Explanipedia

A Community-Based Approach to Refining the Enhancing Active Caregiver Training (EnACT) Intervention Open

Jacqueline Eaton, Sarah Neller, Moroni Fernandez Cajavilca, Julene K. Johnson, Lee Ellington · 2025

Several interventions for care partners of persons living with dementia target the negative effects of behavioral symptoms. Evidence suggests that actively engaging care partners improves outcomes. However, there is little information on t…

PROMOTING THE LIVED EXPERIENCE OF OLDER ADULTS USING APPLIED QUALITATIVE METHODS: LESSONS LEARNED Open

Sarah Neller · 2024

This symposium brings together five complementary papers focused on promoting the perspectives of older adults using applied methods in qualitative research. It underscores the importance of embedding the lived experiences and unique persp…

FEASIBILITY AND ACCEPTABILITY PILOT OF THE ENHANCING ACTIVE CAREGIVER TRAINING (ENACT) INTERVENTION Open

Jacqueline Eaton, Sarah Neller, Moroni Fernandez Cajavilca, Amber Dayley, Julene K. Johnson , et al. · 2024

The process of actively engaging dementia caregivers in interventions has been insufficiently studied. This limits our understanding on how best to improve interventions. Enhancing Active Caregiver Training (EnACT) was developed to facilit…

THE EFFECTS OF CAREGIVING HISTORY ON THE WELL-BEING OF INFORMAL CAREGIVERS LATER IN LIFE Open

Sarah Neller, Radion Svynarenko · 2024

Previous studies have been primarily focused on documenting the negative impact of caregiving on quality of life. However, such a perspective overlooks the potentially positive outcomes that it can bring into the caregiver’s life. The purp…

ADVANCING AN APPLIED THEORETICAL FRAMEWORK OF CREATING A LEGACY OF VALUES: A HOW-TO GUIDE Open

Sarah Neller, Kristin G. Cloyes, Gail L. Towsley · 2024

Applied qualitative researchers are charged with critically reviewing what is currently known about a topic and moving beyond this initial knowledge as data analysis progresses to develop a useful and relevant final product by connecting t…

Comparison of recruitment methodologies for clinical trials: Results from the time for living and caring (TLC) intervention study Open

Catharine Sparks, Anna Hsu, Sarah Neller, Jacqueline Eaton, Amber Thompson , et al. · 2024

Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis Open

Sarah Neller, Megan Hebdon, Emily Wickens, Debra L. Scammon, Rebecca Utz , et al. · 2024

These findings emphasize that many elements of the caregiving experience transcend care recipient age, condition, and relationship and are applicable to clinicians, researchers, and policy makers. The evidence of shared caregiver experienc…

DEVELOPING A CONCEPTUAL MODEL TO ASSESS ACTIVE ENGAGEMENT WITHIN A DEMENTIA CAREGIVER INTERVENTION Open

Sarah Neller, Moroni Fernandez Cajavilca, Julene K. Johnson, Lee Ellington, Jacqueline Eaton · 2023

Active engagement is identified as an effective component of psychoeducational interventions for caregivers of persons living with dementia. There are many approaches to active engagement; however, limited assessment of this component with…

A COMMUNITY-BASED APPROACH TO REFINING THE ENHANCING ACTIVE CAREGIVER TRAINING (ENACT) INTERVENTION Open

Jacqueline Eaton, Sarah Neller, Moroni Fernandez Cajavilca, Julene K. Johnson, Lee Ellington · 2023

Several interventions for dementia caregivers target the negative effects of behavioral symptoms. Evidence suggests that actively engaging caregivers in training and preparation improves outcomes, such as reduced caregiver burden, depressi…

The development and refinement of the enhancing active caregiver training (EnACT) intervention for caregivers of persons living with dementia Open

Jacqueline Eaton, Sarah Neller, Moroni Fernandez Cajavilca, Julene K. Johnson, Lee Ellington · 2023

Background Behavioral symptoms affect up to 90% of persons living with dementia. 1 While interventions have been developed to help caregivers manage symptoms, , these interventions show only weak to moderate effect size. 2 The most success…

Iterative Review and Revision of the Enhancing Active Caregiver Training (EnACT) Intervention Open

Jacqueline Eaton, Sarah Neller, Moroni Fernandez Cajavilca, Julene K. Johnson, Lee Ellington · 2023

Interventions that actively engage dementia caregivers show promise in reducing the negative outcomes of caregiving but lack optimization and systematic testing. The purpose of this manuscript is to describe an iterative process developed …

Preparing for the Future While Living in the Present: Older Adults’ Experiences Creating a Legacy of Values Open

Sarah Neller, Kristin G. Cloyes, Linda S. Edelman, Bob Wong, Barry Baines , et al. · 2023

Background and Objectives A legacy of values (e.g., legacy letter) is a nonlegal way to intentionally communicate intangible assets (e.g., values, life lessons, and emotional and supportive instruction) with others. There is scant research…

Treatment decision conversations, symptoms, and functional status in older adults with advanced cancer: An exploratory study utilizing mixed methods Open

Lorinda A. Coombs, Sarah Neller, Christina Wilson, Paul Mihas, Daniel S. Reuland , et al. · 2022

EXAMINING THE PROCESS OF COMMUNITY-DWELLING OLDER ADULTS CREATING A LEGACY OF VALUES Open

Sarah Neller, Kristin G. Cloyes, Linda S. Edelman, Bob Wong, Gail L. Towsley · 2022

Creating a legacy of values (e.g., legacy letter) is a way to promote generativity by communicating emotional and supportive instruction (e.g., values, life lessons) to others. This study aimed to a) understand the process of how older adu…

PARTNERING WITH DEMENTIA CAREGIVERS TO DEVELOP AND REFINE THE ENACT INTERVENTION Open

Jacqueline Eaton, Sarah Neller, Moroni Fernandez Cajavilca, Julene K. Johnson, Lee Ellington · 2022

The behavioral symptoms of dementia negatively affect family caregivers. Several interventions have been developed to support caregiver needs, and evidence suggests improved outcomes when interventions actively engage caregivers. However, …

Stress and Supportive Care Needs of Millennial Caregivers: A Qualitative Analysis (GP704) Open

Megan Hebdon, Miranda R. Jones, Sarah Neller, Jacqueline Kent‐Marvick, Michael Thomas , et al. · 2022

Leaving a lasting legacy: A scoping review of ethical wills Open

Sarah Neller, Mary McFarland, Linda S. Edelman, Gail L. Towsley · 2022

Objectives Palliative care guidelines recommend an interdisciplinary approach to address patients’ awareness of mortality and need for end-of-life preparation. An ethical will is a nonlegal way to address mortality by communicating a lasti…

Me & My Wishes: Concordance of End-of-Life Preferences between Residents with Dementia, Family, and Staff Open

Gail L. Towsley, Sarah Neller, Rosa Baier, Bob Wong · 2021

Objective: Me & My Wishes involves videos of persons living with dementia talking about their end-of-life (EOL) care preferences. This study aimed to examine the concordance of EOL treatment and psychosocial preferences expre…

Exploring the Concept of the Ethical Will as a Way to Leave a Legacy of Values: A Scoping Review Open

Sarah Neller, Gail L. Towsley, Mary McFarland · 2021

Ethical wills communicate a legacy of values through non-legal emotional and supportive instruction to others and are distinct from legal or living wills. Employed for centuries, little is known about how and why ethical wills are used. We…

Stress and Supportive Care Needs of Millennial Caregivers: A Qualitative Analysis Open

Megan Hebdon, Miranda Jones, Sarah Neller, Jacqueline Kent‐Marvick, Michael C. Thomas , et al. · 2021

Millennial caregivers, born between 1981 and 1996, are an understudied caregiver group. They experience stress-related consequences of caregiving and are unique in their developmental stage and generational norms. The purpose of this study…

Couples Managing Type 1 Diabetes Using Diabetes Technology Open

Nancy A. Allen, Michelle L. Litchman, Sarah Neller, Eunjin Lee Tracy, Robert G. Kent de Grey , et al. · 2021

OBJECTIVE Diabetes technology has improved the lives of people with diabetes (PWD), but there is little research on how insulin pumps and continuous glucose monitoring (CGM) affect couples’ relationships. The purpose of this study was to e…

An Efficacy Trial of Long-Term Care Residents With Alzheimer's Disease Using Videos to Communicate Care Preferences Open

Gail L. Towsley, Bob Wong, Rosa Baier, Sarah Neller · 2021

Development of a Long-Term Care Nurse Residency Program Open

Sarah Neller, Cynthia Beynon, Nanci McLeskey, Connie Madden, Linda S. Edelman · 2021

Nurses working in the long-term care (LTC) setting provide increasingly complex patient care, often without formal training on the specific needs of LTC patients, which can lead to burnout and high turnover rates. Nurse residency programs …

Me & My Wishes Videos: Congruence of End-of-Life Preferences Between Residents With Dementia, Family, and Staff Open

Sarah Neller, Gail L. Towsley, Bob Wong · 2020

Me & My Wishes are person-centered videos of long term care residents (ages 65-95) living with dementia discussing their preferences for care including end-of-life (EOL) medical intervention. We evaluated the congruence of six EOL treatmen…

ESTABLISHMENT OF A DISTANCE BASED LONG-TERM CARE NURSE RESIDENCY PROGRAM Open

Linda S. Edelman, Sarah Neller, Nanci McLeskey, L Garrett, Stephen M. Davis · 2018

Long-term care (LTC) nursing is challenged by caring for individuals with increasingly complex chronic conditions in a highly regulated environment. LTC RNs are less likely to be baccalaureate prepared and few have received gerontological …

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