Sara Ryan
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View article: Iatrogenic injustice: an institutional ethnography of Fitness to Practise hearings
Iatrogenic injustice: an institutional ethnography of Fitness to Practise hearings Open
The public has an important role to play in the regulation of health and social care, including raising concerns about harms caused by health and social care professionals to improve the safety and quality of services. There is little evid…
View article: Kindness and curious kinships in the lives of family carers of adults with learning disabilities
Kindness and curious kinships in the lives of family carers of adults with learning disabilities Open
This article engages with transcripts from 12 family carers to explore kindness in the lives of family carers and adults with learning disabilities. Knowing that kindness matters and understanding it to be linked to an expansive notion of …
View article: Improving the experience of health services for trans and gender-diverse young people and their families: an exploratory qualitative study
Improving the experience of health services for trans and gender-diverse young people and their families: an exploratory qualitative study Open
Background In the United Kingdom, trans young people find themselves at the centre of political storms and debate regarding their access to health care and treatment. This research was carried out against a backdrop of increasing evidence …
View article: Transitions‐Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review
Transitions‐Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review Open
Background There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these ca…
View article: Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill health
Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill health Open
Understanding how and why someone dies unexpectedly is key to bereaved family members. The coronial process in England investigates instances where the cause of death is unknown, violent or unnatural and/or occurred in state detention. Fam…
View article: Using a Capability Approach to Explore How People With Intellectual Disabilities Can Lead Flourishing Lives
Using a Capability Approach to Explore How People With Intellectual Disabilities Can Lead Flourishing Lives Open
Background People with intellectual disabilities remain disadvantaged in many aspects of everyday life. Capability approach is an underused approach in social care research and has at its core the importance of having capabilities or oppor…
View article: Understanding and using experiences of social care to guide service improvements: translating a co-design approach from health to social care
Understanding and using experiences of social care to guide service improvements: translating a co-design approach from health to social care Open
Background Local authorities need to find new ways of collecting and using data on social care users’ experiences to improve service design and quality. Here we draw on and adapt an approach used in the healthcare improvement field, accele…
View article: ‘Should we even have questions?’ From survey to exhibition – co-producing research about ‘mental health’ with carers and adults with learning disabilities
‘Should we even have questions?’ From survey to exhibition – co-producing research about ‘mental health’ with carers and adults with learning disabilities Open
Carers’ mental health is often the focus of policy and research in Global North contexts. Research exploring carers’ views often uses survey methods to collect information about their experiences and views of services and support. However,…
View article: ‘They are one of us’: How disability training affects health workers' attitudes and actions towards disabled people in Ghana
‘They are one of us’: How disability training affects health workers' attitudes and actions towards disabled people in Ghana Open
Introduction: Health workers negative attitudes and stigma are often reported as one of the greatest barriers for disabled people to access healthcare. Interventions have been developed in response, and preliminary results often show promi…
View article: Dis/Entangling Disability, Mental Health, and the Cultural Politics of Care
Dis/Entangling Disability, Mental Health, and the Cultural Politics of Care Open
This paper explores how understandings of care can be prefigured through engagements with concepts of ableism and sanism as productive and radical companions for (re)thinking care. Working with family carers and people with learning disabi…
View article: Sticky Categories and Their Negative Consequences: People with Learning Disabilities and ‘Behaviours that Challenge Others’
Sticky Categories and Their Negative Consequences: People with Learning Disabilities and ‘Behaviours that Challenge Others’ Open
‘Behaviours that challenge others’ are attributed to 20% of people with learning disabilities. These behaviours are not a diagnosis, it is something people are labelled with. We conducted qualitative interviews with social care staff in th…
View article: Participant perceptions of disability training for health workers: a qualitative study in Ghana
Participant perceptions of disability training for health workers: a qualitative study in Ghana Open
Introduction Disabled people often report poor treatment by health workers, and health workers often report wanting more training about how to care for disabled people. However, existing disability training for health workers is usually de…
View article: The contested zone: interviews with GPs about their beliefs about treatment-resistant depression
The contested zone: interviews with GPs about their beliefs about treatment-resistant depression Open
Background Treatment-resistant depression (TRD) is when antidepressants do not work and affects 55% of British primary care users with depression. People with TRD should be referred to secondary care but there are long wait times. This mea…
View article: #TreatmentResistantDepression: A qualitative content analysis of Tweets about difficult‐to‐treat depression
#TreatmentResistantDepression: A qualitative content analysis of Tweets about difficult‐to‐treat depression Open
Introduction Treatment‐resistant depression (TRD) is depression unresponsive to antidepressants and affects 55% of British primary care users with depression. Current evidence is from secondary care, but long referral times mean general pr…
View article: Whose uncertainty? Learning disability research in a time of COVID-19
Whose uncertainty? Learning disability research in a time of COVID-19 Open
UK government responses to COVID-19 have intensified experiences of uncertainty for people with learning disabilities. The pandemic has eroded the support people receive, previously weakened by austerity measures. In research, COVID-19 rel…
View article: Transitions for older people with intellectual disabilities and behaviours that challenge others: A rapid scoping review
Transitions for older people with intellectual disabilities and behaviours that challenge others: A rapid scoping review Open
Background People with intellectual disabilities and behaviours that challenge others are living longer. This review aimed to explore what is known about the health and social care needs, experiences, service interventions and resources of…
View article: Unsettling experiences: A qualitative inquiry into young peoples’ narratives of diagnosis for common skin conditions in the United Kingdom
Unsettling experiences: A qualitative inquiry into young peoples’ narratives of diagnosis for common skin conditions in the United Kingdom Open
Skin conditions such as eczema and psoriasis are relatively prevalent health concerns in children, adolescents and young adults. Experiences of these dermatology diagnoses in adolescence have hitherto not been the focus of research, perhap…
View article: ‘Language has been granted too much power’.<sup>1,p.1</sup> Challenging the power of words with time and flexibility in the precommencement stage of research involving those with cognitive impairment
‘Language has been granted too much power’.<sup>1,p.1</sup> Challenging the power of words with time and flexibility in the precommencement stage of research involving those with cognitive impairment Open
Meaningful and inclusive involvement of all people affected by research in the design, management and dissemination of that research requires skills, time, flexibility and resources. There continue to be research practices that create impl…
View article: Experiences and meaning of loneliness beyond age and group identity
Experiences and meaning of loneliness beyond age and group identity Open
Research into loneliness has focussed on subpopulations, and in particular those defined by age, identifying specific contextual factors contributing to their experiences. We suggest that the ‘essence’ of loneliness cannot be fully capture…
View article: ‘Internet is easy if you know how to use it’: Doing online research with people with learning disabilities during the COVID‐19 pandemic
‘Internet is easy if you know how to use it’: Doing online research with people with learning disabilities during the COVID‐19 pandemic Open
Background The coronavirus disease 2019 pandemic changed the way we live, work, interact and do research. Many activities moved online, and digital inclusion became an urgent issue for researchers working with people with learning disabili…
View article: Making Memories, Making Madness: Mad (M)others of Disabled Children Write Back Through Digital Storytelling
Making Memories, Making Madness: Mad (M)others of Disabled Children Write Back Through Digital Storytelling Open
This article focuses on a story of education, mothering, disability and madness, with two aims in mind: To reveal and to reflect upon the ways in which (m)others of dis/abled children are labelled as, and are made to feel, mad in their enc…
View article: Transitions for older people with learning disabilities and behaviours that challenge others, and their family carers: a merged protocol for two rapid scoping reviews of evidence
Transitions for older people with learning disabilities and behaviours that challenge others, and their family carers: a merged protocol for two rapid scoping reviews of evidence Open
Background There are over 1 million adults with a learning disability in the UK, of whom approximately 20% displaying behaviours that challenge others. Two thirds of people with learning disabilities live in the family home. As they and th…
View article: Experiences of Treatment-Resistant Mental Health Conditions in Primary Care: A Systematic Review and Thematic Synthesis
Experiences of Treatment-Resistant Mental Health Conditions in Primary Care: A Systematic Review and Thematic Synthesis Open
Background: Most adults fail to achieve remission from common mental health conditions based on pharmacological treatment in primary care alone. There is no data synthesising the reasons. This review addresses this gap through a systematic…
View article: ‘'Ethno…graphy?!? I can't even say it”: Co‐designing training for ethnographic research for people with learning disabilities and carers
‘'Ethno…graphy?!? I can't even say it”: Co‐designing training for ethnographic research for people with learning disabilities and carers Open
Accessible Summary We are a team of academic researchers, people with learning disabilities and carers. We worked together to design training materials for people with learning disabilities and carers to work as co‐researchers on research …