellectual disabilities (ID), understanding the willingness of people with ID to take a COVID‐19 vaccine is a major public health issue. Method In Decem…
View article: Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020
Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020 Open
Purpose This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales. Design/methodology/approach Da…
View article: Coronavirus and People with Learning Disabilities Study, Wave 3 Results
Coronavirus and People with Learning Disabilities Study, Wave 3 Results Open
View article: Chylothorax as a complication of Waldenström macroglobulinaemia with a patient’s perspective
Chylothorax as a complication of Waldenström macroglobulinaemia with a patient’s perspective Open
Chylothorax has rarely been reported as a pleuropulmonary complication of Waldenström macroglobulinaemia (WM). In general, when a unilateral effusion is discovered particularly in patients with a history of cancer or active malignancy, a b…
View article: Coronavirus and people with learning disabilities study: Wave 1 Results: March 2021 (Full Report)
Coronavirus and people with learning disabilities study: Wave 1 Results: March 2021 (Full Report) Open
View article: Failure to replicate a robust Down syndrome advantage for maternal well‐being
Failure to replicate a robust Down syndrome advantage for maternal well‐being Open
Background Family members caring for children with intellectual disability (ID) routinely report heightened levels of psychological distress. However, families of children with Down syndrome typically report better outcomes (known as the D…