Susan Kirk
YOU?
Author Swipe
View article: Scoping review of variation in clinical guidelines for delivery of injectable long‐acting penicillin across Australia and Aotearoa New Zealand
Scoping review of variation in clinical guidelines for delivery of injectable long‐acting penicillin across Australia and Aotearoa New Zealand Open
Objective This scoping review explores existing clinical guidelines on administration of benzathine benzylpenicillin (Bicillin L‐A, Pfizer Australia) in Australia and Aotearoa New Zealand. The objective is to understand existing delivery g…
View article: Children and young people at the intersection of chronic illness and migration: a scoping review
Children and young people at the intersection of chronic illness and migration: a scoping review Open
Background Chronic illnesses (CIs) are increasingly prevalent among children/young people (CYP) globally. For migrant CYP with CIs, achieving a stable life in a new country can be particularly challenging due to additional barriers such as…
View article: "It's like going through life at a mediocre level". A qualitative study of the meaning and impact of fatigue in children and young people with sickle cell disease
"It's like going through life at a mediocre level". A qualitative study of the meaning and impact of fatigue in children and young people with sickle cell disease Open
Background Fatigue is increasingly recognised as a prevalent and debilitating symptom for young people (YP) with long-term conditions (LTCs), significantly affecting their family, social and educational participation. In sickle cell diseas…
View article: <i>‘People don’t realise how much their past experiences affect them in adulthood’</i>: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs
<i>‘People don’t realise how much their past experiences affect them in adulthood’</i>: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs Open
Background: There is a lack of research about the experiences and impact of having a sibling with a life-limiting condition. Studies focus on the sibling experience during childhood but the experience and impact during adulthood is unknown…
View article: Self‐management interventions for children and young people with sickle cell disease: A systematic review
Self‐management interventions for children and young people with sickle cell disease: A systematic review Open
Background Increasing numbers of interventions are being developed to support self‐management for children and young people (CYP) with sickle cell disease (SCD), but no systematic review has systematically synthesized this evidence regardi…
View article: Qualitative Observational Research in the Intensive Care Setting: A Personal Reflection on Navigating Ethical and Methodological Issues
Qualitative Observational Research in the Intensive Care Setting: A Personal Reflection on Navigating Ethical and Methodological Issues Open
The aim of this theoretical paper is to critically reflect on the ethical and methodological issues that arose during a study that observed nurses’ care-giving in an intensive care unit setting. The authors critically discuss the methodolo…
View article: “Body as a Machine”: How Adolescents With Sickle Cell Disease Construct Their Fatigue Experiences
“Body as a Machine”: How Adolescents With Sickle Cell Disease Construct Their Fatigue Experiences Open
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative …
View article: Umbrella review of family‐focused care interventions supporting families where a family member has a long‐term condition
Umbrella review of family‐focused care interventions supporting families where a family member has a long‐term condition Open
Aim The aim of this study was to summarize reviews of family‐focused care interventions that support families with a family member with a long‐term condition across the life course. Design Umbrella review. Data sources Medline (1946–2019),…
View article: P18 Supporting young people to develop independence in managing their long-term condition
P18 Supporting young people to develop independence in managing their long-term condition Open
Aims Developing self-management skills is part of growing up for many young people with long-term conditions (LTCs) such as chronic kidney disease (CKD). However, young people can find it challenging to become independent at managing their…
View article: Fracture prevention: a population-based intervention delivered in primary care
Fracture prevention: a population-based intervention delivered in primary care Open
Background Osteoporosis is common, increasing as the population ages and has significant consequences including fracture. Effective treatments are available. Aim To support proactive fracture risk assessment (FRAX) and optimizing treatment…
View article: Active Video Games: The Battle for Attention
Active Video Games: The Battle for Attention Open
View article: “I'm not what I used to be”: A qualitative study exploring how young people experience being diagnosed with a chronic illness
“I'm not what I used to be”: A qualitative study exploring how young people experience being diagnosed with a chronic illness Open
Background Childhood long‐term conditions are usually diagnosed in infancy or early childhood. Little is known about the particular experiences and needs of young people who receive a chronic illness diagnosis during adolescence or late ch…
View article: Active Video Games and Attention: Lost the Battle but not the War?
Active Video Games and Attention: Lost the Battle but not the War? Open
View article: The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research Open
In the last three decades, there has been a growing interest in listening to children’s voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven phot…
View article: Asset-Based Community Development: Narratives, Practice, and Conditions of Possibility—A Qualitative Study With Community Practitioners
Asset-Based Community Development: Narratives, Practice, and Conditions of Possibility—A Qualitative Study With Community Practitioners Open
Asset-Based Community Development (ABCD) is seen as a way of tackling the social determinants of health and reducing health inequalities. However, a better understanding of the mechanisms through which ABCD operates, and the environmental …
View article: What is Asset-Based Community Development and How Might It Improve the Health of People With Long-Term Conditions? A Realist Synthesis
What is Asset-Based Community Development and How Might It Improve the Health of People With Long-Term Conditions? A Realist Synthesis Open
Asset-Based Community Development (ABCD) appears to be a promising way to supporting people with long-term health problems but there is currently a lack of evidence to support this approach. Taking a realist approach, a review and concept-…
View article: Adolescents’ experiences of living with sickle cell disease: An integrative narrative review of the literature
Adolescents’ experiences of living with sickle cell disease: An integrative narrative review of the literature Open
View article: Microbiome and infectivity studies reveal complex polyspecies tree disease in Acute Oak Decline
Microbiome and infectivity studies reveal complex polyspecies tree disease in Acute Oak Decline Open
Decline-diseases are complex and becoming increasingly problematic to tree health globally. Acute Oak Decline (AOD) is characterized by necrotic stem lesions and galleries of the bark-boring beetle, Agrilus biguttatus, and represents a ser…
View article: Acute Oak Decline and Agrilus biguttatus: The Co-Occurrence of Stem Bleeding and D-Shaped Emergence Holes in Great Britain
Acute Oak Decline and Agrilus biguttatus: The Co-Occurrence of Stem Bleeding and D-Shaped Emergence Holes in Great Britain Open
Acute Oak Decline (AOD) is a new condition affecting both species of native oak, Quercus robur and Quercus petraea, in Great Britain. The decline is characterised by a distinctive set of externally visible stem symptoms; bark cracks that “…
View article: Identification of<i>Armillaria</i>species on declined oak in Britain: implications for oak health
Identification of<i>Armillaria</i>species on declined oak in Britain: implications for oak health Open
The identity of 51 isolates of Armillaria from 15 Quercus robur trees in poor health, and a single healthy tree, at nine sites in England, was determined using multilocus sequence analysis (MLSA) of three gene regions. Sequences of the ITS…
View article: Living with uncertainty and hope: A qualitative study exploring parents’ experiences of living with childhood multiple sclerosis
Living with uncertainty and hope: A qualitative study exploring parents’ experiences of living with childhood multiple sclerosis Open
Background There is growing recognition that multiple sclerosis is a possible, albeit uncommon, diagnosis in childhood. However, very little is known about the experiences of families living with childhood multiple sclerosis and this is th…
View article: What are the barriers and facilitators to goal-setting during rehabilitation for stroke and other acquired brain injuries? A systematic review and meta-synthesis
What are the barriers and facilitators to goal-setting during rehabilitation for stroke and other acquired brain injuries? A systematic review and meta-synthesis Open
Objective: To identify the barriers and facilitators to goal-setting during rehabilitation for stroke and other acquired brain injuries. Data sources: AMED, Proquest, CINAHL and MEDLINE. Review methods: Two reviewers independently screened…
View article: An exploration of impact and engaged scholarship among DBA students
An exploration of impact and engaged scholarship among DBA students Open
View article: G22 Supporting and sharing: young people’s engagement in an online support forum in the context of living with cystic fibrosis
G22 Supporting and sharing: young people’s engagement in an online support forum in the context of living with cystic fibrosis Open
Aims Young people with long-term conditions learning how to care for their condition can benefit from social support from their peers. However, for young people with cystic fibrosis (CF) the opportunity to do this is limited due to segrega…
View article: G17 Childhood multiple sclerosis: an examination of families experiences, support needs and current service models in the uk
G17 Childhood multiple sclerosis: an examination of families experiences, support needs and current service models in the uk Open
Aims Increasing numbers of children and young people are being diagnosed with multiple sclerosis (MS). However, there is a lack of research about young peoples’ and parents’ experiences of living with MS and it is unknown how appropriate c…
View article: Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions Open
Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain 'hidden carers'. We aimed to explore how carers of people with common long-term conditions (LTCs, such as …
View article: An exploration of how young people and parents use online support in the context of living with cystic fibrosis
An exploration of how young people and parents use online support in the context of living with cystic fibrosis Open
Background There is increasing recognition of the I nternet's potential role in providing information and support for people living with long‐term conditions. However, how young people and parents use online forms of self‐care support in t…
View article: Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms: a narrative review of the literature
Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms: a narrative review of the literature Open
Children and young people frequently report physical complaints that have no observable physical pathology known as medically unexplained symptoms (MUS). Research suggests that MUS are associated with substantial physical and psychological…