Sara B. DeMauro
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View article: Health-related quality of life among families of children with severe bronchopulmonary dysplasia
Health-related quality of life among families of children with severe bronchopulmonary dysplasia Open
Objectives We aimed to profile the family impact, specifically parental health-related quality of life (HRQoL) and family functioning, of children discharged from a quaternary referral program with the most severe forms of bronchopulmonary…
View article: Disrupted Brain Connectivity in Newborns Following Antenatal Opioid Exposure
Disrupted Brain Connectivity in Newborns Following Antenatal Opioid Exposure Open
In a large sample of antenatally opioid-exposed newborns, we report altered organization of brain functional networks, particularly in integrative sensorimotor-affective circuits.
View article: Optimizing pharmacologic treatment for neonatal opioid withdrawal syndrome (OPTimize NOW): a symptom-based dosing approach study protocol for a multi-center, cluster crossover design randomized controlled trial
Optimizing pharmacologic treatment for neonatal opioid withdrawal syndrome (OPTimize NOW): a symptom-based dosing approach study protocol for a multi-center, cluster crossover design randomized controlled trial Open
Background Opioid use and misuse during pregnancy rose from 1.5 to 6.5 per 1000 deliveries between 1999 and 2014 and continues as a significant public health concern. A fivefold increase in neonatal opioid withdrawal syndrome (NOWS) has ac…
View article: Discrepancy between airwave and impulse oscillometry measurements of impedance in healthy children
Discrepancy between airwave and impulse oscillometry measurements of impedance in healthy children Open
View article: Chlorothiazide is associated with a weaker diuretic response than furosemide in infants with bronchopulmonary dysplasia (BPD)
Chlorothiazide is associated with a weaker diuretic response than furosemide in infants with bronchopulmonary dysplasia (BPD) Open
Objective To compare the diuretic effect of furosemide versus chlorothiazide in preterm infants with high-grade bronchopulmonary dysplasia (BPD). Study Design: We conducted a retrospective cohort study of infants with grade 2 or 3 BPD admi…
View article: Tobacco and cannabis use among pregnant women with prenatal opioid use
Tobacco and cannabis use among pregnant women with prenatal opioid use Open
While we observed no differences in tobacco and cannabis use between those taking MOUD only versus other opioids, we observed high rates of tobacco and cannabis use among pregnant women with opioid use. These findings underscore the need f…
View article: Normal values for respiratory oscillometry in pediatrics: The importance of a local control population
Normal values for respiratory oscillometry in pediatrics: The importance of a local control population Open
View article: Experiences and Hope in Caregivers of Children With Aicardi Goutières Syndrome
Experiences and Hope in Caregivers of Children With Aicardi Goutières Syndrome Open
Aicardi Goutières syndrome is a type I interferonopathy that results in a spectrum of neurologic impairment. In general, neurodegenerative disorders of childhood strongly affect the quality of life and perspective of the whole caregiver ne…
View article: The transfusion of prematures early school age follow-up (TOP 5): protocol for a longitudinal cohort study
The transfusion of prematures early school age follow-up (TOP 5): protocol for a longitudinal cohort study Open
Background Anemia of prematurity is a common concern for extremely low birth weight (ELBW) patients in the neonatal intensive care unit. The hemoglobin threshold at which the benefits of red blood cell transfusion outweigh the risks is unk…
View article: Risk factors for food insecurity and association with prenatal care utilization among women who took opioids during pregnancy and unexposed controls
Risk factors for food insecurity and association with prenatal care utilization among women who took opioids during pregnancy and unexposed controls Open
View article: 120 Imaging and CSF biomarkers to optimize neurosurgical intervention for post-hemorrhagic hydrocephalus of prematurity
120 Imaging and CSF biomarkers to optimize neurosurgical intervention for post-hemorrhagic hydrocephalus of prematurity Open
Objectives/Goals: The timing of neurosurgery is highly variable for post-hemorrhagic hydrocephalus (PHH) of prematurity. We sought to utilize microvascular imaging (MVI) in ultrasound (US) to identify biomarkers to discern the opportune ti…
View article: Supplementing Consent for a Prospective Longitudinal Cohort Study of Infants With Antenatal Opioid Exposure: Development and Assessment of a Digital Tool
Supplementing Consent for a Prospective Longitudinal Cohort Study of Infants With Antenatal Opioid Exposure: Development and Assessment of a Digital Tool Open
Background The Outcomes of Babies With Opioid Exposure (OBOE) study is an observational cohort study examining the impact of antenatal opioid exposure on outcomes from birth to 2 years of age. COVID-19 social distancing measures presented …
View article: Lessons Learned in Virtual Launch of an Antenatal Opioid Exposure Study During the COVID-19 Pandemic
Lessons Learned in Virtual Launch of an Antenatal Opioid Exposure Study During the COVID-19 Pandemic Open
Background The COVID-19 pandemic prompted researchers to develop new ways to design and launch studies and recruit and retain participants. Pregnant women and infants are considered vulnerable populations in research, and families affected…
View article: The HYdrocortisone for Bronchopulmonary Dysplasia Respiratory and Developmental (HYBRiD) outcomes study: protocol for a longitudinal cohort study
The HYdrocortisone for Bronchopulmonary Dysplasia Respiratory and Developmental (HYBRiD) outcomes study: protocol for a longitudinal cohort study Open
clinicaltrials.gov ID NCT01353313. Primary trial registration 5/11/11 modified to include followup through school age 12/13/17. This manuscript reflects version 3 of the trial manuscript, dated 10/12/2020.
View article: Early progressive mobility to improve neurodevelopment of infants with severe bronchopulmonary dysplasia at a level IV neonatal intensive care unit: a prospective cohort study
Early progressive mobility to improve neurodevelopment of infants with severe bronchopulmonary dysplasia at a level IV neonatal intensive care unit: a prospective cohort study Open
Objective To measure the feasibility of early progressive mobility (EPM) in intubated infants with severe bronchopulmonary dysplasia (BPD) and compare neurodevelopmental skill acquisition of these infants before and after implementation of…
View article: Association of furosemide versus chlorothiazide exposures with serum sodium, potassium, and chloride among infants with bronchopulmonary dysplasia
Association of furosemide versus chlorothiazide exposures with serum sodium, potassium, and chloride among infants with bronchopulmonary dysplasia Open
View article: Hammersmith Neonatal and Infant Neurological Examinations Scores in Typically Developing Infants Aged 1-6 Months
Hammersmith Neonatal and Infant Neurological Examinations Scores in Typically Developing Infants Aged 1-6 Months Open
The Hammersmith Neonatal (HNNE) and Infant (HINE) Neurological Examinations are increasingly used to evaluate developing neuromotor control in infants at risk for physical disability, but there is no global consensus on score interpretatio…
View article: Design and implementation of a multicenter protocol to obtain impulse oscillometry data in preterm children
Design and implementation of a multicenter protocol to obtain impulse oscillometry data in preterm children Open
Importance Objective measures of lung function are critical for assessing respiratory outcomes of prematurity. Among extremely low gestational age neonates (ELGANs) (< 29 weeks gestational age), high rates of neurodevelopmental impairment …
View article: Acetaminophen for Patent Ductus Arteriosus and Risk of Mortality and Pulmonary Morbidity
Acetaminophen for Patent Ductus Arteriosus and Risk of Mortality and Pulmonary Morbidity Open
OBJECTIVE Emerging data indicate that acetaminophen may adversely affect lung health. We examined whether acetaminophen compared with cyclooxygenase (COX) inhibitor alone for patent ductus arteriosus (PDA) is associated with mortality or r…
View article: Infant and early childhood physical health assessments in the HEALthy Brain and Child Development (HBCD) Study
Infant and early childhood physical health assessments in the HEALthy Brain and Child Development (HBCD) Study Open
View article: Associations of PM<sub>2.5</sub> exposure with emergency department visits and readmissions among preterm infants with bronchopulmonary dysplasia
Associations of PM<sub>2.5</sub> exposure with emergency department visits and readmissions among preterm infants with bronchopulmonary dysplasia Open
Objectives To quantify the association of ambient air pollution (particulate matter, PM 2.5 ) exposure with medically attended acute respiratory illness among infants with bronchopulmonary dysplasia (BPD). Study Design Single center, retro…
View article: Environmental Determinants of Post-Discharge Acute Respiratory Illness among Preterm Infants with Bronchopulmonary Dysplasia
Environmental Determinants of Post-Discharge Acute Respiratory Illness among Preterm Infants with Bronchopulmonary Dysplasia Open
Objective: To analyze the association of components of the Centers for Disease Control and Prevention (CDC) Environmental Justice Index (EJI) with respiratory health outcomes among infants with bronchopulmonary dysplasia (BPD) within one y…
View article: Risk factors for food insecurity and association with prenatal care utilization among women who took opioids during pregnancy
Risk factors for food insecurity and association with prenatal care utilization among women who took opioids during pregnancy Open
View article: Childhood Outcomes Following Discharge from a Referral Bronchopulmonary Dysplasia Program
Childhood Outcomes Following Discharge from a Referral Bronchopulmonary Dysplasia Program Open
Objectives The primary objective of this study was to profile the childhood health, development, and health-related quality of life (HR QoL) for children with the most severe bronchopulmonary dysplasia (BPD), those discharged from a quater…
View article: Characterization of Fine Motor and Visual Motor Skills in Aicardi-Goutières Syndrome
Characterization of Fine Motor and Visual Motor Skills in Aicardi-Goutières Syndrome Open
Aicardi-Goutières syndrome is a genetic inflammatory disorder resulting in dispersed neurologic dysfunction. Despite a recognition of overall motor impairment, fine and visual motor skills are undercharacterized. We hypothesize that there …
View article: Association of maternal pre-pregnancy or first trimester body mass index with neurodevelopmental impairment or death in extremely low gestational age neonates
Association of maternal pre-pregnancy or first trimester body mass index with neurodevelopmental impairment or death in extremely low gestational age neonates Open
View article: Increasing Prevalence of Cerebral Palsy Among Two-Year-Old Children Born at <27 Weeks of Gestation: A Cohort Study
Increasing Prevalence of Cerebral Palsy Among Two-Year-Old Children Born at <27 Weeks of Gestation: A Cohort Study Open
View article: Neurodevelopmental Outcomes of Extremely Preterm Infants Fed Donor Milk or Preterm Infant Formula
Neurodevelopmental Outcomes of Extremely Preterm Infants Fed Donor Milk or Preterm Infant Formula Open
Importance Maternal milk feeding of extremely preterm infants during the birth hospitalization has been associated with better neurodevelopmental outcomes compared with preterm formula. For infants receiving no or minimal maternal milk, it…
View article: Psychological distress among postpartum women who took opioids during pregnancy: the role of perceived stigma in healthcare settings
Psychological distress among postpartum women who took opioids during pregnancy: the role of perceived stigma in healthcare settings Open
This study examined the relationship between perceived stigma in healthcare settings during pregnancy and psychological distress and well-being in the postpartum period among individuals who took opioids while pregnant. Analyses included 1…
View article: Diuretic Tolerance to Repeated-Dose Furosemide in Infants Born Very Preterm with Bronchopulmonary Dysplasia
Diuretic Tolerance to Repeated-Dose Furosemide in Infants Born Very Preterm with Bronchopulmonary Dysplasia Open